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Avatar universal

30 day test

The doc just called with the results of my 30day test and I am non responsive. Told me to quit tx. O well, it is better then going 48 weeks and it not working like last time.
What now, cowboy up and keep on keeping on.
He wants me to come in in two months, said he thinks he will have a new trial by then?
Thank you all for your help and understanding
Shayne
12 Responses
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Avatar universal
Shayne I am so sorry but everyone is right new stuff is coming so do your home work and watch!  They must have lost my viral load or the blood still waiting calling my 3rd doctor today! Then I file a complaint if they cant find out where my blood is.
Helpful - 0
Avatar universal
Before stopping meds I would get re-tested to make sure it wasn't a false pos or sample got contaminated. Heard of it many times.

I would use a new lab with most sensitive test available.

Best of luck
Helpful - 0
1747881 tn?1546175878
Sorry to here you didn't respond to treatment, UC Dever is actively involved in many trials as well as South Denver Gastroenterology.

Marcelo Kugelmas, M.D., FACP  

Dr. Marcelo Kugelmas was born and raised in Buenos Aires, Argentina. He received his medical degree with honors from the University of Buenos Aires. After his internship and internal medicine residency at University of Southern California-Los Angeles County Hospital in Los Angeles he went to Cleveland, OH where he completed gastroenterology fellowship at the Cleveland Clinic Foundation, and served as Chief Fellow in 1995. He then moved to Lexington, KY where he pursued further training in hepatology, liver transplantation, and advanced endoscopy; and remained there until 2000 as an Assistant Professor. He then moved to Colorado, where he joined the University of Colorado Liver section. Over the last 9 years Dr. Kugelmas' main focus has been on the care of patients with liver diseases. He became an Associate Professor of Medicine in 2004, before joining South Denver Gastroenterology. Dr. Kugelmas is a national lecturer on topics of chronic liver disease, has presented regularly at multiple gastroenterology, liver, and transplantation annual meetings, and has published over 20 papers in peer-reviewed journals.

Gregory T. Everson, MD, FACP
Professor of Medicine
Director, Section of Hepatology

Education
•Medical School: Cornell University Medical College
•Internship/Residency: 1976- 1979, Creighton University
•Fellowship: 1979-1982, University of Colorado School of Medicine

Honors and Awards
•Phi Beta Kappa
•National Institutes of Health Clinical Investigator Award, 1983 1986
•American Gastroenterological Association Research Award, 1983 1984
•American College of Physicians Teaching & Research Scholarship, 1983 1986
•Polycystic Kidney Research Foundation, Research Award, 1992-1993
•Best Doctors in America Award, 1999
•Fellow, American College of Physicians (FACP), 1999
•Fellow, American Gastroenterological Association

Faculty Appointments
•1982 to 1988 - Assistant Professor of Medicine, Division of Gastroenterology, University of Colorado School of Medicine, Denver, Colorado
•1988 to 1996 - Associate Professor of Medicine, Division of Gastroenterology, University of Colorado School of Medicine, Denver, Colorado
•1988 to 1995 - Director, Gastroenterology Fellowship Training Program, Core Director, GC/MS Laboratory, Hepatobiliary Research Center
•1996 to Present - Professor of Medicine, Division of Gastroenterology, University of Colorado School of Medicine, Denver, Colorado
•1990 to Present - Director, Section of Hepatology, University of Colorado School of Medicine, Denver, CO

Committees and Responsibilities
•1992 - Present  Training and Education Committee of the AASLD
•1995 - Present  Member of the Data and Safety Monitoring Board for the PBC Ursodiol Methotrexate Placebo Study (DSMB /PUMPS)
•1996 - Present  Board Member, American Liver Foundation
•1999 - Present  Co-Chair, Ancillary Committee, NIH-NIDDK 98-4 Hepatitis C Clinical Trial
•1999 - Present Steering Committee, NIH, HALT-C Clinical Trial
•2000 - Present  Exemption Committee, NIH, HALT-C Clinical Trial
•2000 - Present  Recruitment Committee, NIH, HALT-C Clinical Trial
•2002 - Present  Clinical Outcomes Committee, NIH, HALT-C Clinical Trial
•1999 - Present  Hepatitis C Caring Ambassadors
•1996 - Present  Executive Board Member, American Liver
•2002 - Present  American Society of Transplantation Awards Committee
•1997 - Present  Chairman, Transplant Outcomes Committee
•1998 - Present  Member of the Clinical Practice Committee
•1996 - Present  Chairman, Association of Transplant Physicians and Surgeons
•1999 - Present  Faculty Committee to Review Infrastructure Support for Clinical Research
•1991 - Present  Chairman, Patient Selection Committee for Liver Transplantation

Research Interests
Dr. Everson's Lab laboratory is interested in new and emerging therapies for the treatment of chronic hepatitis C and chronic hepatitis B as well as interests in Hepatitis C/HIV Co-infections.

James "Jay" R. Burton, Jr., MD
Associate Professor of Medicine
Medical Director of Liver Transplantation

Education
Medical School: University of Washington School of Medicine, Seattle, WA; 1993-97
Residency: Internal Medicine, Strong Memorial Hospital, Rochester, NY; 1997-2000
Fellowship: Hepatology, Strong Memorial Hospital, Rochester, NY; 2000-2001 and
Gastroenterology, Oregon Health & Science University, Portland, OR; 2001-2004
Board Certified: Internal Medicine, Gastroenterology and Transplant Hepatology

Honors/Awards
Peak Performer Award, 2009
Present at 7th Annual Rocky Mountain Hospital Medicine Symposium - Recognition in Excellence in GI & Hepatology
AASLD/Schering Advanced Hepatology Fellowship Award, 2003-04
Raphael Dolin Resident Research Award, Dedication to Patient Care, Critical Scholarship and Teaching, June 2000

Faculty Positions
2010-present, Associate Professor of Medicine, University of Colorado Denver
2005-2010, Assistant Professor of Medicine, University of Colorado Denver
Denver, CO
2004-05 Assistant Professor of Medicine, Oregon Health & Science University,
Portland, OR

Clinical Interests:

Dr. Burton is the medical director of liver transplantation at the University of Colorado Hospital. His clinical interests include management of complications of end-stage liver disease (variceal bleeding, ascites and liver cancer) and liver transplantation.

Research interests:

Dr. Burton's research includes retransplantation for recurrent hepatitis C infection and understanding how the immune system responds to hepatitis C virus infection with antiviral therapy and after liver transplantation. He is a coinvestigator on the Adult to Adult Liver Donor Transplant Cohort Study (A2ALL) and many trials of drugs to treat Hepatitis C.

Might be worth contacting them to see what they have available
Helpful - 0
1652596 tn?1342011626
so sorry for your news.  but you have a great attitude.  hang in there.  take good care of yourself.  there will be something in the future for you.  best wishes.  belle
Helpful - 0
317787 tn?1473358451
I am so sorry to hear the news.  I know how hard this is.  I relapsed the first time I did the 48 weeks SOC and it was very disappointing
Good for you to look at the bright side.  You do have a very good attitude.  As someone on here once told me, get healthy, regroup, get  your ducks in a row and then try again
Dr Dietrich told me that the first tx I did was very harsh, harsher then they expected.  He told me take a year to recover, get my soul and spirit healed and then try again, it was really good advise
My best to you
Dee
Helpful - 0
1654058 tn?1407159066
I join the others in applauding you attitude and hope for the next tx. Working hard to keep body in shape until then will only help you achieve an easier time with retreat. There is something out there for you. Take care and keep us posted.
Karen :)
Helpful - 0
Avatar universal
Thanks for the reply. Hang tough .I had a less than stellar result also and it takes a bit to process that fact for sure.

There  is so much in the pipeline as you are probably well aware ,so keep the faith.there will be something with even better efficacy  in the future .

Take good care of yourself ..proper.diet ,exercise  and obviously no alcohol..
Best wishes to you.
Will

Helpful - 0
1840891 tn?1431547793
What a bummer! I'm so sorry the drugs aren't working for you - how disappointing. You have a good attitude about it though, and yes, learning at 4 weeks is one heck of a lot better than going the whole 48 before learning! Been there, done that too, and didn't like it at all! Now I'm on week 32 of 48 and obsessing somewhat over whether it will happen all over again, so at least you are being spared that unnecessary torture. I hope the next drugs are the magic charm that works for you and that they work without so many sx.
Helpful - 0
Avatar universal
I am not sure what the viril load was, he will mail me the results. He told me over the phone buy I think I was just trying to process the news and did not catch it.
Helpful - 0
Avatar universal
  Sorry about this result. .What was the 4 week viral load if you don't mind sharing?
Will
Helpful - 0
Avatar universal
I am so sorry to hear this!!!! I was so proud that you bucked up when you needed to....and even more proud youre gonna get right back on that horse whenever possible!
If your doctor has a promising trial then I would take it. It is very exciting that in just a few years many new drugs will be available for everyone. Do not lose hope, take good care of yourself by eating well and staying hydrated with lots of water. take only meds and vitamins your hep doctor recommends .

I am so truly sorry that you had to go through all of this. Not only living with hcv , but the sides of the current meds can be torturous for some. Next meds won't be that bad sides wise so you can look forward to that! And since you did not get past the 30 days you all be saving yourself many side effects, shots and irratabilty. I know you would have preferred a UND right now, but in these situations I always like to find some positivity SOMEWHERE. without it, it is too easy to lose hope. And you have too many good things to ever give up hope!

We are all here if you need us:)

best wishes,
Laura
Helpful - 0
Avatar universal
Sorry to hear this my friend, but assuming you are on triple therapy, and the labs are not in error, cessation of therapy is the thing to do. Next step is re-group, read and learn even more, optimize the healthy lifestyle and go with new meds.  I failed my first therapy and am on my second.  Looks like you'll be on your third.  It's just another test on the journey and I applaud your strength of character.  All the best to you.

Wm
Helpful - 0
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