Hi. I am a 40 year old woman, 5' 5", 108 lbs. I have many medical problems and have difficulty with fatigue and weakness. I have a disease called Klippel Trenaunay Syndrome. I have extensive AVM's in my left knee, thigh, and hip. I am also be tested for AVM's in my neck in 2 weeks. I have a Coarctation of the Aorta which on my last MRA (2006) was narrowed to 1 cm at the descending aorta. When I was 4 (1974) I had a Cardiac Catheterization done, at which time they felt there was some sort of abnormality of the media of the aorta. As of 2006," the aortic root measured 4.6 cm. The aortic arch measures up to 2.6 cm. The pre-stenotic descending aorta is dilated measuring 3.5 cm. The aortic caliber normalizes in the distal descending thoracic aorta measuring 1.8 cm. The proximal thoracic decending orata is tortuous above the region of stenosis."
I also have a bicuspid valve. I suffer from migraines and have had a previous stroke. Due to the stroke, I underwent a TCD bubble study which confirms shunting consistent with the presence of a PFO. I am currently waiting for an Echocardiogram to confirm or rule out a PFO. I did have a PFO at ago 4 ( I only found this out when I pulled the file 2 weeks ago).
What would your recommendations be for someone with my history be? Should the Coarctation and aortic enlargement/dilatations be fixed. Or is the fact that my vein walls suck not a concern? I get black eyes just from pucking. And if it is a PFO would you recommend it being fixed? I am on metoprolol and asprin. Thanks.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.