Aa
pulse/heartbeat all over my body.
Lately, I have noticed that when I go to sleep, I can feel my pulse in strange places, such as fingers, legs, stomach...and lately, all over at the same time.
Any idea of what this is?
Any idea of what this is?
My last post was almost 2 years ago and I continue to have the feelings of "motions' in my feet and legs as well as being totally aware of the beating of my heart all over by body. I do not have any feelings that I am going to die of these symptoms but they are very tiring and annoying. I have seen a neurologist who says the movement I feel in my feet and legs is caused by diabetic neuropathy. The nerves are damaged and the signals received by the brain are garbled and thus the "feelings of motion" which have now become slightly visible to others, just not to the extent that I "feel" them. So...I guess some folks here are kinda right when they say it's in our head. Actually, according to my neurologist, it is a miscommunication between the nerves in my feet and legs and my brain.
Thanks for sharing. Having so many docs say "you are fine" to me already let my mind realize that I am fine. I think I am in the tweaked state still, and trying to come down from there. Its difficult, since the body (run by our basic instincts) takes so long to change.
That makes you realize how long it took to actually bring you to this state. I think its one of the reasons why it seems like it came "out of the blue" for so many of us. It didn't, it was slowly getting stronger until it jumped from the back of our minds to front and then became our entire lives. The best way out is through, and realizing that you mind IS in fact stronger than your body. Your mind got you were you are by not dealing with the issue until it was too late. Then suddenly anything that was even remotely 'off' with you has become the "this is it!!!!" moment. Which makes it all worse since anxiety is a form of OCD. We wallow in our misery, and marinate our bodies in stress hormones which the exacerbates the problem, sending you in the vicious cycle and bring up new "and better" symptoms.
Now, your mind can pull you back to healthy side, but it takes work. Actually listen to your body instead of reacting when it tells you something. If all the docs say "you are fine" listen. I know, you know 'deep down' that there is something wrong. Is it really? How long have you been like this? How many times did the day arrive when you though "this is the day, I'm not gonna see tomorrow"? So how is life now that you are dead? :) I'm almost 39 and have been having the "Jesus I'm dying!" moments since I was 15. The only thing that truly changed was just more stress, and more to lose, but nothing has really changed, I'm not dead. Well...not yet. ;) Maybe the docs are right. At least about you not dying right now.
I always thought that life was like a roller coaster (and sometimes like a box of chocolates), if you hold on too tight and don't relax, you won't have any fun. Let go. Don't worry about dying, because its going to happen anyway eventually, do you want to spend the rest of your life holding on too tight, or letting go and having fun? No one wants to die, but being anxious about dying is killing us, slowly. Revel in the fact that you are alive, the sun DOES shine, there ARE people who love you and care about you and really can't bear to see you like this. Even here on this board, we care, we have been there, we 'know'. Be kind to yourself, speak to yourself kindly, even in the midst of your frustration. Frame everything as something positive to focus on the good things. Even when your heart beats so you can feel it everywhere. Its not *beat* 'one less' but *beat* 'you are still alive'.
That makes you realize how long it took to actually bring you to this state. I think its one of the reasons why it seems like it came "out of the blue" for so many of us. It didn't, it was slowly getting stronger until it jumped from the back of our minds to front and then became our entire lives. The best way out is through, and realizing that you mind IS in fact stronger than your body. Your mind got you were you are by not dealing with the issue until it was too late. Then suddenly anything that was even remotely 'off' with you has become the "this is it!!!!" moment. Which makes it all worse since anxiety is a form of OCD. We wallow in our misery, and marinate our bodies in stress hormones which the exacerbates the problem, sending you in the vicious cycle and bring up new "and better" symptoms.
Now, your mind can pull you back to healthy side, but it takes work. Actually listen to your body instead of reacting when it tells you something. If all the docs say "you are fine" listen. I know, you know 'deep down' that there is something wrong. Is it really? How long have you been like this? How many times did the day arrive when you though "this is the day, I'm not gonna see tomorrow"? So how is life now that you are dead? :) I'm almost 39 and have been having the "Jesus I'm dying!" moments since I was 15. The only thing that truly changed was just more stress, and more to lose, but nothing has really changed, I'm not dead. Well...not yet. ;) Maybe the docs are right. At least about you not dying right now.
I always thought that life was like a roller coaster (and sometimes like a box of chocolates), if you hold on too tight and don't relax, you won't have any fun. Let go. Don't worry about dying, because its going to happen anyway eventually, do you want to spend the rest of your life holding on too tight, or letting go and having fun? No one wants to die, but being anxious about dying is killing us, slowly. Revel in the fact that you are alive, the sun DOES shine, there ARE people who love you and care about you and really can't bear to see you like this. Even here on this board, we care, we have been there, we 'know'. Be kind to yourself, speak to yourself kindly, even in the midst of your frustration. Frame everything as something positive to focus on the good things. Even when your heart beats so you can feel it everywhere. Its not *beat* 'one less' but *beat* 'you are still alive'.
I too share your hypothesis on these symptoms being related to adverse fluoroquinolone reactions. I too was floxed two years ago and my symptoms started shortly thereafter. The earliest signs that I had was aching ankles and wrists after only 1 or 2 doses of cipro at 500mg. Since then the list of symptoms is disheartening. However they are ever evolving and with persistence I believe they can be resolved despite the overwhelming feeling of hopelessness. A few things I've learned may help you or others on their path to recovery. (1) Make sure you do not have a metal/mineral imbalance which may exasperate your symptoms. This is likely a contributing factor as to why some people never experience or experience delayed (6 months) adverse effects on quinolones and others do not. I personally learned that I had extremely low copper, low magnesium and low sulfer, coupled with high arsenic, aluminum, lead, cadmium and tin. A hair analysis is a valid test for most metals. Just make sure you have a professional go over the results with you because readings are not always straight forward. For example, low copper on my test could also be caused by bio-unavailable copper. Taking copper supplements with bio-unavailability could make you much sicker. The ratio's between certain minerals must be taken into account to get an accurate interpretation of the results. (2) According to Pub-Med, there are a few things about Quinolones that are absolutely horrible. Being fluoride based is one, and the neuro-toxic effects of fluoroquinolones being potentiated upwards up to ~33,000 times when mixed with any kind of NSAIDS is another. Studies have shown that FQ's tend to bind GABA receptors as well as damage the CNS. I do not believe this is a life-long debilitation. The human body is amazingly resilient and with the right direction a 99% or complete recovery is possible. Studies show that it might take upwards of 1-5 years depending on the severity of reaction but positive thinking and guided supplementation will no doubt shorten the time. (3)Magnesium is neuro-protective and vital in thwarting the damage by FQ's. (4)Food and supplements that increase Methylation, Sulfation, and displacement of fluoride by other members of the halogen family (iodine) have seemingly played a role in my recovery. (5)B Vitamins seem to act as a catalyst for all the processes required for recovery but taking effective forms of B vitamins (Biotics Research Bio-3b-G, or Benfotiamine) is vital. Taking B vitamins seems to jumpstart processes that are dependent on other nutrients, lacking those other nutrients have made me feel worse, these are sometimes referred to as metabolic blocks. It is a learning process.
As with everything, easing into a solution is better than jumping head first. The first time I took B vitamins I thought my heart was going to explode because I was so deficient they gave me a flush. Iodine can make people with thyroid conditions feel worse. It seemed to help my energy level once the initial confusion it caused dissipated.
I too feel miserable when the heart pounding starts. As far as I can tell, it gets worse when I lay on my left side. My doctor said I don't have Mitral-Valve prolapse but or a hiatal hernia. They said I had sludge in my gallbladder which I believe was likely due to my low copper. My pulsating heart sometimes makes my eyes move while I'm laying down. Sometimes I feel it when I sit forward. Things that seem to help it: Magnesium Supplements, avoiding Gluten, Apple Cider Vinegar Pills after a meal once or twice a week. While Anxiety is always a contributing factor, people that have never experienced these symptoms should not automatically attribute them to anxiety. If we wanted that kind of worthless diagnosis we could pay our top dollar PCP's for it and get some poisonous benzo's for it ;) If anybody has success in making their pulsating torso/heartbeat symptoms go away please contribute. Thank you to the few of you with valid info.
As with everything, easing into a solution is better than jumping head first. The first time I took B vitamins I thought my heart was going to explode because I was so deficient they gave me a flush. Iodine can make people with thyroid conditions feel worse. It seemed to help my energy level once the initial confusion it caused dissipated.
I too feel miserable when the heart pounding starts. As far as I can tell, it gets worse when I lay on my left side. My doctor said I don't have Mitral-Valve prolapse but or a hiatal hernia. They said I had sludge in my gallbladder which I believe was likely due to my low copper. My pulsating heart sometimes makes my eyes move while I'm laying down. Sometimes I feel it when I sit forward. Things that seem to help it: Magnesium Supplements, avoiding Gluten, Apple Cider Vinegar Pills after a meal once or twice a week. While Anxiety is always a contributing factor, people that have never experienced these symptoms should not automatically attribute them to anxiety. If we wanted that kind of worthless diagnosis we could pay our top dollar PCP's for it and get some poisonous benzo's for it ;) If anybody has success in making their pulsating torso/heartbeat symptoms go away please contribute. Thank you to the few of you with valid info.
I know a short term cure:
set your watch for 5 mins countdown.
Sit up, close eyes, Breathe deep through only your nose until your stomach expands and chest aches, then let it out through your mouth.
repeat until alarm goes off.
Thus, more oxygen gets to your bladder and bloodstream and rids you of the adrenalin or whatever is causing what you have, the name of which people, is 'anxiety'
Do whatever it takes in your personal and professional lives to reduce how out of control you feel about situations and you will be anxious less often.
set your watch for 5 mins countdown.
Sit up, close eyes, Breathe deep through only your nose until your stomach expands and chest aches, then let it out through your mouth.
repeat until alarm goes off.
Thus, more oxygen gets to your bladder and bloodstream and rids you of the adrenalin or whatever is causing what you have, the name of which people, is 'anxiety'
Do whatever it takes in your personal and professional lives to reduce how out of control you feel about situations and you will be anxious less often.
OK - I am reading all of these from the past couple of years and NO, it is NOT in your head!!!! I am so tired of people saying it is anxiety. I have a lot of health problems, but the throbbing in my hands, arms, legs, gut, even see my pulse in my eyeball comes with pain. I lay down or even just look at my shirt and my heart is beating fast. I quit smoking, thinking that is what was doing it but that is NOT the case, in fact, it seems worse. I am on drugs to slow the heart down, I do have high blood pressure, but it runs extremely slow on my meds. I am so sick of not getting any answers. I do know I have neuropathy, not sure if that is why it happens. I am so tired of pain - if anyoe has any suggestions, let me know - but I can tell you it is NOT anxety! My heart rate usually runs in the uper 90's to 120. I thought that would chill if I quit smoking, no that has not either!
I find it very bizarre I'll be sitting Indian style and realize I'm rocking slightly to my heart beat. I thought it was psychological but recently have been told it might be called stimming and that is not always psychological. Does any one have any advice or answers?
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