A related discussion,
LOW EF from Myocarditis was started.
My 15 yr old son has a bicuspid AV with mod/severe regurg. and dilated asc. aorta. I'm educating myself as much as possible. The dr's response said that the CCF is the only place that does a bicuspid repair well. Can anyone explain this in more detail? Do they do something specific differently from other places? A surgeon we consulted spoke about pulling up a prolapsing cusp and suturing it into place. The CCF is on our short list of potential places for the surgery--it has definately moved up after this post. Any details much appreciated.
Bets of luck to you, bwest1. Your answer was reassuring.
CCF is probably the only place that does a bicuspid repair well. Again, unfortunately, that repair only buys you some time before valve replacement is necessary. That's good, though. Since you are young, you don't have to deal with having a prosthetic valve that would require anticoagulation, etc. I think it is definitely worth it. However, close follow up is definitely necessary. It is very unusual, however, that with a normal EF prior to the operation, your EF is abnormal at this point. It should get better with time.
It was a bicuspid repair with and a aortoplasty at CCF
You really should be seen by an experience cardiologist. There are a few very important questions that must be answered. First, was there any coronary artery disease on the catheterization prior to the operation and, second, are there any wall motion abnormalities on the current echo. If the LV dysfunction is global than most likely the severe aortic regurgitation went on for too long and affected your ventricle. If there are wall motion abnormalities, then coronary artery disease or surgical complications must be rulled out with a catheterization. The good news is that, unlike with mitral valve regurgitiation, aortic regurgitation associated cardiomyopathy is more likely to improve over time. Your heart will probably never have an EF of 65% but that does not matter all that much. What concerns me more is the fact that you are having a lot of symptoms from this. It is therefore extremely important that you stay on the right medications, the lisinopril being most important in this particular situation. I am not exactly sure what exactly happened in terms of your operation. Did they repair your bicuspid aortic valve and performed an aortoplasty (aorta resection)? David procedure is not a really good option for bicuspid valves. It turns out that bicuspid valve repair is not very durable. It prevents you from having a valve replacement but the durability of that repair is not that great and future rate of reoperation is pretty high. The moderate regurgitation shouldn't be too much of a concern at this point. It may improve with EF improvement. For now make sure you are taking the right meds and that you follow up with your cardiologist. Symptomatic improvement is what matters most, so that's what you should look forward to, not the improvement in EF. Don't get depressed over this. I think you will do well.