After doing massive reserach, I finally found the death risk of SCD without heart disease. It seems the risk is really really low. I found this in an article from the American College of Cardiology.
Just a reminder: PVCs, PACs, SVTs, etc. do NOT count as heart disease. This is limited to conditions like CAD, cardiomyopathies, ion channel diseases, etc.
The risk to die from so-called idiopathic ventricular fibrillation is estimated to 3,4/100.000 (or about 1:33.000). There seems to be some conditions that may increase the risk slightly, but it still remains below 1:10.000.
To compare, risk of homicide is several times higher. So I guess, for most of us on this community, our fear is totally irrational.
Sorry to bring up a sad subject, but it should be able to remove some fear.
Yeap,was told by a cardiologist abt this too,the risk is very low,espcially people who had a clean echo,ekg,stress test,holter monitoring and normal cardiac enzyme,hm but still some things are unpredictable in life.
So those recovery pvcs aren't really a risk of heart disease or SCD. It is the other way around. If you have heart disease, recovery pvc's are more likely to be dangerous? I'm thinking way too much about this. lol
Thanks for the information. It does help settle minds like ours that continue to look for answers. Seems I'm okay for a while, then I need to search for better answers. vicious cycle......
EIVA's (exercise induced ventricular arrhythmias) can be a marker for increased risk for those with existing CAD, but are not a worry for someone with a normal heart structure and the absence of heart disease.
I would love to see the link also. I'm sure I'll be chasing answers until I die but I keep hoping something jumps out at me - my cardiologist dismissed the possibility of thyroid related problems for me; but I'm keeping the article and hoping a dr one day will find the answer.
Here's something I read from the JACC - very interesting article if I understand it correctly; http://content.onlinejacc.org/cgi/content/long/48/5/e247? this was in 2006 so maybe there's newer research out there.
Under # 2 Epidemiology 18.104.22.168 does talk about pvc's w/o heart disease. It says In contrast to the non life threatening implication of PVCs at rest, PVCs elicited during exercise testing, even in apparently normal individuals, appear to imply risk over time.
Which is one thing I've questioned for the past 2 years and gotten mixed messages; one cardiologist will say due to my stress test results DO NOT exercise; then another 2 will say yes it's ok, then the next few said no exertion...which has left me frustrated.
It also says PVCs and NSVT induced during exercise correlated with increased risk of total mortality, while in another study, it says both exercise and recovery phase PVCs correlated with risk, with the greater risks in recovery pvc's. what do we believe...
here again it could be like I've said with just about every other study; they hand pick their patients based on what they think they need for that certain study - and most are biased and for every study we find that says recovery pvc's are a risk; there will be more studies to dispute that previous one.
but Is_something_wrong is correct - there are so many other things that could take our lives; such as car accidents . I don't even want to think about if we took the auto accident death rates and fixated on them and were overly anxious at each car that got too close to us, veered over the lines, stopped too fast or too slow - we may never leave our homes again....
sorry hope that sounded right...after I read it again sounds like I'm belitting all of us who go through pvc's and anxiety...heck I can't even go to the bathroom without anxiety I'm going to start NSVT runs and faint, not wake up and someone find me like that!
I would do all the non-invasive tests.... ECG (of course), Thallium stress test, Echo and CTA scan...after all these you should be able to determine if there is any form of heart disease. I don't think these have to be repeated every year unless there is a change in symptoms.
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