help with neurally mediated hypotension!!!! part 2

Now we are at current date...
I asked for a referal to a neurologist and to be given the tilt test.
Within the findings i am waiting for my neuorologist appointment on monday for results.
However my notes from the test say that i have "a predisposition to neurally mediated hypotension as well as chronic accelerated juntional rythmn."
I am hoping for some guidance from you all!!!

Do any of you suffer form this??
What medications worked for you??
Do you have any assistance from the local community/gov??
Have your medications been approved on pbs?

I know that these might seem like monetry questions..
But as i have a pre existing condition my health fund will not cover me..and i have two young children under 5 and a husband in afghanistan with the defence force.
I am limited for reasorces and have had no luck in finding any information in regards to any type of support group!
Especially as this condition/conditions alike have so many names!!!!!!!

Also have any of you been able to have your condition recognised by centerlink??

And i also have tried google-ing these condition/conditons and have seen alot of documentation in regards to Chronic Fatigue...
What are your thoughts on this????

LOOKING FORWARDS TO RESPONCE

Brooke