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pediatric gastro problems

by jcannady, Oct 08, 2009 05:39PM
My son has always had bowel problems. He's now 29 months was diagnosed with MSPI at a few weeks. We've done a blood test to check food allergies and other diseases with none being diagnosed from it. We've eliminated different foods, tried miralx, natural remedies and have no diagnosis for whats wron with him. His stool is like playdoh, smells aweful, and he has a very hard time passing stool. Nothing has helped. His ped. gastro APRN wants to do a biopsy of his intestines but I'm aprehensive since they don't have any leads so far and nothings working. Any advise or help would be great. He has developed normally. Is in the 10th percentile for weight and height and that went down from his 18 month visit where he was in the 50th. If you need any other info just ask
Member Comments (3)

by CalGal, Oct 08, 2009 08:58PM
A thought - has he been tested for celiac disease - checking his genes? You can do it yourself instead of going to the doc and it just might give you an answer. Blood tests looking for antibodies don't always give 'true' negatives for this disease. You could check with enterolab.com about the allele test. I think it runs about $150.00. If he turns up positive, despite the results of what can be seen in a blood test, changing his diet could change things around.

Celiac disease can result in 'ploppy' stools that smell awful.

by jcannady, Oct 09, 2009 02:51PM
They checked for celiacs with the bloodtest but they didn't say anything about false negetives for it so thanks for the info.

by CalGal, Oct 09, 2009 10:17PM
Make sure they checked all of the following while using the blood test: total IgA, IgA and IgG gliadin, transglutaminase and endomysial titers. Even with all of those, there's a high possibility of getting a negative result that is incorrect. Please check farther, just to be sure.
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