Trouble with Ileocecal Valve

[Mynessa]

I have had trouble with diarrhea my whole life.  Now at 50 I'm having trouble with constipation.  The last colonoscopy they did - they said my colon walls bled when touched and the ileocecal valve was bleeding and inflamed.  No suggestions from the Dr.  as to what to do about it.  

When looking it up on the internet - I read that it is common with some and they usually suffer with trouble with digesting and processing sugars and usually have many food allergies as well as back pain and body aches...which has been true since I've been 27.  I'm tired of eating just cooked veges and chicken and fish.  PLEASE HELP ME or tell me where to go to get help!!!

Right before going into a flare-up I feel like a hot liquid pouring in my lower back and then intense back pain follows sometimes for months - where I'm incapacitated - it's so painful!

Thanks!!

[Mynessa]

I will get my reports next week.  What am I looking for when I read them.  From what I remember  they said that it showed signs that it was irritated - possibly from my flare-up but that was it.  

I don't even know who to go to anymore.  Is there another 'type' of doctor that would know more about the body as a WHOLE?  This gastro doctor  seems to know his small area...but not how the rest of the body is affected or visa-versa.  Our body is a WHOLE and if one part is hurting - it affects other parts!  It's frustrating!

Thanks for your advice!  I will go and get the report!

[CalGal]

Look, a lot of docs unfortunately say the biopsies are negative when that may not be exactly true. There could be small changes going on that they just don't consider significant at that point, which is a shame. Years ago, when docs used to see small proliferations of collagen buildup, or aggreates of lymphocytes in biopsies, they'd dismiss it. Ten years ago, they finally figured out it was a form of microscopic colitis - that's not 'nothing.'  Just to check, get copies of all the records and read them.

And looking at things logically, your colon isn't bleeding for no reason. Something is going on and if your doc isn't smart enough to follow up on it, you've got to. This is not normal.

[Mynessa]

Thanks for the comment!  I'll take any suggestions!!

The Dr. did do biopsys and said they all came back 'clear' - meaning no signs of Colitis or Crohns disease or cancer.  His advice was that if I struggle with constipation - to take laxatives regularly - which was not acceptable to me.

I went to a Naturopath Dr. and she did a 'poop test' and said it came back saying that I am highly 'sensitive' to wheat products, so therefore put me on cooked veges and some chicken and fish.  That was in March and my symptoms are still intense....PLUS I'm starving!  :-)  I'm not sure where to go next.

When I went to an allergist - they tested me for all foods and it came back FINE!

AGH!!

[CalGal]

Your doc should have done biopsies when he/she found that the wall of your colon and terminal ileum were bleeding. You need to find out what was causing that bleeding. Someone is dropping the ball somewhere on finding out what's going on in your intestinal tract. In many cases, bleeding or lesions of the terminal end of the ileum can indicate the presence of inflammatory bowel problems. Go back to the doc and ask. Also, get a copy of the biopsy report and the doc's report from the colonoscopy and read them. There may be a clue in those to give you an answer. And if you have trouble figuring out what it says, ask. Someone will be able to give you a hand with interpretation.