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4186651 tn?1357830957

FibroMuscular Dysplasia?

I just found out I have FMD by reading through my medical records because of changing my PCP. Who should I go to for this? Should I be worried? Nobody has done anything for me at All!!! I also have Chiari Malformation 1 and an Arachnoid Cyst amongst many other health issues. I'm very scared!!! I'm 47 yrs old.
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4186651 tn?1357830957
Thank You for your reply. Your info is a good place to start. I'm not being closely followed at all unfortunately! Could this, by chance, be a form of Vascular Ehlors-Danlos Syndrome?
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Avatar universal
MEDICAL PROFESSIONAL
Hey wingnutti,

It is hard to give you a definitive plan without reviewing all clinical details in person, but I can give you some helpful information.
FMD or fibromuscular dysplasia affects young women and is an arterial disorder. It can present as hypertension, strokes/ mini strokes or be asymptomatic.
The ideal group of doctors to follow this would be vascular medicine specialists. We have a great group of vascular specialists in Cleveland Clinic and you are welcome to seek an opinion here. Most patients if closely followed would do fine.

Hope that helps

CCFHeartMD19
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