After years of trying to find out what caused my brief but scary and lifestyle-if-not-life-threatening
arrhythmiasArrhythmias,an event recorder revealed
atrialAtrial fibrillation/flutter
Atrial myxoma
Left atrial myxoma
Right atrial myxoma tach.I am amazed that a 2
leadLead poisoning recorder could reveal so much info but my doc says I have"very frequent PACS,
atrialAtrial fibrillation/flutter
Atrial myxoma
Left atrial myxoma
Right atrial myxoma runs, non-sustained for along
atrialAtrial fibrillation/flutter
Atrial myxoma
Left atrial myxoma
Right atrial myxoma tach, and inappropriate sinus tach, rare PVCs." In consult with an EP doc,he says the focus of the
atrialAtrial fibrillation/flutter
Atrial myxoma
Left atrial myxoma
Right atrial myxoma tach appears to NOT be reentry but ectopic and coming from the pulmonary vein and is, they believe , amenable to an ablation.
I'm very excited about having the EP study/ablation and they think there is a "good chance" of a cure for my problem which would eliminate these horrible feelings ( the a-tach and atrial runs make me feel momentarily scared and sometimes weak).
Questions: 1.isn't a pulmonary vein focus a more difficult location for a successful ablation?
2.In general,what's the recovery time like for an ablation?
3. I live alone and just wonder what i have to avoid or watch out for afterwards.. how soon i can go back to work, etc. I know i need to talk to my docs about this and will when i see them but for now, any info in general would be greatly appreciated.
thanks so much!
Lynn
Outside of occassional PACs (due to several foci left alone), for the past three years since the ablation I have had no recurrence of the AFib. This is despite being extremely physically active, which used to be a sure way to trigger the AFib.
Do your research and ask a lot of questions. I tend to agree with you, that atrial tachycardia stemming from a PV focus, should be easy to ablate.
-Arthur
Valerie
I am a 35 year old female with pvc's, psvt, afib and aflutter, and heart rates recorded at 256bpm. I blacked out a couple of times,but do not know the heart rate, because I was not wearing a monitor during.
I had an ablation three weeks ago tomorrow. It was a breeze. I do not remember the complication%,because I think they vary depending on the type and the number of arrythmias you have. I will however tell you what to expect.
First shave your bikinni area very good on both sides, this will save you from having the nurse do it.
What to expect during: Very good drugs. My procedure lasted about 5 hours for my family, doctors, and nurses. For me it lasted about 5 minutes. I was feeling no pain. I did however wake up breifly, during the procedure. I can remember my heart racing like no tomorrow, and hearing the doctor, and nurses talking. Everything was black, but I was awake. In my head I was saying over and over again I am awake, I can feel my heart racing. I could feel a sensation in my chest, but not pain. Finally I got my eyes open, saw light, and heard a nurse say I see eyes. At the time I thought something was wrong, but found out later that I woke up when the doctor did a burn. At no time did I feel pain. Just the racing heart startled me, and confused me for a few seconds, and then the next thing I remember was seein my family.
I will finish on another post in a moment. My laptop battery is about to go.
They went in through my kneck, and my groin on both sides (I had one little whole on my right side, and two little wholes on my left side) I am not sure if there are always this many points of enteries. I had been under the impression there was usually only one point of entry. So this may have something needed in my case, or perhaps just how my doc does it.
Let them give you a cath for your bladder, because it can run longer than they expect, as in my case. The nurse told me it was optional, but that she would if it were her. And I am glad I did.
What to expect afterwards:
I was in the hospital for two days, some people go home after one. My whole body was sore from laying for so long. The sooner you make yourself get up and walk the better you will feel.
The two days after I got home, were sort of foggy, and I slept alot, and seemed like my short term memory was a little hazzy. Maybe from the drugs, or just the ordeal.
You should not drive, or lift anything heavy for a few days. I did not drive for about 7 days, because it took that long for my kneck to loosen enough to turn my head to watch for traffic.
My kneck wound hurt the most, but looked the best. You could not even see the scar after a week. You can see the punctures in my groin areas If you look really hard. No stitches are needed.
I felt some bumps and mild palpitaions in my heart, along with some strange chest pain for five days after my surgery. My heart palpitaions were mild but alarming, I thought it was coming back. However, I found out it is normal to have some pvc's, and twinges after any surgery. The chest pain, my doctor explained was my heart hurting from the burns they did. The small punctures you see on your body do not tell the whole story of what is done inside. Now three weeks later I am feeling better than I have in a long time, and have not had any palpitations that caused any major symptoms like I did before. I can already breath better.
I hope this helps. And if you have ever had a baby, this is a walk in the park compared to that. If you have any specific questions let me know.
Good Luck
Valerie
Also, post after you have it and let me know how it went.
Good Luck
Anne
I've heard that some people GO HOME THE SAME DAY (?). and others stay in the hospital one or two days.
I will be alone afterwards so that sort of scares me..
As far as the procedure goes, I was in a "twilight" state and don't remember much of anything (versed, fentynyl, propofol). An anesthesiologist with me during the entire procedure. I felt the IV, but that was no surprise..haha..After dealing with THOUSANDS of pvc's per day, it feels wonderful to feel only an occassional flutter. The doctors say that it generally takes 2-6 weeks to know the success of the procedure, but so far, so good! I still get pvcs, but I knew that because I have other foci. They are not NEARLY as frequent. Now, I can take a beta blocker IF I get uncomfortable, but no more mandatory medicine...YEAH!!!
Check out www.heartceneronline.com for details from people who have experienced the pulmonary vein ablation. My ablation was not a PV ablation, but it went something like this:
1) Arrive at hospital around 7:15 a.m.
2) Changed into gown, got IV started
3) 8:15 Got the "first" dose of versed to relax...It worked!
4) 8:20(?) Wheeled into EP lab (COLD!)and someone put big sticky patches(like EKG, but bigger)on me. I was prepped around this time, but don't remember any of it, including the bladder cath.
6) Sometime during the procedure, I vaguely remember doing some simple arm exercises (the doctor had explained ahead of time that she might ask me to do that (sometimes stimulates arrythmia)
7) First recollection of waking around 3:15 (I think this is when they took out the bladder cath, but no pain
8) Wheeled to my room, and pretty much really awake around 4:00
10) Rested with a 10# sandbag on my cath sites (3 in groin) to avoid need for stitches.
11) Out of bed (sandbag off) at 10:00 p.m.
12) Home at 1:00 p.m. next day.......Rested on Sat/Sun...back to work Monday.....
Hope this helps! I would do it again if it were necessary....I asked a ton of questions and was particularly interested in the anesthesia since as I said....bawk, bawk, bawk.....Good luck!
As far as the procedure goes, I was in a "twilight" state and don't remember much of anything (versed, fentynyl, propofol). An anesthesiologist with me during the entire procedure. I felt the IV, but that was no surprise..haha..After dealing with THOUSANDS of pvc's per day, it feels wonderful to feel only an occassional flutter. I guess it takes 2-6 wks. to know the success of the procedure, but so far, so good! I still get pvcs, but I knew that because I have other foci. They are not NEARLY as frequent.
Check out www.heartceneronline.com for info from people who have experienced the pulmonary vein ablation. Mine was not a PV ablation, but it went something like this:
1) 7:15 a.m. Arrive at hospital (Friday)
2) Changed into gown; IV started
3) 8:15 "First" dose of versed to relax...It worked!
4) 8:20(?) Off to the EP lab (COLD!)where someone put big sticky patches(like EKG, but bigger)on me. I was prepped, but don't remember any of it, including the bladder cath.
5) Sometime during the procedure, I vaguely remember doing some simple arm exercises (the doctor had explained ahead of time that she might ask me to do that to stimulate arrythmia)
7) 3:15 p.m. First recollection of waking (I think this is when they took out the bladder cath, but no pain)
8) 4:00 p.m. Wheeled to my room; pretty much awake now
10) Rested with a 10# sandbag on my cath sites (3 in groin) to avoid need for stitches.
11)10:00 p.m. Out of bed (sandbag off)
12)1:00 p.m. Left for home...Took it easy for rest of the weekend; back to work Monday
Hope this helps! I asked a lot of questions and especially about the anesthesia since I was pretty scared. Good luck!
My sister was a test study about 10 years ago for RF ablation at Stanford Hospital. She had WPW, SVT and now has Afib. The wpw caused a life threatening rate and rhythm for her. Over 300 BPM and irregular. They had to electro convert her. They successfully ablated her the first time for those things except the afib. She went in and they gave her what she said were the best sedatives. She remembers waking briefly to feel her heart racing then off to sleep she went. She woke up in recovery and ended up staying the night because she was very dizzy from the medication. She had to come back 90 days later, because she was a test study so they could go back in and look again. Both times they went thru her fermoral artery. It was successful. She did have chest pain with the ablation, but they said it was not from the procedure, I guess they didn't realize. Afterwards, she was fine. The last time she went in was to try and correct the afib, but they could not reach the area for a clear ablation, so it didn't work. That time they went through a vein, not an artery. They also never kept her overnight except the first time for dizziness.
Here are my questions. Does anyone know?
Are they routinely done through a vein now and not an artery? My cardiologist told me they now go up through a vein? Is this the case for most or is this what you are talking about Lynn? I am just confused about pulmonary vein ablation.
Do they do the EP studies at the same time as ablation, or do they have you come back to do it again. Heartcenteronline said that they do two procedures. I don't want to have that done twice, I was hoping ablation would happen at the same time. Heartcentral also said they use the femoral artery still.
How long does it usually take? HCO said 6 hours is standard, but that seems like a long time for everyone. I understand if there are a lot of things going on, it can take time, but my sisters did not take that long, it was a few hours.
Thanks so much!
Valerie
Just clarify, the chest pain that I felt was for several days after my ablation. I felt no pain while I was under the drugs, or during the procedure. It was not a major or crushing pain. Just a dull ache that did not move. Almost like a minor scrap, that only hurts enough to let you know its there. My doctor said not everyone feels chest pain afterwards, but some do. He also said I woke up when he burned me, but I only remember my heart racing not pain.
They scheduled my EP study and my ablation at the same time. My doctor told me ahead of time that he would induce my arrythmias and ablate them while he was in there at the same time. He said he would stop the procedure if they were coming from an area to risky to ablate. I had worn a monitor for two months so they had a pretty good idea of my problem. I think I have heard of people having the study and the ablation done at separate time. I do not know if they had not shown anything on a holter moniter, and they did not schedule an ablation because they were not sure if their problems could be fixed by the procedure. Or if when they got in there it was to risky. Maybe different doctors do it different, if I were you I would call the nures and see what you are schedule for.
Also, I was told my procedure would take anywhere from 45 min. to 2hrs, not including the prep time. Mine took longer, however, I think they really do not know until they get in there.
Through an artery or vein, I do not know.
Please try not to worry about the procedure. For you it will be over in a flash.
When are you having it?
Anne
Thanks so much!
Valerie
Lynn
Valerie
Good luck again, and it will be over before you know it. You will be amazed at how much more energy you will have, and how much easier it is to breathe.
Anne
what's so bad about afterwards? I really want to grasp what this may be like... do you just feel sore or groggy or does your heart act up a lot or what?
thanks!
SB
If there are foci remaining that were not isolated (or burned), then it's also likely that you will experience an increased production of arrhythmias for days/weeks due to the trauma of the procedure...although the trauma is slight, the nervous system surounding the area treated will be turned up for a while and this results in increased PACs/PVCs if there are other foci about. In my case, the increased production lasted for months (I had and still do have some unablated foci).
I spent a few days straight (3-4) at home before going back to work...mainly because I wanted the groin catheter entry points to heal thoroughly.
I'm sure that your procedure will go smoothly. Enjoy the adventure and the new world awaiting you. -Arthur
Thanks again for taking the time to write and offer encouragement.
L
Like I said, it will not be horrible afterwards, I just wish you had someone with you. I'm sorry.
Let us know how you do.
Anne
thanks so much!
Lynn
Once at home that next day, I just took it easy getting around...and in a couple of more days got back to work. I play soccer, so I was anxious to get back on the field...that took a few weeks more.
Take care! (and relax) -Arthur
I just wanted to wish you the very best for your procedure Monday! I am excited for you!! Just imagine finally feeling better! Yay! That is something to celebrate!!
Best wishes and please post again and tell us how it went!
Valerie
I had no pain except the pain of getting the iv in... everything was really easy. I wasn't sick afterwards .. slightly tired. that's all ! was home by the afternoon.. just want to believe I'm "fixed".. almost scared to but SOOOO glad I did this. and can't believe I was so worried!
Lynn
I am very happy things worked out for you.
-Arthur
Congratulations!
Valerie
Anne
I must say that I woke up this morning with a whopping headache and I've had some irregular heart "flip flops" all day which has depressed me a little. I talked to the EP doc this evening. He said it is common for PVCs and PACS to be worse "transiently" to use his word, after an ablation. he also said i might always have some palpitations but that my fast heart beats should be gone.He said when they gave me just a little adrenaline during the EP study, my heart rate went IMMEDIATELY up to about 210. and they zapped the right spot and looked and looked for 30 minutes for other problem areas but found none. I am trying not to be too worried about the palpitations . I am trying to be hopeful this will all be better.
But as far as the EP study/ablation itself -- I am a wuss and it was a piece of cake. No pain, nothing.. very easy.. the hardest part was getting soooo upset and nervous about it.. it really was easier than having a root canal !
I hope your head feels better. I felt the flip flopping as well. Mine lasted for about two weeks, gradually getting fewer as the days past. Don't let that worry you. Get well soon.
Anne
Thanks everyone!!!
Valerie
Well, it has been 5 days since the EP study/Ablation. I am still having some skipped heartbeats but very few and far between -- however, when I do have them, to be honest, it still scares me. I have NOT had the bursts of what felt like fast beats though. HOORAY!
I am very, very tired but I also have had little sleep this week so I can't blame it all on the ablation -- my dog was up in the early a.m. hours barking, etc. Also, I worked yesterday and put in about 11 hours trying to make up for the days I took off so I would probably be a bit tired anyway.
I have had no oozing or bleeding or discomfort at all from the site where they put in the catheter in my groin. Not one problem. I took a lot of vitamin C the day before the procedure and after returning home from it and I didn't even bruise at all, either.
Again, there was no pain AT ALL from the procedure with the exception of the stick when they put the IV line in my arm. I've had no after effects like fever or pain or anything else.
Please let us know how your EP study/ablation goes. Honestly, the folks that do this all the time treat it as such a routine little procedure. I know it's not -- to those of us going through it! But it is far, far from an " operation". So good luck and don't worry about it!!!
Lynn
I was reading over your comments. I am also scheduled for an EP study/abbalation and am very scared. I am more frightned because I can not handle pain medication. I am allergic to most opiods.
Do you guys think it is safe to do this with just the versed?
I have not discussed this with my doctor yet. Anyone here
have the proceedure with just sedation that can tell me how it
went ? I would appreciate it SOO much. Thanks
Majestic
Good luck!
Lynn
This is SO helpful!! I have been vacillating about having any procedure done for my AF. I am scared that I will be the ONE who has the horrible complications that my EP doc was sure to let me know about ("we had a patient have a fatal stroke on the table" type of thing).
I closed my eyes, took a deep breath and scheduled for Oct 3rd, but couldn't have it then due to the fact that the office didn't tell me I had to be on Coumadin for a month before the procedure!
I have not heard any mention of meds from you kind folks. That is the reason I don't want to have any procedure (tho I am DYING to have this fixed) cuz my EP doc says I have to be on heart meds and blood thinners forever after.
I am ONLY 55, active and healthy otherwise and always have horrible side effects from meds. I've tried several of theirs to keep my AF under control, but just felt like I was doing to die!
I have episodes now about every other day or two that last from 8 to 18 hours. After several hours I pass out. Not good.
Question I'd like answered:
Do you all have to be on meds/blood thinners before and after the ablation?
Thanx,
Cathy
I am scheduled to meet with my EP doctor for a consult and to schedule my ep study/ablation on Friday. However, my sister has done this procedure 3 times, once was for A fib too. She never had to take thinners like coumadin before the procedure, or after. Maybe you should post your question on the board
for the doctors to answer. I am sure there are special cases for this. In my personal opinion, I would most likely opt to have it done and be on medications in your case, since that sounds like a much more controlled situation then letting it go and passing out. I have supraventricular tach and it will make me pass out, so I do understand that feeling!
Take care and let us know how it goes!
Valerie