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Obstructed Hypertrophic Cardiomyopathy
Can you tell me what the "gold" standard of diagnosing HOCM or Obstructed Hypertrophic Cardiomyopathy is? I've been reading about it and it seems to be a very difficult disease to diagnose. Can it cause Polymorphic VT episodes?
I had several tests that showed I had many problems which have gone unexplained and local doctors have not been able to find the answers. I had an RF ablation for very frequent multi focal pvc's & VT; I then had a pacemaker/icd implanted due to lifelong syncopal issues as well as P-VT.
My symptoms even with meds and ICD have persisted - shortness of breath; which worsened in 2010 to the point of SOB laying down/sitting, chest pain, arrhythmia's, dizziness, fainting episodes & frequent pre-syncope issues which I've had for over 35 years since the age of 9; which have occurred mostly with exertion, but some sitting or just standing.
What diagnostic results are they looking for in testing? I've had Echo's, Ekg's, Stress test, Holter monitoring, Tilt testing, CTA's, Xrays, Cardiac MRI & cardiac catherization.
Is a diagnosis through a cardiac cath and other tests I've had enough to satisfy a definitive diagnosis?
The dr I saw in the hospital recently told me to make an appt with Mayo clinic (which I did) for genetic testing and have them follow up. Is there another avenue I should explore also? I want to make sure I find out for sure so I can have my children tested; my older 2 children have had some fainting episodes & arrhythmia's and my youngest daughter has tachycardia issues.
I'm a 44 yr old female and I don't know my family history; father died and had an enlarged heart, but that may have been due to treatments the past 4 years for Lymphoma.
I had several tests that showed I had many problems which have gone unexplained and local doctors have not been able to find the answers. I had an RF ablation for very frequent multi focal pvc's & VT; I then had a pacemaker/icd implanted due to lifelong syncopal issues as well as P-VT.
My symptoms even with meds and ICD have persisted - shortness of breath; which worsened in 2010 to the point of SOB laying down/sitting, chest pain, arrhythmia's, dizziness, fainting episodes & frequent pre-syncope issues which I've had for over 35 years since the age of 9; which have occurred mostly with exertion, but some sitting or just standing.
What diagnostic results are they looking for in testing? I've had Echo's, Ekg's, Stress test, Holter monitoring, Tilt testing, CTA's, Xrays, Cardiac MRI & cardiac catherization.
Is a diagnosis through a cardiac cath and other tests I've had enough to satisfy a definitive diagnosis?
The dr I saw in the hospital recently told me to make an appt with Mayo clinic (which I did) for genetic testing and have them follow up. Is there another avenue I should explore also? I want to make sure I find out for sure so I can have my children tested; my older 2 children have had some fainting episodes & arrhythmia's and my youngest daughter has tachycardia issues.
I'm a 44 yr old female and I don't know my family history; father died and had an enlarged heart, but that may have been due to treatments the past 4 years for Lymphoma.
I found the answer...an Echo is the best tool to dx HCM but a catherization can also help identify and dx the disease.
I found the dr's name also - Dr. Craig Asher at CC in S. FL
I found the dr's name also - Dr. Craig Asher at CC in S. FL
does anyone have a good HCM dr they see in Florida? someone gave me the name of a dr here but I can't find the post.
If my question for the doctor is too difficult then maybe one of the dr's can at least tell me what the "gold" standard of diagnosing HOCM or Obstructed Hypertrophic Cardiomyopathy is?
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