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Healthy 27/m sudden onset of dibilitating GI issues.

What's wrong with me? 27/m/athletic, debilitating medical issues over past 6 mths out of nowhere.

Symptoms & frequency:

-itchy scalp w/red bumps, starts behind ears, spreads to back of scalp when I scratch - occasionally (probably hives)
-hives all over body, including forehead, eyelids, souls of feet, palm - every day (reactine helps)
-debilitating esophageal problem - once a week, keeps me up all night into late am/early pm next day.
symptoms:
feeling of pill stuck in throat (like hive in throat)
chest extremely tight
gassy belching, feeling of trapped gas
constricted throat/esophagus, pain when swallowing water (like drinking too much water at once, hurts going down)
regurgitating partially digested food and foamy saliva
overproduction of bubbly saliva (have to spit all night)
throat constricts so tightly that it causes me to dry heave foamy saliva, accompanied with gut wrenching burn
vomiting (recent symptom)
sore throat
can't sleep when it flares up
is my digestion shutting off? Too much acid? HELP
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Avatar universal
It sounds like you may have a few things going on.  What concerns me is it appears to either be an allergy, or some type of poisoning.  You really need to see your doctor about this. Your stomach problems indicate GERD, but the hives, itching, etc. point to an allergy or a slow poisoning.  The poisoning  may be coming from something in your home, work, really anywhere.  Allergy can be anything.  Had you started taking any new medication prior to the hives?  Soap, colognes, new foods? For this to have gone on this long, you need to see a doctor right away.  My son never had any allergies, and while jogging one day, he became so ill, he almost died.  He was rushed to the hospital and all they could come up with is that the lawns where he was jogging were recently treated with chemicals, and he had a reaction to it.  Don't let this go.
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Avatar universal
more detail:

I'm 27 years old and I have been experiencing bizarre and debilitating medical issues over the past 6 months, that started flaring up out of the blue.  These flare ups disrupt my life, and it happens more frequently every month.  It started happening once a month, now it's once a week.  When I get a flare up, it usually happens around dinner time, and keeps me up all night until about 12 PM the next day.  Then I usually sleep away the day - so it puts me out of commission for 2 full days a week.

I have always been a very health person, rarely had to visit the doctor, rarely got sick with even colds.

6 months ago I started to get a lot of really crazy symptoms that nobody can seem to diagnose or explain.  I've spent a lot of money trying to figure out what is wrong with me, but I'm not getting anywhere on a diagnosis from traditional or alternative health care professionals.

Here is a history of the last 6-7 months.

mid March 2009
My wife and I caught some sort of gastrointestinal norwalk-like virus.  We were sick with vomiting and diarrhea after we both ate some bad salad at a local restaurant. We went to the hospital and they kept us over night hooked up to IVs so we could sleep.  They did some tests and never told us what it was, they just said it was a norwalk-like type of gastrointestinal food poisoning virus.

Early April 2009
-About a week and a half after the food poinsoning, we started pottery classes, and I started working out at a local gym for a couple of weeks.
-I started getting an extremely itchy scalp. My scalp would get small protruding bumps on it, and the more I scratched, the more it spread on my scalp.  It started behind my ears where my glasses rest, and spread to the back of my scalp - it rarely went to the top of my head, and never went on my face or neck.

Late April 2009
-A week or 2 after dealing with the itchy scalp, I was itching my back, and I had my wife look to see if something was there, and we were both surprised to see huge hives on my back.
-Since then I started getting hives all over my body at least once a day.  I would put ice packs on the hives which would tame them.
-I assumed that the itchy scalp/hives were due to either the pottery class or the local gym, so I stopped going to both.  The itchy scalp and hives kept up even after stopping pottery classes and not going to the gym anymore.

Early May 2009
-About 3-4 weeks after the initial itchy scalp symptom, the itchy scalp faded away and the hives were the predominant issue.
-A couple of weeks after the hives started appearing on my body, I started having internal issues, around the same time that the itchy scalp faded away.
-At night only, I would get a feeling of a pill being stuck in my throat.  My chest would go really tight as if I needed to crack my back, and I would get really gassy (burp) but no matter what I did I would get no relief from the chest pain, feeling of a pill stuck in the throat, and I couldn't burp up the gas.  This would happen once a week until it progressed to a worse symptom in late May.

Late May 2009
-I started on a healthy eating plan and an extreme fitness program called P90X.  It consists of working out for an hour to an hour and a half, 6 days a week, for 90 days.
-I went on a low carb diet to shred body fat.  I mainly ate really clean healthy food like lean meats and veggies - very little sugar and very little starchy carbs (no white breads or pastas etc)
-I was still getting hives, and by this time I narrowed it down that the hives were caused by friction, not food allergies. I had found some relief from these hives with Benadryl, but it made me drowsy so I couldn't take it every day.
-The esophagus/throat issue progressed to get worse in late May.  It would start at night with the feeling of the lump in my throat, then the chest pain would happen.  Then my esophagus would start to constrict near where it connects to my stomache and I would hardly be able to swallow or get water down.
-The esophagus/throat issue was so bad that it would keep me up for the entire night until about 10 or 11 am the next morning.  I would produce so much saliva that I couldn't sleep, I had to be near a garbage pale to spit out the saliva. I was constantly trying to belch, but I could never get relief from the gas.  When I did swallow saliva it was really foamy, which would make the gas problem worse, and make the esophagus/stomache area act up even more.  It was a viscious cycle of producing an insane amount of saliva, spitting, burping, and trying to force water down a constricted esophagus.
-This more severe symptom started about once ever 3 weeks, and is now (as of November) happening at least once a week, sometimes multiple times a week.

Mid June 2009
-I stuck with my exercise regime and eating plan, and started seeing great results!
-I learned to deal with the hives by this point.
-The esophagus issue at this point was getting worse.  The 2nd time it happened to me where I was kept up all night long, I went to the emergency room because the symptoms got worse.  
-Along with the chest pain, constant belching, throat/esophagus constriction, overproduction of saliva, I started feeling like something was moving up into my esophagus from my stomache.
-I had been on a google frenzy by this point a few times.  I learned that the overproduction of saliva is a symptom of having an issue with your esophagus.  I read about people with hives that also had this issue.  I read about GERD and acid reflux sufferers.  I read about anaphylaxis symptoms, I still didn't know what this was though.
-Unfortunately, the doctors at the emergency room didn't know what to tell me either.  The doctor said that my hives were probably caused by the shock to my immune system when I caught the norwalk like virus in March, but had no insight into what the bizarre esophagus issue was being caused by.
-They told me that my throat issue was not anaphylaxis, rather it was something else that they weren't sure of.
-They gave me an appointment to get an camera down my esophagus for September (3 months down the road!)
-They prescribed me ranitidine, he said it may help.
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Avatar universal
July 2009
-I had lost about 25 lbs of fat and gained about 5 lbs of muscle since starting my exercise program, and still had a month to go.
-By this point I had been taking the Ranitidine for about 3-4 weeks and I'd already had another huge flare up which kept me up all night and a couple small ones where I eventually got to sleep and the symptoms went away.  I concluded that the Ranitidine wasn't helping and stopped taking it.
-During the latest flare up, along with the other debilitating symptoms - I now would get the urge to throw up.  I started to regurgitate foam with tiny chunks of digested food.
-Try and try as I might, I wasn't able to throw up.  I was desperate to throw up as I felt that I could just end the flare up by getting whatever was in my stomach OUT.  I tried sticking my fingers down my throat but I would just dry heave and nothing but a foamy saliva-like substance.  Again I would be kept up all night long, spitting into a container, going to the bathroom to dry heave foam, and then eventually it would die down at about 12 pm the next day.

August 2009
-I suspected Candida so I went on the Candida diet. I cut out all sugar, and all carbohydrates for about 7 days.  I still had issues during this period so I stopped doing that diet.
-I finished my exercise program, I got down to about 168 lbs form 190 lbs at my starting point.
-I had to travel to Nova Scotia for 3 weeks, and during that time I didn't follow any strict diet, and didn't do much exercise.
-During the 3 weeks I was in Nova Scotia, my symptoms flared up 2 times, including the day that I was supposed to fly to Nova Scotia - which caused a big mess - had to reorganize the transportation plans because I was out of commission.
-Now on top of regurgitating partially digested food and foamy saliva, I started getting a gut wrenching pain when dry heaving.  My throat now gets really sore 8-9 hours into the flare up, I assume due to all the partial regurgitation, belching and spitting.

Late August 2009
-When I got back home, I started seeing a naturopath who was a complete waste of time and money, I spent near a thousand dollars on his treatments and pills and tests, and nothing worked.
-I also stopped taking a probiotic that I ordered to get rid of Candida at this point as it was not helping me after taking it for a couple of months.

September 2009
-I FINALLY got a family doctor assigned to me.  When I first met with him, he told me that he had never heard of these symptoms, and he told me that if I couldn't find the answers on google, he wasn't going to be able to help me out either.
-He also told me that the only thing that they would look for was any life threatening or terminal problems.  He said they were too busy to deal with things that people can 'deal with'.  What a lovely health system...
-He made an appointment for me to see an allergy specialist/dermatologist
-He made an appointment for me to get a chest xray
-He made an appointment for me to get a barium swallow done.
-When I finally got to visit the doctor who I got an appointment with in June regarding the esophagus camera, he told me he didn't have the proper equipment so he only did a nasal camera to look at the back of my throat.  He said that he saw evidence of Oral Thrush (I think it's just a coincidence that I thought I had Candida and he saw evidence of oral thrush) and prescribed me Nystatin.  He also gave me some samples of an antacid called Prevacid that he thought would help me with the esophagus problem.

October 2009
-I got my chest xray done, never heard anything back about that yet.
-I went to the allergy specialist and they did a test on me, and said I didn't react to anything.
-The allergist did a blood test on my for h pylori, but I never heard the result back on that one.
-The allergist gave me a bunch of strong Reactine samples which takes away the hives as long as I'm taking the Reactine.
-After getting flare ups once a week for the last couple of months, I didn't have one for 3 whole weeks!  I thought that I was finally over this!  I was taking the Nystatin and Prevacid every day.  Then it all came crumbling down the day I had to do the Barium Swallow...
-Got the Barium Swallow done where I had to drink gas pills and barium - it was havoc on my stomache and gave me a really bad flare up.
-Ever since then I've continued to take the Nystatin and Prevacid, but I still get bad flare ups once every 7 days or so that disrupt my life.

November 2009
My doctor isn't really helping me out, and nobody is telling me the results of these tests, and I'm not even sure that my doctor is getting the tests sent to him.

I do not want to deal with this for the rest of of my life.  I have never had to deal with anything like this for my first 26 years of life - and I'd like to know what the heck this is and what I can do to fix it!

I feel like there has to be a diagnosis and solution out there for me.
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Avatar universal
Anyone with celiac in your family? You'd be surprised at the symptoms it can provoke.
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Avatar universal
Any doctor that tells you if you can't find answers on google, then he can't help you is a QUACK and should be reported to the AMA.  Your hives are a big red flag of something causing you an allergic reaction.  I would ask to be tested for any type of poisoning, can't hurt, may help.  Demand to see and have copies of any and all your tests, you've paid for them, they are yours.  They are not allowed by law to withhold these from you.  Re-visit this bug you and your wife had, and ask to be tested for parasites.  There is something you are breathing, eating, or touching every single day that you are allergic to and sick from.  I think it's some type of posion, especially since you had no reaction to normal allergens, sounds far fetched but it happens.  
I posted earlier that I think you have a few things going on.  Your throat problem sounds just like GERD (acid reflux) and this is why it happens more at night.  It will give you a feeling of choking, even while eating. But the more bile that backs up in your throat the worse you will get.  It eats away at your esophagus which will cause Barretts Esophagus. Prilosec (OTC) is very good for this, and keeping your head elevated while sleeping will help.  
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Avatar universal
There are many causes of hives including foods, drugs, infections, and diseases. Oddly enough, even though there are many potential causes, in the majority of cases of hives, the cause is unknown. Hives causes can be broken down into 3 broad groups:

Idiopathic: This means we don't know the cause; it just happens.
Immunological: Some hives are caused by changes in the immune system. A typical scenario would be coming in contact with something that causes cells in the immune system to trigger the release of histamine from certain white blood cells called mast cells.
Nonimmunological: Exposure to certain substances can cause the direct release of histamine from mast cells without the involvement of other parts of the immune system.
If you have hives, you want to know what causes them so you can eliminate that trigger and free yourself from the itching. The following lists are not exhaustive, but do give the main known hives causes. While most cases of hives are idiopathic, see if you can eliminate any obvious causes of your hives. Just remember that it's best to talk to your healthcare provide before eliminating all possible hive triggers. If you suspect medication is causing your hives, contact your healthcare provider immediately.
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Avatar universal
Hives Causes - Diseases

When a cause for hives can be found, it's most likely an infection. Viral upper respiratory infections cause about 40% of hives rashes. Fortunately, these hives outbreaks resolve as the infection resolves. A chronic bacterial infection, especially sinusitis, may be the culprit if a case of hives is lingering.
--Diseases...Mastocytosis....Amyloidosis...Lymphoma...Rheumatic Fever...Pemphhigoid...Carcinomas...DermatitisHerpertiformis...Thyroid Disease...Polycythemia Vera...Lupus

--Infections...Gallbladder-Cholecystitis...H. Pylori - Ulcer
--Chronic Bacterial...Sinusitis..Urinary Tract
--Viral...Hepatitis B...Infectious Mononucleosis...Coxsackie Virus Infections
--Other....Intestinal Worms...Malaria
Scabies is a very itchy rash caused by the mite, Sarcoptes scabiei. Scabies occurs in both sexes, all ages, and all ethnic groups. In fact, it's estimated that at least 300 million cases of scabies occur worldwide every year.
What Causes Scabies
The mite that causes scabies is tiny, often too small to be seen with the naked eye. The female mite burrows under the skin and lays 10 to 25 eggs before she dies. The eggs hatch three days later and the larvae move to the surface of the skin. The larvae mature into adults in 10 to 14 days.
Scabies
Scabies is spread by direct skin-to-skin contact. Contact with infested bedding or clothes only rarely causes a new infection.
Scabies Appearance
The rash of scabies can often look similar to other rashes. The rash causes red papules with small lines attached called burrows. However, the mite doesn't usually travel far once its under the skin, so the burrows may not be visible. A scabies rash typically occurs on the wrists, in between fingers, in the armpits, around the waist, and in the genital area. The rash causes intense inflammation in the skin with blisters, redness, and itching.

Angioedema
Angioedema is similar to hives but occurs deeper in the skin. Signs and symptoms of angioedema include:

Large, thick, firm welts
Swelling of the skin
Blisters (bullae) in areas of severe swelling
Pain or warmth in the affected areas
Difficult breathing or swallowing, in severe cases
Angioedema often appears near your eyes or lips, but can also develop on your hands, feet, genitalia or inside your throat. Angioedema and hives can occur separately or at the same time.

Hereditary angioedema is a more serious — yet uncommon — condition that can cause sudden, severe and rapid swelling of your face, arms, legs, hands, feet, genitalia, digestive tract and airway. Signs and symptoms of hereditary angioedema include:

Sudden and severe swelling of the face, arms, legs, hands, feet, genitalia, digestive tract and airway
Abdominal cramping as a result of digestive tract swelling
Difficulty or obstructed breathing due to swelling of the airway
When to see a doctor
Mild hives and angioedema usually aren't life-threatening. You can usually treat mild cases at home.

See your doctor if the hives or angioedema doesn't respond to treatment or if your symptoms continue to appear for more than a couple of days. Seek emergency care if you:

Feel lightheaded
Have difficulty breathing
Feel your throat is swelling

The diseases listed above are rare causes of hives, with the exception of thyroid disease. People with chronic urticaria have a higher incidence of thyroid problems compared to the general population.

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Avatar universal
Thank you very much for taking the time to try to help me out!  BTW I'm in Canada, so our health care system is a bit different here.

I got this response from a doctor on another forum - any opinions?


This detailed chronological account must have taken a lot of time and effort.
Thank you.

I assume your barium swallow was fine and did not show any strictures, and all your workup thus far has been negative.
It sounds like your symptoms might be due to a systemic illness, perhaps an autoimmune disease. I'm not certain whether this has anything to do with the viral infection, but it conceivably it may have been a trigger. The first illness that comes to mind is lupus erythematosus. Another is collagen vascular disease. You may also have malabsorption syndrome.

That being said, another possibility that is frequently overlooked is heavy metal poisoning (mercury, lead, arsenic, etc.). Heavy metals can produce random, seemingly vague symptoms of gastrointestinal symptoms like heartburn, indigestion, bloating, food allergies and unusual rashes. You might be in contact with these and not even know it.

Certain vitamin and nutritional deficiencies can cause or exacerbate the underlying illness, especially in malabsorption syndromes.

So, I recommend you ask your doctor to:
1. get a consultation with a rheumatologist
2. evaluate for heavy metal poisoning
3. check for vitamin deficiencies
4. consider gluten free and lactose free diet; it would be prudent to see a GI specialist if these measures do not make things better
5. consider a consultation with an immunologist if the other steps above are negative for disease.
6. Get tested for HIV if it hasn't been done already
In addition, while your symptoms do not sound infectious, it would be worthwhile to make sure you have not been subjected to toxic mold in your home, place of work, etc.
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Avatar universal
any thoughts anyone?
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Avatar universal
Dear Darb,
I think you are taking a medicine that is doing this to you.  I don't care what it is or how much you need it, you are going to have to get off it.  This includes over-the-counter stuff, prescription meds, supplements, ANY drug whatsoever.  Many times I hear people's symptoms, but they'll leave out some drug they take for whatever.  I cannot emphasize enough how important it is to look closely at a reaction to medications.  Something similar to that is various shampoos and lotions.

If you are NOT taking ANY medicine at all, then go to an allergist and have them do a skin test, where they put all diff kinds of possible allergens on your skin, and if you get bumps and redness (hives), then they can either advise you to get that out of your life or give you allergy drugs for it.  I had a friend who had so many food allergies, they kept a list of stuff taped to the kitchen cabinet, so as not to make a mistake.  Poison is another related possibility, and a doc working in concert with a poison center can draw blood and see what's in there.

If an allergist is positive you are not allergic to anything on earth, then the only two things left are circulatory problems like with the heart, or it's possible there's carbon monoxide in your home from a furnace or gas stove or any heating source.  To find out if your heart is racing or you got high blood pressure, your regular doc can monitor all that stuff for you or refer you to a cardio specialist or pulmonologist.  To find out if it's carbon monoxide, you can buy one of those at the same place you get smoke detectors, and plug it in at home and see if and when it goes off.

But I'd bet my bottom dollar it's a medicine of some kind that's doing this to you.  
GG
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Avatar universal
Hey man thanks for the response.

I'm going to address some of what you said in the response.

re: heart racing - my heart doesn't race, I monitor my heart rate and blood pressure a lot due to my fitness regime.  I have really good low blood pressure, and my heart is really healthy with a low resting heart rate.

re: allergy test - I did do an allergy test, and I was not allergic to anything that they tested.

re: medications - This started happening to me before I started taking any medications.  I do take supplements and protein shakes/bars due to my workout programs, which I was taking before this started happening - so maybe that is contributing some how?

I really don't think it's anything I'm eating regarding my vitamins/minerals/protein supplements though, I went off of everything for a month and I still had the symptoms during the whole time I was off of everything.

re: poison/carbon monoxide - I will make a drs appointment and bring that up with him.
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Avatar universal
Thanks to you, too, Darb, for the detailed feedback.

Darb, I'm interested in your workout situation.  Now, I don't imagine this is the case, BUT if you were taking steroids, perhaps thru something your coach gave you and you were unaware of that being in it, it will do some of this wierd stuff to you.  But setting that aside, I have to think that SOMEthing in all those workout additives might be causing your symptoms, even tho you did stop them for a period of time and saw no change.

Therefore, I can see no harm in quitting ANYthing and ALLthings related to workout supplements again, even including something as simple as Gatorade.  Plain water and eating good foods and rest is all you need to recover from working out.  Now, if you're in the Olympics or in state competition, some say you gotta take all that stuff, but I still disagree.  I mean, some people drink green tea and get the jitters and flip out, and it's just a reaction to the caffeine properties of that herb.

One more item I want to bring up for you, next time you start to feel or experience all these symptoms, immediately check your pulse at your wrist, see how fast your heart is going RIGHT THEN.  It shouldn't be going over that formula of weight versus a couple other items, you probably know how to figure that number.  Also, at the moment you get hives or your symptoms flare up, I think you should carefully consider all environmental or outside influences going on around you that might be causing this, maybe even writing them down and reviewing the lists later for any commonalities.

I hope you've been getting enough rest through all this, and I hope you get some regular professional massages, and I hope you've changed around all your soaps and detergents and lotions, etc.  I feel for you and hope you sort all this out soon.  I'm worried your heart is not liking what's happening to yourself.
GG
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Avatar universal
One more thing, you said this started happening "before I started taking any medications."  Darb, even if you had some symptoms before that, if you're taking any medicines, you've got to talk to the prescribing docs for those and get some feedback on possible side effects.
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Avatar universal
http://www.usgyms.net/creatine.htm

Darb, sorry my thinking is not too organized right now, but at the above link, look at the section entitled, "Side Effects," in that article.  It says you can get hives and all sorts of other oddball reactions from use of creatine that is in some workout supplements. GG
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Avatar universal
Thanks again for trying to help me out, I appreciate it!

re: steroids - I don't use steroids, I mainly just eat a healthy clean diet, exercise 6 days a week & take protein supplements.  My afterworkout recovery drink has some creatine in it as well.

I will try to keep track of my heart rate if I get this again - I expect it to disappear just as strangely as it appeared though.  I've been dealing with it for 6-7 months, I think that's long enough =P

I'm starting to think that it might be some sort of chemical or mold problem in my house though...

My wife used to get crazy symptoms too, and she'd throw up all the time.  Then my cat would even throw up all the time.  They are both not throwing up or having crazy issues anymore, but I am still - so it's possible it could be something in the house.

I just ordered $500 worth of mold and chemical test kits to see once and for all if it's radon/mold/carbon monoxide/etc.

re: massages - I rarely get massages, should I get some?

re: hives - the hives happen all the time, so I don't really ever notice any environmental change, it's usually due to friction - if I scratch somewhere, or if my pants are too tight on my waist, or if I grip a hammer to hard for too long etc...
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1100598 tn?1413127426
Here is another small thing to think about too:

Your very first symptom mentioned was the hives and rash on your scalp.  Some time ago I was bitten by a kissing bug and I had a rash, joint pain and hives.  I was pretty sick for some time.
If you were bitten by an insect it could have transmitted an infection such as west nile, lyme disease or a whole number of diseases that can cause your body to react with an allergic reaction.  Did your blood work show an elevation of histamine or eosinophils?  

If you had your allergy testing done while taking any sort of medication such as Benadryl you would have a false positive.  

I would get a second opinion, it sounds like your doctor is not helping you.  I suggest until they figure out what you are allergic to, you should have an epi-pen.  If you ever go into anaphylactic shock it could save your life!
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Avatar universal
Darb,
Well, then, perhaps you should STOP the workout recovery drink with Creatine in it !!!!!  The side effects include not only hives, but also that tightness in your throat.  PLEZZZZ quit that particular drink, Darb, and see if you feel better!!!  Don't you agree???  You must promise me you will forthwith stop that drink !!!
GG
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Avatar universal
Hmm whisperwolf - that is an interesting concern as well.  I don't remember being bitten by anything, but I was in Hawaii a couple of months before this started, and I could have been bitten by something there maybe.

I do have joint pain but I have always had occasional bouts of joint pain, that's nothing new - so I don't really include that in the list of symptoms, maybe I should.

I don't remember if my bloodwork showed elevated levels of histamine or eosinophils - I have had so many blood tests done in the past 3 months - but I do remember seeing elevated histamine in my blood, but they said that was the hives.

When I had my allergy test done, I made sure not to take any benadryl or reactine or anything.

How do I get an epi-pen?  They told me it wasn't an anaphylactic response and said I didn't need an epi-pen.

gregg - I don't think the recovery drink is the culprit, because there was about 6 weeks where I wasn't taking the recovery drink and the symptoms were still the same as always.

I just got a battery of blood tests done yesterday to test me for lupus, heavy metal poisoning and a bunch of other problems.  They took 12 vials of blood!  I'm sure they'll find out something with all that blood.

I'm intend to figure out out a solution, and I've made up my mind that this bizarre issue will pass.  Thank you for helping me out guys, you're more helpful than the drs over in the paid section - I haven't got 1 response from them yet and I had to pay to post in that section!
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Avatar universal
Darb, will you PLEZ stop the drink with creatine in it and don't ever take it again?  You didn't say you would.  The link to the article I gave you a few days ago about side effects of that stuff matches your symptoms, irregardless of the timeline you recall being off it.  Thanks.  GG
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Avatar universal
have you read the symptoms of Eosinophilic Esophagitis? Because that sounds like what you have, you should get into a doctor in any case and get scopped, just to take a look at everything, get biopsies and get diagnosed. http://www.apfed.org/ee.htm

But I do agree, creatine is probably not the best thing for you right now, at the end of the day if it could be contributing in any way, is it really worth it?
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Avatar universal
Thank you David for telling me about Eosinophilic Esophogitis.

This sounds like it might be my problem.  It says that you develop an allergy to food protein - and over the past 6 months I've probably quadroopled my food protein intake to build muscle.  I have contacted my doctor to get a referral to a gastroenterologist.

Here's the weight loss/fitness journey I've been on in the past 6 months while trying to also deal with this health issue

http://www.facebook.com/album.php?aid=95604&id=500153809&l=a360ed3689

I'm going to stop working out for a month and see what happens when I'm not taking creatine or eating protein shakes and bars.
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Avatar universal
by the way I had a 24 hour flare up yesterday...it started at 3 AM Saturday night and lasted until last night at 3 am.

It wasn't as severe, mainly the uncomfortable gas feeling, the feeling of tight chest and constricted esophagus, and general feeling like a piece of crap lol.  I ate a piece of toast and a waffle the whole day.

Today I tried to get referrals from my doctor to get tested for EE, I tried to get sent to a gastroenterologist to do an endoscopy and talk about EE, and I tried to get them to fax off a request to my allergy doctor (which I have an appointment for on dec 9) to get skin ***** tested for a certain parasite that causes EE like symptoms after you've ingested the parasite from raw fish.

I was supposed to get an endoscopy done in September (from a referral in JUNE!) but when I got there the dr didn't have the equipment for the procedure.

Anyway, my Dr won't refer me to the gastroentologist and he won't send anything to the allergist.  He told me to wait until I get my blood test results back, and to wait for the follow appt with the allergist.

The allergist is just going to say "how are the hives" and do nothing for me unless I get my dr to fax a request to test me for this parasite.

The dr should send me to the gastroentologist because I was already supposed to see him already for the love of all that is holy.

Gotta love the health system in Canada - for the most part it's free, but when you need it for something like this, you are lucky to get anything resolved.

I guess I just have to sit and wait for them to do nothing, what a waste of time, they're so inefficient.
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Avatar universal
Thanks to some law of attraction, I managed to get my gastroscopy done today instead of February 3rd!

A few months back my wife had an appointment to get checked for celiac.  She got pregnant and the family doc suggested she do the test next year not to interfere with the pregnancy.  We forgot to cancel the appointment a few months ago.

Anyway I finally got a referral from my family doctor regarding sending me to a GI specialist, and they booked me in for Feb 3rd - through serendipity, that same day the hospital called to remind us that my wife's appointment was coming up in a couple of days.

It turned out that it was the same dr that I was booked to get my procedure done, so they let me switch up and get in a couple of months early!

Anyway today I went and they did the gastroscopy on me.  I asked the dr about Eosinophilic Esophogitis, and he said it was rare, but he took some biopsies.

I was knocked unconscious so I don't remember the procedure, but when I woke up they told me that they found a Hiatus or Hiatal Hernia.

I'll be meeting with my family doctor in a couple of weeks to discuss that and the results of the biopsy re: eosinophilic esophogitus
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Avatar universal
also I saw my allergy doctor yesterday, and he said the h pylori test came back negative, and that he couldn't help me any longer because he doesn't know what is wrong with me and expects the hives will clear up soon, disappearing as strangely as they appeared - I thin I will take his advice and intend these hives back to whence they came.
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