Dear J,
It sounds like you are going through a difficult time and it is normal to fee confused. I don't know exactly what your doctors found on the echo but you should ask them to explain it to you so you understand. It is important that you understand all that is happening and your doctors have an obligation to ensure this.
what lung disease do you have? how were you diagnosed with this?
I WAS DIAGNOSED WITH DIP (FORM OF IPF) FROM AN OPEN CHEST LUNG BIOPSY.BUT MY DOCTOR DOES NOT FEEL LIKE IT IS FROM THAT.
How did you get this? How old are you? Did you have any of the below done?
They can be related to the rheumatological disorders.
They may occur in individuals who have received a bone marrow transplantation or a lung transplantation.
They may occur in individuals who have taken certain anti-cancer medications or who have had radiation therapy.
I'm trying to understand what is going on with your disease. Did you have any symptoms? How were you diagnosed?
I AM A THIRTY ONE YEAR OLD WOMAN. THERE IS NO REASON FOR ME TO HAVE THIS. IT IS CALLED IDIOPATHIC MEANING FOR NO APPARENT REASON. I HAVE A HARD TIME BREATHING ALWAYS AIR HUNGRY. SOME DAYS ARE WORSE THAN OTHERS. I SMOKE STILL (I KNOW STUPID) I HAVE NOT HAD ANY CHEMO OR ANY OTHER TREATMENT EXCEPT FOR THE STEROIDS BUT EVEN THAT I NO LONGER DO. BAD REACTION. I HAVE BEEN TESTED FOR MANY THINGS MANY MANY THINGS. THE HEART THING I HAD AN AT REST EKG THEY FOUND THE PRESSURE NOW I GO FOR A STRESS TEST.