I like being proactive. It would be hard to wait"
Unfortunately for you you are a lot like me. I just couldn't stand the thought of doing nothing and had decided to go for it even if I was stage nothing (unfortunately I was already a 3).
You do have time either way but one good feature of doing it now (not that I"m saying to - your decisioneither way) is with such minimal damage you just might be able to totally reverse it all the way down. It must be good just knowing you have a shot at it.
I wish I had found out years ago so I could have been in those shoes but unfortunately my lifestyle was just not ready for it anyway. It's a perfect combination of things that enable us to do treatment (well not perfect but tolerable I guess) good support group and family, insurance, job protection, etc. etc. and it sounds like you have them all in line.
Good for you. Either way stop watch and wait or go full guns blazing we are behind you 110%.
Mike, sounds reasonable to me. Man we have been guessing on here for a long time now. I just saw this old post on here the other day.
, Nov 29, 2006 12:00AM
To: music
sorry for your dilema but am real encouraged by your dr's feel that vx950 will be available next year. i have been given similar time frames. i am also stage 3 ,just finished tx and waiting 6 mo results. the news is encouraging on vx.
bobby
Hope all is well with you mike.
skersj, both drugs just started recuriting a phase 3 trial for us relapsers and nonresponders. Both of the trials arms are for 48 weeks and should all be started shortly after the first of the year. Then there will be the 6 month follow up.
Have the trials studied SVR rate on relapsers or non responders and if so do you know what they are? Another reason I don't want to wait is that I also don't know for sure if I will tolerate the new drugs and I don't want to wait just to find out I am back at square 1.
I have followed Telaprevir for a number of years and on the basis of the drug trials' results I think sometime in 2011 is a reasonable estimate. Of course, no one knows for certain but that would be my best guess.
Mike
Ha!Ha! SX ARE a SOB!! But I meant shortness of breath! I also don't want to leave the impression that I don't have other sx. My hair is thinning, my whole body is as dry as a desert, my face has aged, etc. It is just that those kind of things are not really bothering me because they are not life threatening. And thanks to the people here, I have learned about virgin coconut oil for dryness, Biotene mouth products, etc.
skersj....The worst sx are SOB
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Do i ever agree with that they are a sob... Oh maybe thats not what you meant. :-)
My hepo thinks with the new trials just starting, then the follow up, then the red tape dealing with the FDA were looking at 3 years at least before their on the open market... Good luck
cando