Bowquiver,
Thanks for the post.
The Reveal is certainly the right thing to do. I must be missing something, though. If the reveal is in place, and you are having episodes once per week, on average, then you should already have a diagnosis. The Reveal auto-activates for slow or fast heart rates. Alternatively, if you are having episodes, then you can activate the Reveal.
The other important point is that someone with a family history of Long QT syndrome who is now having passing out spells needs expert guidance at a large center. If your other family members are seeing doctors at Univ. of Rochester, then that might be a good start. The passing out spells could be indicative of dangerous arrhythmias -- but again, why has the Reveal not shown these?
Good luck.
On the Reveal the setting my doctor has set it to are a high of 165 and a low of 40. When these episodes happen now my heart rate does not seem to reach these limits. The doctor then tells me he thinks it may be related to blood pressure. Usually when I have my pulse taken by the nurse at work she also takes my blood pressure. Which is normally in the acceptable ranges. Today for instance at medical my heart rate was 52 average over a 5 minute period. Blood pressure was 132/82. Yesterday in medical at work around noon my pulse was 120 average for a 5 min period and my pressure was 122/93. Both of these situations were when I was in a relaxed sitting position.