SSHL recovery timeframe

at what point does a person with diagnosed SSHL, who has already been treated with oral steroids and tympanic injections of steroids, give up hope of experiencing any further hearing improvement?

[fldreds]

Hi Brenda,
I would say never! I am dealing with the same question. I had SSHL in November. Left ear completely deaf. I was told there was a minimal chance of any recovery. I saw numerous ENT's. The recovery timeframe I heard differed with each doctor & seemed to be based on their personal experience with the few SSHL patients they had cared for. Most people seem to think there is a primary recovery time & a longer term recover time. My ENT's answers to your question have varied from "All recovery will take place in the first month" to "Primary recovery period of 6 months followed by slower recovery up to 18 months". I recovered about 30% of my pure tone hearing at around 6 weeks (moreso in the lower frequencies), then my word discrimination shot up at around 10 weeks. I continue to experience improvement in my daily functioning now at 4 months, although my hearing tests haven't yet shown another "jump" & seem to be fluctuating somewhat. I am confident that I will continue to improve & I really can sense very subtle improvements ocurring continuously. If you would like to discuss this more please contact me! It would be nice to hear from someone who knows what I'm going through. This is tough!

[brendajj9]

     thank you for your feedback.  i haven't asked this question of my ent because he has already referred me to his affiliated business which sells expensive hearing aids.  in my mind, there is a conflict of interests in terms of giving me hope for improvement.  
     i, too, lost all my hearing in my left ear back in december and recovered enough over the course of treatment to be considered for a hearing aid.  i don't want to spend money on a hearing aid (like most insurance companies, mine doesn't cover hearing aids) if there is a chance i will gain all or most of my hearing back.  the information you provided was very helpful and encouraging.  like you, i sense that i've improved somewhat in recent weeks, but i'm told we are the worst judges of our own hearing (my ent's mantra).

[fldreds]

I'm glad to hear you have also regained some hearing! How much have you improved?

My low frequencies are between 10-50 dB, but my higher frequencies (hearing test 4 weeks ago) were 60s-80s. Word discrimination is 60-70%. I am still noticing some subtle improvements; throughout the day I will notice noises like a bird chirping and realize I couldn't hear them a few weeks ago.

I also decided to do a course of hyperbaric oxygen therapy, which is controversial. I did 20 sessions at 2 atm for 60min each. It was expensive, but I figured it was worth a try. Not sure if the improvements I'm noticing are a result of the hyperbarics or simply the natural healing process.

[irishdave79]

Hi there,

I have just come across this forum and it has given me a little boost of hope.

Only 2 weeks ago i lost all hearing in my left ear with SSHL. I was misdiagnosed and it was about 8 days before I started my course of prednisolone. I have 3 days left on my medication but still no hearing in my ear. I currently have no word recognition and only hear buzzing with loud sounds in the affected ear.

My hearing test last week wasn't very encouraging, and i have been told there is only a small change of my hearing improving in the bad ear. I am so confused right now and don't know whether to try to except that i will never hear again in that ear, or to hold on and hope it might improve over the coming months !

I have read so many different opinions on recovery time and when to resign myself to the fact that its permanent. Its all very depressing and I am really struggling right now.

Just reading that you have had some hearing return after 6 weeks gives me hope that I still am in with a chance of getting a little better. Can you tell me what condition your hearing was at week 2 ?

I hope you continue to get better hearing returns for you...

Dave

[Nancy T]

Sorry to hear your story, Dave... that darn misdiagnosis. I was told "wax" and "Eustachian tube dysfunction" and not diagnosed for a month! Too late.

I had no recovery of hearing whatsoever but mine was caused by some traumatic damage, apparently, when I sneezed, so there may have been no hope for me from the beginning.

I would not get your hopes up, but you never know. You can adapt to one-sided hearing loss if it doesn't return, and there are some good solutions for it. I have a Baha (bone-anchored hearing aid) for SSD (single-sided deafness) and it works great, though it has minor drawbacks.

[irishdave79]

Hi Nancy,

It seems so many doctors just treat this as a cold or something insignificant! I cant believe there isn't more awareness of SSHL!

I have been looking into the BAHA as it seems like a great option.Have you had the device for long? I do think the ear has got better over the past week, even some speech recognition when its loud enough, so this may mean i will be eligible for a standard hearing aid to amplify sounds instead of the BAHA. I wont have another hearing test for about 8 weeks, so until then I am just hoping each week brings even a little more hearing!

Thanks for your encouragement Nancy, I have really found this week (weeks 4) that i am at last starting to get my life back and the tinnitus is becoming less obvious throughout the day.

Dave

[Nancy T]

Hi Dave. Glad to hear you think you might be recovering some hearing. I hope your next hearing test will confirm some recovery! You will get used to the tinnitus--I was so bummed when I realized mine would be permanent, thinking, "Oh, I'll never get to enjoy the sound of complete silence again..." but that was a laugh, as now I don't even notice the tinnitus unless I think about it! It is loud enough that I can just perceive it over the humming of my computer, but still, it just isn't "there" unless I think about it. Amazing how the brain adapts.

Yes, GPs have NO idea about SHL... I was surprised when I started reading about it and found out it's supposed to be considered a medical emergency. But doctors aren't told that in their training. Most info about hearing loss--even the huge article for doctors on the American Academy of Family Physicians Web site--has NO mention of SHL. You'd think that GPs would have a little book to carry around with sections on different specialties (ENT, neurology, etc.) tagged "this is an emergency," but no. They are SOOOO concerned about possibly permanent deficits from, say, a stroke, so there's this huge stroke-awareness campaign, but possibly permanent hearing deficits are like, "so what?" I saw two different GPs, 5 days and 3 weeks after my hearing loss, and neither of them even bothered to do the tuning-fork test. The first one cleaned the wax out of my ears and ASSUMED the problem was solved--didn't even ask "can you hear better?" Admittedly I was at that time most worried about the dizziness that came with the sneezes, as I myself assumed the hearing loss was just some canal or other "plugged up"--I knew nothing about ears--but the doctors SHOULD have done some initial testing, that was their job!

I've had the Baha for 3 years now. I have an Intenso, but I think there are newer and better models. The Intenso works great for me. Like all hearing aids, I guess, it does cause feedback if I turn it up too high or touch it, but voices come through so clearly it's AMAZING! It's like hearing voices over the radio, but PERFECTLY CLEARLY. It is SO nice not to have to be constantly turning my head, switching sides with people, asking them to repeat, missing things, etc. I don't have to wear it all the time, as I can hear fine in small rooms with a handful of people and no background noise, but at work and in most social situations the Baha is a great help to me.

Good luck and keep us posted! :)

[kks1981]

Hi......just curious what type of treatment you received?  I flew home with a cold and sinus congestion and 14 days later the tinnitus started.   I didn't realize I had suffered low frequency hearing loss until the tinnitus started (which was two weeks after I realized my hearing was off) and the steroids did not work.  I had doctors tell me they had seen this take months to clear up but I am not at 11 weeks and nothing has gotten better....hearing or tinnitus.  To make matters worse I have been deaf in my other ear since the age of 7 so I am really up a creek now......1/2 of one ear for hearing.  I'm scared, sad, angry, anxious and afraid of what the future holds.  Yet all of these ENTs just look at you and say, "You'll have to get used to it."  That is not an acceptable answer for me.  There have got to be more success stories out there.