I am a 49 year old male who since early child hood have had episodes of
prematurePremature ejaculation
Premature infant beats which are easily felt because I am thin. Past
EKGAtrioventricular block, ekg tracing
Ecg
Exercise stress test's have usually shown
normalNormal saline flush sinus rhythms with occaisional pvcs.
Also on exercise I would have runs of
rapidRapid shallow breathing 120-140bpm (after) that sometimes went on for hours but kind of outgrew them. Some doctors hear a click or slight
murmurHeart murmurs and other sounds. Recently have had more frequent bouts of
prematurePremature ejaculation
Premature infant beats that sometimes are accompanied by a spasm like sensation which can be felt with finger tips under the left breast. They only last afew seconds but also create a flush or rush sensation. I recently had a stress test, EKG, and a doppler echo. Stress test was normal and echo was also except for mild regurgitation of the tricuspid and slight of the mitral.
Through the years some doctors have said that I also have MVP but this has not been proven on the echo. I am currently wearing an event recorder and have had 30 events in two weeks which the doc says are benign. However, am scared about the shuddering sensations and incresing frequency of other symptoms. I don't smoke, drink, and have cut out all caffeine. I want to think that I am doing all that I can to ensure my kids have a dad to grow up with. However, the increasing frequency of the symptoms are robbing me of sleep and making me paranoid about travelling etc. They seem to come out of nowhere and last for varying lengths of time. Any suggetions would be most appreciated.
PS have never fainted with these symptoms but have felt faint occaisionally with them.
I am going through menopause and we thought that could be another problem but that has nothing to do with this.
Hope my input helps.
I started with palps for 5-8 hours daily and though it was coffee so I started taking things away and then they said anxiety and that was not exceptable so I kept pushing. I am an identical twin and my twin had heart murmur but I never had any signs of it.
Until now. So I guess I was born with the hole but the aneuraseum they don't think so. Cause by some injury they said.
Good luck
I AM 72YRS OLD HAD A HEART ATTACK ABOUT 12 YRS AGO HAD ANOTHER ONETHIS PAST JUNE IAM A VERY HEAVY SMOKER AND CANNOT
QUITE MY CARDI OLOGIST WILL NOT DO BYPASS THEY DID PUT A STENT IN
IS THIS HAS GOOD AS BYPASS I ALSO HAVE BLOCKAGE IN BOTH LEGS
O
It is imperative that you stop smoking. Have you asked your physician about Zyban as an aid to Quit. Your heart disease and the blockages in your legs will progress if you don't.
It is up to the discretion of your physician to determine if you will be served better by a stent than bypass. It is likely that you had only one signiciant blockage and that your MD felt that it would be prudent to place the stent. Stents are in general very good at opening arteries and improving your symptoms. As a smoker, your risk of CABG is greater than a non-smoker.
However, you stent will close if you do not control your risk factors for cad including lowering you cholesterol, stopping smoking and controlling your blood pressure.
I take Coreg and Zestril. These medications do not seem to be extremely reliable for me in consistently controlling PVC's. The medications do seem to have stabilized my disease for the moment and I have not deteriorated in the three years since being diagnosed.
I would strongly urge other families out there to be aware of members of their family with CHF of unknown cause. It could very well be inherited. We had no idea of this "pattern" until a series of events that thankfully led to the early diagnoses of me, my sister, my oldest son who is twelve, and my 4 year old nephew.
Good luck to all of you who live daily with any sort of chronic heart disease. It can be quite a shock to find out you have something of this nature especially if you are very young.
Thanks for your comments. It is an important point that you bring up. Family history is an important consideration in evaluating cardiac disease and cardiomyopathy.
Thanks for acknowledging the importance of this. I felt I should respond again and reveal more details about our situation and why I so strongly encourage others to try to really look at the whole picture and what the implications of undiagnosed disease could lead to versus diagnosed disease and what that could prevent or delay.
Of the four of our immediate family that have been diagnosed in the past 3 years, none of us were symptomatic. My oldest son who is twelve now, began complaining about not being able to keep up with the other students running the track during PE. Beyond that there was no other complaint. Due to my father's event, I decided to be safe rather than sorry and took him to our family physician. He ran some blood work which was all fine. He was as paranoid as I due to my fathers heart failure, that something more could be wrong even though on the surface everything appeared normal. He sent us to a pediatric cardiologist who did an EKG and echo cardiogram. We found at that time he was affected with dilated cardiomyopathy. His EF was about 50% which wasn't too bad but his heart was enlarged and he showed hyperkinesis of the muscle. He began a very conservative drug therapy of 7.5 mg of Vasotec daily. He has since had a drastic improvement in the function of his heart with an EF at present of 70%. Obviously we do not believe that the disease is cured as we know it is incurable, however, if early intervention will prevent or drastically slow down his deterioration then our paranoid pursuit of further evaluation was 100% worth it.
Due to this discovery with my son, I was evaluated and diagnosed, my sister was evaluated and diagnosed, and my 4 year old nephew was evaluated and diagnosed. Members of my more distant family (uncles, aunts, cousins) have sought evaluation also and there have been several more diagnosed as a result.
disease can bring after losing my 16 year old brother to it. I
have had and will continue to have cardiac checks but unfortunately cannot convince other members of my family to do so.
Perhaps reading your message may sway them. Best wishes to you and your family.
Thanks for letting me know that this could impact your family in a positive way. My only purpose in posting all the messages on this is the hope that others may benefit from early diagnoses. As I had previously said when my father was diagnosed in end stage heart failure 11 years ago they labeled it idiopathic dilated cardiomyopathy and said there was virtually no chance this was inherited or that we, his children, were affected.
Thanks and good luck.
can anyone help us?
his color turns white/gray when he is having a spasm attack. the drs say he is on the maximum medication and nothing can be done for him. he uses nitro spray many times throughout the day.
list of meds: 1. nitro spray 4.0
2. ten mg norvasc in morning
3. five mg norvasc evening~~before bed
4. imdur 120 mg er& isosor mono er 60 mg
taken in the morning ~~#6 patch ineffective
5. lasix 40 mg morning 20 nightly
6. glucotrol xl 10 mg er tab morning and evening
7. atenolol 50 mg morning
8. zoloft 25 mg morning and evening
9. temazepam prn
10. ecotrin 250 mg aspirin therapy
So- is this something we just have to learn to live with? I can easily see going crazy. This is not something that can be just ignored- particularly when they are constant (every 3rd beat or so).
Are there other research sites that offer any hope? Does anyone else wonder about your Doctor's lack of concern or interest about these?
I most CERTAINLY understand what you are going through. Doctors seem to say your ok, but nothing and I mean nothing can compare to that feeling inside of your chest. It is scary and at times can be debilitating. Have you talked with your Doctors about a beta-blocker? They can sometimes help. Rest assured that if they haven't found anything with all the testing you have recieved then you are ok. When I feel them coming on, mainly when I exhert myself, I just reming myself that I am ok. And you are, trust your doctors...they are usually right about these things. If you want to talk to me, for support or anything like that email me at ***@****. You are not alone in this thing.
Sincerely,
Collinus Newsome
I also take extra calcium as well as a multi-vitamin, extra C and B-complex, Hawthorne Berry and L-carnitine.
The pvc's flair up every now and then but nothing like they've been in the past. I also do not drink anything with caffeine in it, very little alcohol, exercise every day, etc. etc.
Hope this helps someone.
Have had PVC's for years but worsening in recent years.
Cardiologist tells me that my PVC's are benign but could develop into malignent arrythmia. He has put me on amiodarone for life! plus lisinopril and coumadin.
Have lately read in an up to date book by a group of pharmacists that amiodarone can make matters worse and can even cause arrythmias and should only be resorted to in extremely serious arrythmias and only for a very short period. I have been on amiodarone for 6 months - any opinions?
I am 69 and work out on a treadmill for l/2 hour 3 times a week at 4 miles an hour with no illeffects.
My first valve replacement was a porcine valve in l984 and the last one is bovine.
My PAC's began halfway through my pregnancy with my son in Tokyo Japan almost 11 years ago. The doctors there treated me with Valium and told me to relax and not to worry so much. After my return to the U.S. I began having severe episodes of skipped heartbeats for weeks at a time, and then they would just disappear for months, even years.
In 1992, I had a sonogram and was diagnosed with Mitral Valve Prolapse. I also have had episodes of Panic Disorder throughout my adult life. I have made numerous trips to the ER for this condiditon and have been to every kind of doctor.
My family practitioner suggested that I may be suffering from depression. My gynecologist thinks I may be peri-menopausal (early). And my cardiologist can offer no treatments except digoxin (which seemed to make the arrhythmia worse) and Toporol (a beta blocker which turned me into a zombie after about 4 days).
A psychotherapist diagonesed me with Post Traumatic Stress Syndrome and treated me with EMDR (a mild form of hypnosis). Acupuncture also seemed to help somewhat, mostly for helping me to regain my stamina.
I often find that listening to my own heartbeat with a stethoscope seems to help. It's a simple form of biofeedback. A glass of wine will often relax me in the evenings. But these are not always an option when one has to function.
I am also looking into something called HeartMath, Freeze Frame and Cut Thru by a man named Doc Childre. His techniques are getting favorable attention and feedback from the cardiology world. You can find web pages about this by plugging these names into any search engine.
I am currently going through another severe episode of skipped beats which have been increasingly disturbing over the past several months. I've missed several days of work this month and am beginning to worry about my future livelihood.
What I would like to ask everyone is:
How do you cope with daily life? How do you function at your jobs and meet the demands of parenting while experiencing these symptoms? How do you make plans for simple outings and ever hope to fulfull your dreams for the future?
I forgot to mention that a nutritional supplement called Coenzyme Q10 has helped immensely. Probably more than any single thing I have done to combat this condition. I take 30 mg every day.
Also another question:
Have any women out there with heartbeat irregularities noticed any correlation between the ovulatory and menstrual phases of the monthly cycle and episodes of arrhythmia? Mine seem to be worse at those times during the month.
I can be reached by e-mail at ***@****
Good Luck to everyone and God Bless,
Mag
I started taking CoQ10 about two years ago. I learned about it from a lovely woman whom I found on an internet newsgroup.
At that time, I had been nearly flat on my back for 3 months with PAC's that were almost incessant. I had quit my job, and pretty much given up on life. I tend to be skeptical, phobic even, about anything that comes in a pill. I had recently tried both digoxin which aggravated my condition, and Toporol which turned me into a zombie after only 4 days.
Before I tried CoQ10, I researched it thoroughly through the internet and by corresponding with people who were taking it for similar heart conditions. Apparently it is a naturally occuring substance, manufactured metabollically in the human body in diminishing quantities as we age, and found in many food sources, the richest being beef heart (yuk!). But CoQ10 is implicated in almost every cellular function, especially the contraction of cardiac muscle.
Because I tend to be hypersensitive to all kinds of drugs and supplements, I started with 10mg/day, a low dosage which is really hard to find.
Eureka! After only 2 days on that tiny dosage of CoQ10, I was like a new woman. I've never experienced anything like it. I was amazed at my renewed energy level, and the fact that it virtually eradicated my episodes of arrhythmia. Best of all, there were zero side effects. It was a godsend!
I don't know if my case was an exception, or if CoQ10 has this effect on everyone. Perhaps my sensitivity worked in my favor this time. Since the 10mg caps are so hard to find, I reluctantly upped my dosage to 30mg/day which seems to be the most common dosage. I've even taken as much as 50 mg/day when I ran out of the 30's. But 30mg/day seems to be the right amount for me. Dr.Andrew Weil says that he takes 100mg/day for general wellbeing. And one woman I read about in a newsgroup today varies her dosage according to the demands of her day, sometimes taking as much as 300mg. But at the price of the stuff, one has to wonder how she affords it. Between the CoQ10 and the price of gasoline these days.....geez. But there are times when I have suffered so much with this that I would gladly have given anything (except my child) to end the torment.
Interestingly enough, I spaced out and forgot to take my supplements for 2 days in a row last week and have paid dearly in severe episodes of arrhythmia all weekend. Just today, I have finally gotten stabilized and back on my feet again. I guess it takes a few days for it to deplete or build up in your system. I won't be skipping it again, that's for sure.
I hope this helps you and any others who may be considering trying it. I think CoQ10 is an undiscovered panacea that will someday be recognized for the crucial role that it plays in cardiac health.
Peace and health to you, and thanks for responding.
Celeste
P.S. In case you don't already know about it, this is a good e-mail circle / newsgroup with an archive of over 3000 entries:
http://www.onelist.com/messages/PeoplewithPVCs
On Monday night I started having chest pain, so I went to the ER. Doc said that it was either an MVP or a PVC. When I looked it up on AskJeeves.com, the PVC definition/diagnosis was right on target. This morning (Tues.) I went to a cardio. doc and when they saw my reaction to the PVC, they're expressions were very concerning to me. As if they hadn't seen that sort of reaction before. They did an EKG, which picked up one PVC. They also did an ultrasound on my heart. And when she was almost done it happened. It was quite scary watching my heart jump like that. The nurse hooked me up to this stupid contraption...holter monitor...and I've been wearing it since 11:50AM.
It's now 11:35PM and this monitor has overstayed its welcome hours ago. I've also had to keep a time, activity, & symptoms diary (very annoying). I've realized that I get the PVC's as soon as every few minutes to as far as every 15 minutes. I also calculated them from 11:54AM to 11:37PM (now), and do you know how many PVC's I've had??? 183!!
Is this normal?? Am I going to be alright? I know how you feel about wanting to be around for your children. I have a 14 mo. old son, Dylan. And besides my husband, Dylan is my life and my joy. He's basically with me 24-7. I work at a daycare and he even goes with me. I'm afraid that this will affect how I'm able to care for him.
Anyway...I hope that it helps you to know that there are others who are in your situation...and are in waiting as to what we can do. Just remember...God has a plan, and I just hope that His plan is for you to be a great-grandpa and for me to be a great-grandma someday. God Bless and take care!!
~ Andie
I am relieved to find others with PVCs like me, but also sad that there are so many people who suffer with these and don't get the help we need. I am a 44 year old female and I think I have had them all my life at times, but they got a lot worse about 11 years ago when my kids were small and I was under a lot of stress. I have them mostly under control now and I can tell you what I recommend:
1. See your doctor first and have all the heart tests done to see if there is something else wrong with your heart.
2. If he/she recommends a beta blocker, TAKE IT. It will make you tired at first, but that is what you need if you have been having a lot of PVCs and are very anxious about them.
3. If the beta blocker isn't enough to stop the PVCs completely, see a psychologist or therapist to discuss your own personal history and your ability to cope with stress, panic attacks, and worry about your health and the PVCs themselves. You may be helped by an SSRI (anti-depressant) or another panic or anti-anxiety medicine.
4. If you are a woman, see your gynecologist and have blood tests done on your thyroid and hormone levels. You may be entering perimenopause or may just have always had erratic hormone levels and that can calm your mind to know that's what it is, whether you need to take hormone therapy or not. None of our bodies are perfect and we can all have fluctuating hormone levels that cause us problems throughout life. Even guys have changes in testosterone levels, but they can't measure and predict them like we do with menstruation. It helps to accept that we're not perfect.
5. Stop consuming caffeine in every form (that means no coffee, tea, colas, chocolate and even decaf coffee because it still has traces of caffeine. Be strict with yourself. It will calm you a lot. Accept the fact that you may be tired. Rest when you are tired instead of drinking caffeine to hype you up.
I have found that taking the beta blocker and an SSRI have helped me a lot, along with curing my migraine headaches which were very bad, and the panic attacks I got from the PVCs. I have accepted the fact that I have a very sensitive nervous system and notice things like PVCs and get them more often than other people. I am also prone to allergies and emotional sensitivity, so it makes sense that my whole system if hyper-sensitive. I worked through my family history with a psychologist and that really helped clear my mind. The beta blocker and SSRI dull my senses a little, which is the only way I can survive in life and I am happy to accept them as long as I need them. I am probably entering menopause now and expect that once I'm through it this will be better. If you are a Mom at home with small children, please be reassured that I was there once and was terrified I would drop dead from PVCs, but I never fainted even once and I have seen my girls grow into beautiful teenagers now. It helped my attitute when I got to the point that I just said to myself "Fine, drop dead. I can't stop these PVCs, and I can't stop this stress, so I don't care. I'm going to ignore them and let them go until I just drop and then someone else can deal with these problems." Once I faced them like that they were better and I felt tougher. I hope you all feel better soon. Take care.
I have had PVCs for six years, ranging between hundreds to 15 thousand a day. These also include VTs. I noticed eating meals caused the PVCs/VTs to act up quite a bit. I asked my electrophysiologist and he mentioned that when we eat, our bodies release something (sorry, I do not remember what it was) that sends something to our heart (very vague, but a doctor should be able to explain). The bottom line is, you're not imagining it at all. Shortly before I had an ablation, I feared eating a meal because I knew it could trigger VTs. You're not alone.
Then a cardiologist prescribed me Atenolol which is used for high blood pressure and irregular heartbeats. I usually don't like to take any medicine, but this time I had to give in because nothing else seemed to work. My heartbeats became normal two hours after taking the first pill three days ago, and I haven't had any skipped beats since. Now I take my pills without questioning, and am happy to sleep my nights peacefully.
I hope that you'll find a good cardiologist that can help you.
God bless you all.
Helen
anyway you can email me ***@****
I have had PVC's, PAC's and parxysomal tachycardia for 10 years now. It all started when I was pregnant and like others on this site I notice a distinct correlation between ovulation and just prior to my cycle.
My cardioligist has recently prescribed a calcium channel blocker which he says helps some people with these beats. Has anybody out there tried this? I don't like taking any medication, however take 1mg of valium at night to sleep better!
I work full time and WON'T LET THIS CONDITION BEAT ME!! Sometimes after I get a few PVC's in a row I break out in a sweat and feel as if I will pass out - does this happen to anyone else? Also does anyone have a dramatic increase in symptoms when lying down - especially on their left side? I can sometimes bring them on by lying down this way and then when I sit up they stop!
Like others I find all this very difficult to accept - I now suffer panic attacks - I am sure as a result of having had this horrible thing for so long now.
It has been a great comfort to read all of your comments and would appreciate any answers to my above questions.
Love to all
Susan in South Australia
Good luck and best regards
I understand the fearful and almost surreal feeling of the total change in your life so suddenly. I am 26 years old and 10 weeks pregnant with my first child.I was just told I have MVP with moderate to severe regurgitation (I had never been diagnosed with this before). The 2 cardiologists I have seen tell me (while I am sitting in front of them in their office) to proceed with the pregnancy (although I have already been told that may not be the case in subsequent pregnancies) and they foresee zero problems with this pregnancy itself, but use words on the follow up reports like "may need surgery in the future" and "severe and eccentric mitral regurgitation", "significant regurgitation", "unsafe leakage". The reports also show I have no current heart damage or enlargement. I have yet to have any symptoms except extreme anixety from the confusion and despair I feel thinking that I may not be able to properly care for my child or my biggest fear, surgery or DEATH. The doctors I deal with are somewhat uncompassionate and seem to want to rush you out of their office. One of the amazing things I experienced was filling out the initial paperwork at the cardiologist's office....all they seemed concerned with was my insurance. My attending doctor was going to fax over the necessary referral, but they wanted an original and made me sign a waiver agreeing to pay in full if that referral failed to get to their office in time. I was scared and the last thing one my mind was clerical rules. My other experience was lying on a table getting an ECHO and EKG and the Technician and assistant and cardiologist standing over me pointing to the screen, grimacing and speaking to each other in medical jargon i could not understand. When I asked what they were talking about, they were evasive. When I got dressed to leave they said "good luck". Wonderful.
I have suffered anxiety attacks since I was 13 and have been treated for general anixety disorder. Before finding out about my MVP, I hadn't had an panic attack for over 2 years and stopped taking the prescibed Xanax. I finally felt good. I thought I finally had a handle on things...until this. Now I am literally paralzed by fear and foreboding. I feel alone. I feel hopeless. I am truly in shock. The only time I feel better is reading the comments in this forum. We, the sufferers of this disorder or other related heart disorders, need to stick together, because obviously we cannot count on the professionals to give us the serious advice and support we need (or a straight answer).
I would appreciate any one who feels as I do, e-mailing me. I would like to give support and receive support from people who not only know, but feel what I feel. My e-mail address is Dollylo55@AOL.
Thank you and you all are in my prayers.
Jamie
I do have PVC's quite often too. After some negative testing (ECG, Stress-ECG..) I know that they are not dangerous. Nevertheless it feels scary to feel your heart working irregularly. I have noticed that the more I think of the PVC's the worse my heart gets. This gets me into anxiety, which worsens
my heartrate and so on and so on.
The more I think about life, plan, enjoy .... the better I feel and less PVC's do I have !!
Recently I decided that I wanted to hear my heartbeats myself and did some simple records on which I caught some PVC's and PAC's as well. If anyone is interested in getting such a short audio, mail to ***@**** . It is interesting to hear once yourself what your heartbeat does and not to feel it only.
Greetings
Loren
When i got out of high school the calmed down alot, and caffeine does not seem to affect them. I have been having more bouts of the past few weeks due to college and general stress I think. I also cut back on my caffeine (did not intend to, just happend) and I think that lowering my caffeine intake may have made the PVC's become more frequent again. I also get a "head rush" when they happen. My only thing is that VERY rarely (like a few times a year) I will get a RUN of them where I will have like 5-10 PVC's in a few secs time, that is a bit scary. Doc has siad they are beign.
What do you mean with: I do pass away...?
I have PVC's as well and am fighting anxiety or even then and then panick attacks. Feel free to e-mail if you want ***@**** . I know what you're talking about ! How long have you had this condition ? Do you have an irregular heartbeat occasionaly or constantly ?
Loren
I have regular bouts with PVCs, and the attacks have become... more liken to a bad habit. My body(mind) has become used to them. For the longest time I was on some serious medications and I ended up racking up some huge hospital bills. Mostly for observations and medication adjustment.
I am currently on Toporol and Lanoxin. I have my lanoxin level checked every three months. For the first time in years I have knocked the episodes down to bearable.
I also got aggrivated with the doctors saying, I was too sensitive and there was nothing they could do. At one time they were going send me to have a Maze procedure done.
Needless to say at 30 years old. Open heart was not high on my list. I can now say that with the meds mentioned here, I am finally living.... as normal as I can.
For those that are fearing this, keep the faith. Keep beating you doctors up about it. Maybe one day we can overcome this.
Bob
Best Wishes to all of you.
The doctors test and test. No problems except the arrythmias.
Sometimes i get them every third of fourth beat, Scares the heck out of you,The feeling of shortness of breath and general anxiety is really disconcerting.I also have asthma brought on by allergy. So sometimes im having PVCs and shortness of breath along with an asthma attack,Geez, Now thats a trip!!!! ha ha ha .
All i can tell you is,Nothing ever stops the attacks completely,
But i hear all of us will probably be OK. Try not to worry to much, And remember YOU ARE NOT ALONE!!!. And your not gonna die from these damn things.Although it sure feels that way sometimes.
SEE YA jeff
The doctors test and test. No problems except the arrythmias.
Sometimes i get them every third of fourth beat, Scares the heck out of you,The feeling of shortness of breath and general anxiety is really disconcerting.I also have asthma brought on by allergy. So sometimes im having PVCs and shortness of breath along with an asthma attack,Geez, Now thats a trip!!!! ha ha ha .
All i can tell you is,Nothing ever stops the attacks completely,
But i hear all of us will probably be OK. Try not to worry to much, And remember YOU ARE NOT ALONE!!!. And your not gonna die from these damn things.Although it sure feels that way sometimes.
SEE YA jeff