Heart Disease Community
Coarctation of Aorta, Bicuspid Valve and PFO
About This Community:

Join others with Heart Disease and get guidance and support. Ask a question, join a conversation, share experiences.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Coarctation of Aorta, Bicuspid Valve and PFO

Hi.  I am a 40 year old woman, 5' 5", 108 lbs.  I have many medical problems and have difficulty with fatigue and weakness. I have a disease called Klippel Trenaunay Syndrome.  I have extensive AVM's in my left knee, thigh, and hip.   I am also be tested for AVM's in my neck in 2 weeks.  I have a Coarctation of the Aorta which on my last MRA (2006) was narrowed to 1 cm  at the descending aorta.  When I was 4 (1974) I had a Cardiac Catheterization done, at which time they felt there was some sort of abnormality of the media of the aorta.  As of 2006," the aortic root measured 4.6 cm.  The aortic arch measures up to 2.6 cm.  The pre-stenotic descending aorta is dilated measuring 3.5 cm.  The aortic caliber normalizes in the distal descending thoracic aorta measuring 1.8 cm.  The proximal thoracic decending orata is tortuous above the region of stenosis."
I also have a bicuspid valve.  I suffer from migraines and have had a previous stroke.  Due to the stroke, I underwent a TCD bubble study which confirms shunting consistent with the presence of a PFO.  I am currently waiting for an Echocardiogram to confirm or rule out a PFO.  I did have a PFO at ago 4 ( I only found this out when I pulled the file 2 weeks ago).
What would your recommendations be for someone with my history be?  Should the Coarctation and aortic enlargement/dilatations be fixed.  Or is the fact that my vein walls suck not a concern?  I get black eyes just from pucking.  And if it is a PFO would you recommend it being fixed?  I am on metoprolol and asprin.  Thanks.

Tami

Related Discussions
Avatar n tn
Oops.  Got posted in wrong area.  Brain fart.  Sorry.
Blank
Post a Comment
To
Top Heart Disease Answerers
11548417 tn?1440481484
Blank
Ger57
Netherlands
159619 tn?1318997813
Blank
erijon
Salt Lake City, UT
Avatar f tn
Blank
achillea
CA
Avatar m tn
Blank
Occupant
IL
Avatar m tn
Blank
tacolino
Ireland
144586 tn?1284669764
Blank
caregiver222
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Recent Activity
4522800 tn?1459192030
Blank
VICourageous commented on VICourageous's status
26 mins ago
1236893 tn?1408490528
Blank
Truth in Olive Oil
23 hrs ago by gymdandee
4522800 tn?1459192030
Blank
VICourageous commented on VICourageous's status
Jun 28
Heart Disease Community Resources
RSS Expert Activity
233488 tn?1310696703
Blank
Marathon Running Done Over Many Yea...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
233488 tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
05/15 by John C Hagan III, MD, FACS, FAAOBlank
748543 tn?1463449675
Blank
TMJ/TMJ The Connection Between Teet...
01/15 by Hamidreza Nassery , DMD, FICOI, FAGD, FICCMOBlank
Top Heart Disease Answerers
11548417 tn?1440481484
Blank
Ger57
Netherlands
159619 tn?1318997813
Blank
erijon
Salt Lake City, UT
Avatar f tn
Blank
achillea
CA
Avatar m tn
Blank
Occupant
IL
Avatar m tn
Blank
tacolino
Ireland
144586 tn?1284669764
Blank
caregiver222