My daughter has HPRH and is 7yrs old. Went to cardiologist and was told that her liver was being effected by the fontan circulation. They said they give her 2-3 years before she needs a transplant. Why is this happening when other kids live with Fontan circulation with no issues?? Does anyone have experience with transplant after the 3 stage surgeries. What are the cons of a transplant -real life experience. I have read statistics that say after 3 yrs a good percentage get cancer, after 5 years the kidneys start to fail, yet alone the percentage of rejection.
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