At the end of my rope :( Please help

[soul4onegiven]

June of  2009 began my problems one day i woke up throwin up lasting about 12 hours long while having dirria at the same time. it would last a few days and alow me to recover but in the recovery proccess included intense pain in my stomic. i have been to a few specalist and have had both a tube down my throught and and my colan as well and biopsys from both the stomic and my intestins. the funny part is all my test are negitive. im fine to them, i moved in jan 2010 and now i very rarely puke, and the pain i had during recovery before is now almost so bad i cry, on a daily basis still no answers at this point, but i dont vomit often anymore. the pain is very nausating  though but goes away with the passing of hours , every morning and on mondays it its at its worse but by 3 in the afternoon im able to feel a little better . i live at aout 4,000 ft above sea leval the first time in my life and i have a disorder caller klipple field sysndrom needless to say im unusal and i dont know whats wrong but i can not handle every test being negitive and try and keep weight on im at 113.00 lbs and its extreamly hard to eat and i don't know what to do can you help

[soul4onegiven]

not entirly sure about that because is is a rare finding and they are still trying to figure out what the spinal cord compression can do over time. basicly my spine in my neck from the bottom of my skull to c-3 is compleatly fused and most of the vertabra are only parchal peices there is a laundry list of other things that attach to it but they are unclear and kinda genral like this could happen this and that i expreance from the syndrom is nerve degeneration torticollis for the resrtiction of movement in the neck i can't lean my head on my left shoulder like most people. i suffer from cronic nerve pain hearinloss and balance issues the stomic is a new devlopment over the last year but i have thought that mabe the attitue might have something to it cause i dont have the flexablity like most and im not sure if the alitude is making my brian swell cause altutide sickness can screw your stomic i read some where but im not sure its reallly puzzling im having my inplant birth control removed because its doing other things i dont like. dont know for sure if that could cause it eather man i hate being diffrent i feel like a sicence expremant sometimes and its ****** thanks for some ideas anything helps and please ask me questions ill tell you what you need ok  

[patient915]

Your symptoms don't really sounds like gastroparesis.  Gastroparesis doesn't usually start randomly one day and it usually causes nausea or vomiting not pain causing nausea.   Gastroparesis is paralysis of the stomach but you could have a different type of motility disorder.  Gastric pacemakers are only given if the patient doesn't respond to medications because they are risky and have a lower probability of working.  I don't really know much about klipple field syndrome, but I know that a motility disorder of the intestines can be caused by spinal problems.  Is it possible that the syndrome you have could be the cause of your problems?

[soul4onegiven]

I have had a run of stool samples about 3 months after the onset of the problems, i did mentchion i do use an anit nausia medican and it is not over the counter or persribed i drink it in a tea, i usaly like to stay natural. i didnt know that your stomic can stop working i've have has ibs for a long time and this other stuff on top of the ibs really kinda *****.

[blue365]

Hi,

I'm so sorry for your suffering.  I just posted a warning against long -term use of I'manti-nausea medications (Reglan) because of the possibility of developing tardia dyskenesia.

I've just started taking over the counter Ginger Root capsules for nausea and it's helping a lot.

I know you want a diagnosis as would I.  Has anyone talked to you about delayed-stomach emptying (gastroperesis)?  The test is often negative.  The more accurate test goes 7 hours. Still, sometimes it's negative.  However, diagnosis can be made based on clinical symptoms alone.  With me the gastroperisis comes and goes.  It's a "paralysis" of the stomach, for me, due to lost motility and poor peristalsis (stomach contractions to digest food) and dismotility in the small bowel.  Many of these issues may be "functional" issues, i.e. how the GI tract operates and may not reflect an underlying disease process.

I would get a gastric pace maker that improves peristalis if my provider did that procedure, but they don't.

Hope this helps. Hang in.

Blue

[patient915]

You might have a bacteria or parasite, which can be tested for by stool testing.

[soul4onegiven]

or mabe in idea i can take to a dotor that covers everything

[soul4onegiven]

yes i do currently use something for nausea, but im also trying to find out why i feel this way a diagnosis hopefuly with a cure so i can go back to feeling normal with just what im use to feeling

[patient915]

Have you tried zofran for your nausea?  It's a prescription medication that usually works well.  Do you have any changes in your bowel movements?