Colectomy without jpouch or ileostomy bag

[Kazann34]

Hello everyone. I recently had surgery to have my colon removed and did not need to have an ileostomy or other surgeries to create a jpouch. The surgeon removed my colon and attached my small intestine to my rectum. That's it. Almost everyon out there has had more than one surgery or has the bag, am I alone? Looking for others to compare outcome of surgery with.

[teresamouth]

I had a MI in April 2002 and lost 21 inches of my bowel. 10 years later, they are still loose. Unexpected and very loud. I can take 8 or 10 imodium just to go grocery shopping and town once a week. I must know where all bathrooms are at all times, and this has been my life for 10 years. The more I eat, the more I go, just like a baby. I do not visit at night due to this fact and the loudness of some of the events in the bathroom. It seems to be more ordorus or stinky since it does not stay in long enought to get fully processed. No match and floral spray and poo smell just don't get it if you are visiting, so you become isolated, depressed and a hermit at night. Wish it would get better but there's no hope, sorry this is my life from now on

[ng1031]

So had a special doctor visit after hours with some of the staff (gi specialist and colon surgeon) at a hospital I have been having all these tests done at. They talked to me about all the results and all that I have told them and they feel I have 2 issues going on

1.) Colonic inertia = constipation/slow transit
2.) SIBO/IBS

they told me that the only way to be sure if the large intestine is working is to do a temporary jpouch for about 4 - 6 weeks. Test the waters and see if I feel better without use of the large intestine. If I do then we know the large intestine is to blame and they can remove it. They told me that they would remove the jpouch and the large intestine and then connect my small intestine to my rectum.

Did anyone else go through this before having their large intestine removed. It means 2 surgeries for me.

[ng1031]

Has anyone had there large intestine removed and had their small intestine attached to their rectum for colonic inertia and ended up with constipation after surgery? I heard that is a risk factor. That you can get the surgery but there might be a chance you will have constipation again one day. Also has anyone had their large intestine removed for colonic inertia and then their small intestine eventually give out on them? What happened then?

[Marla_Singers_Laundry]

Go to the Cleveland clinic or Univ of Mich.  See a few doctors and get several opinion about the reversal.  If you get two like opinions, then that is likley the advice you should follow, whether it is the answer you want to hear or not.  Not knowing you medical history, I don't see a reason you cant have a reversal.  I had a reversal 8 weeks after having 14 inches of my colon removed and 3 inches of my rectum.  I have a very good friend that had hers reversed after a few doctores told her no way.  We both have inertia after, and risk of blockage, but otherwise fine.  Talk to the sugeons about  wanting to get pregnant as well.  They will tell you best.  I would ditch the doctor you have now, it doesn't sound like he has the skills to help you.

Best of luck to you.  

[bailey675]

I am 34 yrs. old. I have been living with an illiostomy for 7 yrs now. I was diagnosed with Crohns disease. I had a total colectomy, two years later I had a sm. bowel ubstruction. Ya, I know its alot but I still want something done to get rid of this ostomy, I hate it. I live in Akron, OH, my surgury was done in Akron, OH by Dr Joel Porter. Everytime I see him, I ask , how can I get rid of this? His reply has always been " I will do nothing I think its to risky if you want something done, I advice that you go to the Cleveland Clinic in Cleveland OH." If something would go wrong, keep in mind that you are over an hour away" For 7 yrs now I am still embarrased that I have an ostomy and find it exhausting to be constantly hiding it.
  The other factor that I am dealing with is, that I want a baby and if I would go ahead and follow through with this, I know that is pry out of the question for quite some time. My husband and I have already been trying for a good year and half but have had no success yet(using fertility treatments)
  So I guess I am on the fence about the resection  now just a little, I am sheduled for a scope of my rectum and sm. intestine on the 23 of Nov.
I am In need of some advice Should I even consider this surery or is impossible? My surgeon said that all the disease has been removed, and actually I have had no problems since the surgeries. I do know that I want to pursue this pregnancy thing, but i dont want to think what if, if something can really be done!!! HELP

[ng1031]

One thing I havent seen asked.. how has this surgery effected your sex life? Once you have been all healed up are you able to have sex without losing control of your BMs???