Aa
A must to contribute to: pls help this research!
I am researching on the effect of HBV on relationships (between a man & a woman) how HBV has made some hepatitis b positive pple to be "a no go area" for courting, marriage, or relationship, which has placed embargo on them (hbv+ ) to b single all their lives. Or how it has caused them broken relationships or marriages. Do pple who have HBV often face difficulty of "being with". If u think it does, what percentage do u think? Do u have an experience or an example to share with us? Some pple even say the best way for HBV singles to get married is to marry among themselves or marry one another bc rarely would u see somebody who is negative marring to them, what do you think? ..I need to carry out this research as a survey frm what HBV positive pple have had as experience, what they have heard, seen. I am planning to open a free dating site for only "hepatitis b singles" whom Hbv stigmatization have deprived of marriage which many long for but seems dat their desires are shattered thereby frustrated by it. Pls even if it is just a line let me know ur mind concerning this.
The problem is very serious .. when you discover this at 40,50 years old you don't freak out ..you already lived a good amount of your life and you think yourself ,well ...this is the life... it is not such a big problem right now, I will probably live normal till 60' 70's .. but when this happens at 20 , I have 23 only ...think what psychological impact has on you .And when you realize that the cure is holding back because of the money implications and politics you start to freak out ..The reality is that in this moment no one is rushing to cure this ,although this is a very serious virus with possible very serious complications, even death. If you are not strong enough , this can bring you down in a moment and hold you there . I don't know what's with this conception , hbv carrier to marry amoung themselves ..this is almost insulting if you ask me . Keep in mind that as I've find out that I have the virus even I never went to hookers or did drugs , tomorrow any of you can wake up and find out that after a stomatological intervention, an infected needle in the hospital ,a surgery ,etc you somehow got the virus .. like Lukyman said it ...most of us didn't do anything to deserve this . but this is the life, we carry them and hopefully we will get cure with the proper medications ..and hopefully a cure soon .
I want to try and stay on topic for this, omotola. I know if veered off with some of the thoughts that were given here (Believe me, it's thoughts we all have!) but I'll be glad to answer some of your questions. About me, I am 37 years, male, white/caucasian and single, born and living in the United States... NJ to be exact. I did not find out about my Hepatitis B until I was 36 when I was not "feeling right". Apparently, it went active inside of me for some reason. I never knew I had it and fell very ill, very very very quickly. I still have not recovered 100%, despite being on meds, and every day is a struggle for me when it never used to be. So, let me continue...
"Do pple who have HBV often face difficulty of "being with". If u think it does, what percentage do u think?"
Answer: It's a very difficult area for people to explore. In the United States, there was always a joke with younger generations about getting "The Hep or the Clap or AIDS" when being with someone. Hepatitis is looked down upon as a very bad sexually transmitted disease. If someone here hears that you have it, they immediately think you've slept with dirty hookers or have shared dirty needles with someone. I'd say about 90% of people will not even want to "be with" anyone with Hepatitis, even if they were vaccinated. They just do not want to put themselves or any other loved ones at risk.
"Do u have an experience or an example to share with us?"
Answer: Absolutely I do! After my Hepatitis went active inside of me, for whatever unknown reason, I fell very ill (you can read a lot about this at my blog http://lucky7club.wordpress.com and start from the bottom). For whatever reason, a lot of women became very interested in me. I, of course, had no intentions on dating at the time. I just wanted to feel better. But as time went on, I decided to go out with some of these women. 2 in particular. One, I knew had the vaccination as she is a school teacher and it was required in her field. The other, was an old friend of mine.
I'll start with the old friend. It was December 2013 and her father fell ill, on his deathbed thanks to Lung cancer. She was needed to get out and I was very depressed at the time (Lack of Vitamin D can do this!) so I wanted to make my house happier. I decided I wanted to actually put up a Christmas tree and decorations this year, something I did not do for 2 years. I asked if she wanted to come over and help me. She did, and she was dress very sexy for the winter time and looked as if she was ready to throw herself at me... and she started to. I then told her "Hey, did I tell you why I've been feeling sick lately? They found Hepatitis B in me". Her jaw dropped, I could see the disappointment in her face and we continued to decorate. I never brought it up with her again but I am still friends with her, and there are times she will not even want to be around me because of this.
The other one, the school teacher, I never really told her I had Hepatitis B. She had no issues trying to get intimate with me, which I had to stop myself from continuing due to my conscious of having Hepatitis B. Despite her being vaccinated, I did not want her to freak out. I eventually told her I was on meds for a "liver issue" and since then, I have not heard from her. From what I gather, she ran into the arms of another man.
"Some pple even say the best way for HBV singles to get married is to marry among themselves or marry one another bc rarely would u see somebody who is negative marring to them, what do you think?"
I disagree. I think as long as the communication is there and as long as someone was vaccinated, there should be no reason why an HBV negative person can marry or have a relationship with a positive person. There should be no discrimination on that one at all, as long as both parties can accept what they are dealing with.
Like many on here, I feel that my love life needs to be put on hold for a bit while I focus on taking care of this issue. Before all of this, I had no problems dating but that was because I felt "ok" all the time. Once I didn't feel right, I knew I needed to focus on my health first. Plus, it's very hard to tell people exactly WHY you are taking medications when you first start dating them. Thankfully, my friends and family have been all very supportive of my status and I get to live my normal life with them as if I do not have this nasty disease.
"Do pple who have HBV often face difficulty of "being with". If u think it does, what percentage do u think?"
Answer: It's a very difficult area for people to explore. In the United States, there was always a joke with younger generations about getting "The Hep or the Clap or AIDS" when being with someone. Hepatitis is looked down upon as a very bad sexually transmitted disease. If someone here hears that you have it, they immediately think you've slept with dirty hookers or have shared dirty needles with someone. I'd say about 90% of people will not even want to "be with" anyone with Hepatitis, even if they were vaccinated. They just do not want to put themselves or any other loved ones at risk.
"Do u have an experience or an example to share with us?"
Answer: Absolutely I do! After my Hepatitis went active inside of me, for whatever unknown reason, I fell very ill (you can read a lot about this at my blog http://lucky7club.wordpress.com and start from the bottom). For whatever reason, a lot of women became very interested in me. I, of course, had no intentions on dating at the time. I just wanted to feel better. But as time went on, I decided to go out with some of these women. 2 in particular. One, I knew had the vaccination as she is a school teacher and it was required in her field. The other, was an old friend of mine.
I'll start with the old friend. It was December 2013 and her father fell ill, on his deathbed thanks to Lung cancer. She was needed to get out and I was very depressed at the time (Lack of Vitamin D can do this!) so I wanted to make my house happier. I decided I wanted to actually put up a Christmas tree and decorations this year, something I did not do for 2 years. I asked if she wanted to come over and help me. She did, and she was dress very sexy for the winter time and looked as if she was ready to throw herself at me... and she started to. I then told her "Hey, did I tell you why I've been feeling sick lately? They found Hepatitis B in me". Her jaw dropped, I could see the disappointment in her face and we continued to decorate. I never brought it up with her again but I am still friends with her, and there are times she will not even want to be around me because of this.
The other one, the school teacher, I never really told her I had Hepatitis B. She had no issues trying to get intimate with me, which I had to stop myself from continuing due to my conscious of having Hepatitis B. Despite her being vaccinated, I did not want her to freak out. I eventually told her I was on meds for a "liver issue" and since then, I have not heard from her. From what I gather, she ran into the arms of another man.
"Some pple even say the best way for HBV singles to get married is to marry among themselves or marry one another bc rarely would u see somebody who is negative marring to them, what do you think?"
I disagree. I think as long as the communication is there and as long as someone was vaccinated, there should be no reason why an HBV negative person can marry or have a relationship with a positive person. There should be no discrimination on that one at all, as long as both parties can accept what they are dealing with.
Like many on here, I feel that my love life needs to be put on hold for a bit while I focus on taking care of this issue. Before all of this, I had no problems dating but that was because I felt "ok" all the time. Once I didn't feel right, I knew I needed to focus on my health first. Plus, it's very hard to tell people exactly WHY you are taking medications when you first start dating them. Thankfully, my friends and family have been all very supportive of my status and I get to live my normal life with them as if I do not have this nasty disease.
So this is the kind of nonsense we deal on regular bases with. After an appointment like this one needs few days to come down the kind of clowns get to treat hbv.
Naturapathic doctors are sure are more thorough . But they also charge 300-500$ per visit. And dont take health insurance. Or it does not cover their therapies because they are not approved. Therefore not medically necessary.
So you walk out from them with an estimate treatment plan of $20k to start with no guarantees. Ad that to a 20k estimate from a dentist to remove 8 mercury filings. And you really look at the sky and ask if god has a plan for.me.
So ask yourself! Where the heck possibly room for love here? When we are on the front line fighting the disease and corrupt to the bone medical system. That is heartless. They stuff us like turkey with drugs we dont need.
Others just look rob us in the medical office with an outrageous fees.
Naturapathic doctors are sure are more thorough . But they also charge 300-500$ per visit. And dont take health insurance. Or it does not cover their therapies because they are not approved. Therefore not medically necessary.
So you walk out from them with an estimate treatment plan of $20k to start with no guarantees. Ad that to a 20k estimate from a dentist to remove 8 mercury filings. And you really look at the sky and ask if god has a plan for.me.
So ask yourself! Where the heck possibly room for love here? When we are on the front line fighting the disease and corrupt to the bone medical system. That is heartless. They stuff us like turkey with drugs we dont need.
Others just look rob us in the medical office with an outrageous fees.
Well this is what they teach medical students now. Dont forget to ask if they think about sex. Slow death should be humane full of nucs and antidepressants. For maximun amount if money to the good doctor that write prescriptions as fast as vending machine.
Feel sad? How about paxil or zoloft. And hey take xanax right before you go to bed and more nucs. Develop resistance to one nuc? No worries. Well ad a second drug or put you on Truvada. And you have to never worry about hbv resistance man.
What now you need teeth done? 20k ? Hmm sorry if insurance wont cover cant help ya. But I can give you some Vicodin if your teeth bother you.
Interferon? What? That us how we used to treat you. Now is these better drugs!. Why dont you want to take Tenofovir? Side effects? What side effects? Research shows there are 0 side effects to tenofovir and no resistance.
Internet?! Dont read to what those crazy people write they have an agenda.
Your blood pressure is high! You need to be on medication. What entecavir caused it? No there is no proof of that. But take Tenifovir it is a nice safe drug.
Oops our appointment time is up. Keep doing good see ya in 3 months. Smile now take care by by.
Feel sad? How about paxil or zoloft. And hey take xanax right before you go to bed and more nucs. Develop resistance to one nuc? No worries. Well ad a second drug or put you on Truvada. And you have to never worry about hbv resistance man.
What now you need teeth done? 20k ? Hmm sorry if insurance wont cover cant help ya. But I can give you some Vicodin if your teeth bother you.
Interferon? What? That us how we used to treat you. Now is these better drugs!. Why dont you want to take Tenofovir? Side effects? What side effects? Research shows there are 0 side effects to tenofovir and no resistance.
Internet?! Dont read to what those crazy people write they have an agenda.
Your blood pressure is high! You need to be on medication. What entecavir caused it? No there is no proof of that. But take Tenifovir it is a nice safe drug.
Oops our appointment time is up. Keep doing good see ya in 3 months. Smile now take care by by.
Going and getting a sexual partner? Whoever put that post here clearly doesnt see that us as sufferers not due to stigma etc but more due to that we have been robbed for our health by hbv and big pharma is holding our health hostage.
I think if they wanted to do useful survey why don't they do a survey on " do HBV sufferers believe that powers that be are profiteering from our suffering" Now that would be a survey worth conducting and getting a good debate going to!
Yes Replicor has shown something curative and you want to conduct research on something irrelevant in comparison. If you want to help us conduct they study I suggested!
I agree with most of what Vet B said there
I think if they wanted to do useful survey why don't they do a survey on " do HBV sufferers believe that powers that be are profiteering from our suffering" Now that would be a survey worth conducting and getting a good debate going to!
Yes Replicor has shown something curative and you want to conduct research on something irrelevant in comparison. If you want to help us conduct they study I suggested!
I agree with most of what Vet B said there
Exactly. Most if us has sold or gave up almost everything to either pay for medication. Medical tests that health insurance does not cover and or to pay for better heath insurance that does not restrict how many and what kind of specialist doctor to see.
And I think medical students doing research for big pharma or other statistical think tank should write about that. That if society worries about the comfort of our life. And mental well being release the cure - cures for HBV now.
2017-2020 is a long stretch for us while their patents expire on most of the nuc drugs. So knowing this what is going on. Heaving experienced all this - how can our mental state be sane?
And I think medical students doing research for big pharma or other statistical think tank should write about that. That if society worries about the comfort of our life. And mental well being release the cure - cures for HBV now.
2017-2020 is a long stretch for us while their patents expire on most of the nuc drugs. So knowing this what is going on. Heaving experienced all this - how can our mental state be sane?
you said it all, most people are asking me to Marry now, whiles they don't know that I am selling almost all my things to go for interferon treatment.
We dont even think about that man. We are trying to stay alive. I have being alone now for 8 years. Tibetan monks philosophy was the answer for me. You just become fine by yourself.
We are being life and cure for HBV by big pharma mafia who sabotages all real research.and true cures. Write about that rather how we can better cope!.
There is no need to cope with HBV whe Replicor has aworking cure.
So heaving a relations is a second priority for us. We live in a survival mode. You can call it battlefield stress. Same thing.
We have to deal with idiot doctors that distribute big pharms drugs. Eugenicists health insurance companies that previously were refusing to insure us. So we had and received NO care or any help.
So please understand that in light of all this heaving sex is the last thing we think about. Especially when there are also bills to pay and we cant handle a full time job because we get tired quickly and employers have no.tollerance for that.
So its kind of like that. Life that is not life yet we want to live to see another day.
We are being life and cure for HBV by big pharma mafia who sabotages all real research.and true cures. Write about that rather how we can better cope!.
There is no need to cope with HBV whe Replicor has aworking cure.
So heaving a relations is a second priority for us. We live in a survival mode. You can call it battlefield stress. Same thing.
We have to deal with idiot doctors that distribute big pharms drugs. Eugenicists health insurance companies that previously were refusing to insure us. So we had and received NO care or any help.
So please understand that in light of all this heaving sex is the last thing we think about. Especially when there are also bills to pay and we cant handle a full time job because we get tired quickly and employers have no.tollerance for that.
So its kind of like that. Life that is not life yet we want to live to see another day.
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