Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Desperate for help but don't know who to ask
by ashers86, Jul 08, 2009 04:22AM
Well I'll try to make my story as short as possible..
Just over 2 years ago, I suddenly fell ill with what I thought was food poisoning. After not being able to eat without explosive diarrhea for 2 weeks though, I waved the flag and got a bunch of tests done.
All stool tests and blood tests showed up normal; and despite the fact that I used to be allergic to milk and still get sick when having it, I'm not Lactose Intolerant.
By the time I was referred to my first GI, it was already written as a diagnosis of Irritable Bowel Syndrome. Not a surprise as it's in the family and I have mental health issues as well...
I did everything I could... I tried different supplements, kept a diary, evaluated my diet, and took fiber. I even took up Acidophilus (sp?) for awhile but it didn't seem to help much. I requested a 2nd GI referral when the pain and cramping literally knocked me off my feet - it didn't seem right to me. But again, the 2nd GI wrote it off as IBS and gave me absolutely no advice.
At the very beginning of 2009, I got a GI referral of my own through recommendation. Finally, this 3rd doctor agreed to do a colonoscopy. At this point, I was unable to work due to the complications - the heat of the summer gave me a change from Diarrhea-prominent to completely Constipated. It was so bad that the pain was just always there, and I started to tear and bleed with bowel movements.
Needless to say, the colonoscopy did show internal hemorrhoids (which have never been treated), and tortuous sigmoid. However, once again, I was turned away with just a comment that "perhaps in 5 - 7 years I may feel better".
I just can't take it anymore though.. My life has suffered immensely because of this (had to drop out of college in the beginning and cannot work right now even though I have tried to). Because of the tortuous sigmoid diagnosis, I can now at least pinpoint the agonizing pain in my lower left... but it does still make it painful to have bowel movements. Sometimes even sitting or putting pressure on my left hip will cause for an urge to go. I have been taking stool softeners and laxatives on a daily basis as the last GI told me to, but it still feels like I'm being cut open with a knife when I try to pass stool through. In fact, I often need to lay down after a BM because it tires me out and strains my muscles. I've also noticed that the muscle cramping sometimes transposes to my spine (another untreated health issue despite doctors being aware) where I had slipped a disc many years ago.
Anyways, I know it's a lot to read... But seriously, is there not something that can be done? This tortuous sigmoid is killing me! I can always feel whats going on there. The IBS isn't as bad of an issue as I have linked it to Anxiety and am currently getting help for that. However, why is it that there's nothing that can be done (or so I was told) about the tortuous sigmoid?
I'd honestly rather be on a bag if it means no pain anymore... I can't even move or sleep sometimes because of it.
Just over 2 years ago, I suddenly fell ill with what I thought was food poisoning. After not being able to eat without explosive diarrhea for 2 weeks though, I waved the flag and got a bunch of tests done.
All stool tests and blood tests showed up normal; and despite the fact that I used to be allergic to milk and still get sick when having it, I'm not Lactose Intolerant.
By the time I was referred to my first GI, it was already written as a diagnosis of Irritable Bowel Syndrome. Not a surprise as it's in the family and I have mental health issues as well...
I did everything I could... I tried different supplements, kept a diary, evaluated my diet, and took fiber. I even took up Acidophilus (sp?) for awhile but it didn't seem to help much. I requested a 2nd GI referral when the pain and cramping literally knocked me off my feet - it didn't seem right to me. But again, the 2nd GI wrote it off as IBS and gave me absolutely no advice.
At the very beginning of 2009, I got a GI referral of my own through recommendation. Finally, this 3rd doctor agreed to do a colonoscopy. At this point, I was unable to work due to the complications - the heat of the summer gave me a change from Diarrhea-prominent to completely Constipated. It was so bad that the pain was just always there, and I started to tear and bleed with bowel movements.
Needless to say, the colonoscopy did show internal hemorrhoids (which have never been treated), and tortuous sigmoid. However, once again, I was turned away with just a comment that "perhaps in 5 - 7 years I may feel better".
I just can't take it anymore though.. My life has suffered immensely because of this (had to drop out of college in the beginning and cannot work right now even though I have tried to). Because of the tortuous sigmoid diagnosis, I can now at least pinpoint the agonizing pain in my lower left... but it does still make it painful to have bowel movements. Sometimes even sitting or putting pressure on my left hip will cause for an urge to go. I have been taking stool softeners and laxatives on a daily basis as the last GI told me to, but it still feels like I'm being cut open with a knife when I try to pass stool through. In fact, I often need to lay down after a BM because it tires me out and strains my muscles. I've also noticed that the muscle cramping sometimes transposes to my spine (another untreated health issue despite doctors being aware) where I had slipped a disc many years ago.
Anyways, I know it's a lot to read... But seriously, is there not something that can be done? This tortuous sigmoid is killing me! I can always feel whats going on there. The IBS isn't as bad of an issue as I have linked it to Anxiety and am currently getting help for that. However, why is it that there's nothing that can be done (or so I was told) about the tortuous sigmoid?
I'd honestly rather be on a bag if it means no pain anymore... I can't even move or sleep sometimes because of it.
Post Comment
Related Communities
Recent Videos
Related Expert Forums
Recent Activity
Most Popular Trackers
RSS
Expert Activity
Community Members
My doctor told me that if I did not have IBS the Bentyl would not stop the cramping. Since after an hour or 2 the cramping stops after taking it, I assume I have IBS. Although the last time this happened, the Bentyl did not work as well and I cramped for over 2 days. I will never eat eggplant parmesean again!
I have IBS, and I'm not going to lie I've had to go to the hospital before but this sounds like something worse. can I suggest looking away from the bowels, I have issues with my hips, which cause sever pain and adds to my constipation, ends up I had two joints ...it took the doctors six years of inconclusive tests and my mum figured it out reading a ferensic novel, after two ses of x rays they confermed it.
Ends up it added to twisted bowel syndrome and double hip bone on my right hip....
If it is just IBS laxatives will be ur best friend as well as fiber 1, mix it into juice and drink that and lotsa water xoxx
good luck!!
I used to be able to get it at CVS, but it has become very hard to find. If you can't find it ask the pharmacist to order it for you. Even though it is an over the counter med the Pharmacist has to order it. I stock up on it & keep a couple of boxes in each room.