Aa
Any good news will be appreciated!!!
Just started treatment today and all I've read in this forum is horror stories thus far...can someone please let me know is they had a mild treatment with little side effects or am I just dreaming...
Thanks!!!
Thanks!!!
Tx. is not like doing recreational drugs...that's for sure!
:-)
But I didn't miss a day of work or give up doing one thing I enjoyed. Maybe I was just lucky but I made it thru fine. There are many others like me. Hang in there and start off with a positive attitude. I think that helped carry me thru.
Good Luck to you.
:-)
But I didn't miss a day of work or give up doing one thing I enjoyed. Maybe I was just lucky but I made it thru fine. There are many others like me. Hang in there and start off with a positive attitude. I think that helped carry me thru.
Good Luck to you.
I just read your post again ... and read the thread Marc started. And I think you want us to tell you that you could breeze through this. And you could. It seems like maybe you didn't find out about the difficulties you might face on treatment until you came to this forum. Am I reading that right? I'm curious what you DID know about treatment before you started as I've seen alot of people on here who got their diagnosis and were rushed into treatment without really knowing what they were getting into and what their options were.
Or maybe you're having a case of the nerves. If that's what you're experiencing .. well, I'll tell you that compared to some my treatment has been relatively good even though it hasn't been easy. What I've learned is to educate myself as much as possible on the potential side effects and what can make them easier to deal with. The fatigue will take you down if you don't get enough rest around doing the things you MUST do and that are important to you .. and alot of people here are successfully managing the side effects even the tough ones with various strategies and a whole lot of mental toughness and support where we find it. I started into this deciding that my main support HAD to be myself or I was dead in the water. That's my own approach. And as you go along and have to deal with various things.. and you WILL have to deal with various things...there will be many others here who have also had to do the same and will have good information to share with you.
Take it a piece at a time and don't let the overall length of your treatment overwhelm you. Just take it a milestone at a time.
Good luck, David .. hang in there.
Trish
Or maybe you're having a case of the nerves. If that's what you're experiencing .. well, I'll tell you that compared to some my treatment has been relatively good even though it hasn't been easy. What I've learned is to educate myself as much as possible on the potential side effects and what can make them easier to deal with. The fatigue will take you down if you don't get enough rest around doing the things you MUST do and that are important to you .. and alot of people here are successfully managing the side effects even the tough ones with various strategies and a whole lot of mental toughness and support where we find it. I started into this deciding that my main support HAD to be myself or I was dead in the water. That's my own approach. And as you go along and have to deal with various things.. and you WILL have to deal with various things...there will be many others here who have also had to do the same and will have good information to share with you.
Take it a piece at a time and don't let the overall length of your treatment overwhelm you. Just take it a milestone at a time.
Good luck, David .. hang in there.
Trish
I worked each day at a physical job, had to PUSH myself each morning to get in the shower. (Until the Procrit kicked in) By the time I got out the door it was 3 hours later. Once I left the house and got on the road to see my accounts I was feeling better.
What you mostly read here are the people who are having bad sx's. It doesn't mean they all will happen with you. As some sx's come others go, or you may not have any at all, just that flu type feeling and being tired. It changes throughout the course of tx. Everyone is different.
What you mostly read here are the people who are having bad sx's. It doesn't mean they all will happen with you. As some sx's come others go, or you may not have any at all, just that flu type feeling and being tired. It changes throughout the course of tx. Everyone is different.
David - in my experience you can hope for the best but you need to be ready to roll with the punches if things are not so easy. I'm in pretty good health and when I started out, I didn't have any sx's at all. Then I got a few. Then I got more and they were pretty debilitating.
I was surprised at how rough the treatment was turning out to be around the 10th week. When I spoke with my NP and my pharmacist, both of them said, "Oh well, that's pretty typical." So in many cases the treatment can be very challenging at moments.
My best advice is to be ready to roll with the punches. You may have to adjust the way you:
eat
sleep
poop
wash
interact
sleep
sleep
sleep
It will be better once you make the adjustments, but it can be a bit of a shock to your existing routines.
Good luck!
I was surprised at how rough the treatment was turning out to be around the 10th week. When I spoke with my NP and my pharmacist, both of them said, "Oh well, that's pretty typical." So in many cases the treatment can be very challenging at moments.
My best advice is to be ready to roll with the punches. You may have to adjust the way you:
eat
sleep
poop
wash
interact
sleep
sleep
sleep
It will be better once you make the adjustments, but it can be a bit of a shock to your existing routines.
Good luck!
I "copy" copyman. Alot of people aren't posting their good days in here, they're posting when they need advice on how to deal with the rough times. A number of us are and have worked fulltime and while it's not easy, we've found our coping methods including the support of this forum.
I also like l-horn's advice .. it's different for everyone but we ARE doing it. You can too. You're already posting to get the help you need to deal with it and that's a great start. Nobody understands this quite the same way as other people going through it and I know you'll find good support here, just like the rest of us did when we were heading into this.
Good luck with your treatment, David.
Trish
I also like l-horn's advice .. it's different for everyone but we ARE doing it. You can too. You're already posting to get the help you need to deal with it and that's a great start. Nobody understands this quite the same way as other people going through it and I know you'll find good support here, just like the rest of us did when we were heading into this.
Good luck with your treatment, David.
Trish
Keep in mind that most people on internet forums are seeking help and that is why you read the "horror" stories here. There are many more people that have minimal side effects with the treatment that don't need to come on internet forums. Good luck
im on week 7, its not as if its a breeze, 2 days a wek you will feel a bit fluy. aftr that those sides go away, im got panic aattacks now. but nothing to worry about, it all comes down to you and how you deal with it, couple a mths feeling a bit crappy, or a life that ends shorter than it sould, we togeter can beat this. friend me an since im a few weeks ahead, i can help you all i can , almanu
thinkn positive and positives will happen
god bless alan
thinkn positive and positives will happen
god bless alan
hi, i'm a teen and i started treatment recently. my PA just called and i asked for my viral count and she told me i was UNDETECTED! it's been like 12 wks so far. not too bad i feel pretty normal actually. but everyone responds differently. just get it into your brain that treatment is the right choice and you are on your way to becoming hcv Free!
best of luck!
best of luck!
Great advice Michelle! I haven't started treatments yet, but that's the common thread I have heard from everyone - to keep a positive attitude.
I have learned so much from this forum. What a God send.
Take care.
I have learned so much from this forum. What a God send.
Take care.
Everyone describes them differently and have different levels of varous side effects as well as different levels of tolerance. I'll tell you what I tell everyone in your position:
If it was that hard, no one could do it.
People do it. All the time. You are a people. You can do it.
If it was that hard, no one could do it.
People do it. All the time. You are a people. You can do it.
I'm a 1a'er and treatment was tuff at times but not unmanagable unless I was doing it alone, then I would not have been able to complete the 48 weeks. There were good days were I could go for a walk and then there were bad ones were the toilet was a excurtion but, "it was not half as tuff as gettin it" THATS MY QUOTE so everyone leave it alone.
Harry
Harry
the younger you are, the less other health probs you have, and the grade/stage of your liver all play factors in how well you do on tx.
I had a leaking Gall bladder causing infection at the start of tx, so my start was rocky, but I have had many "mild months" (by comparison) since resolving that issue.
Most folks treating are older right now, being it's only recent that docs are doing more screening, or that symptoms ignored for 30 years become unmanagable and patients go searching for a real answer.
So the cross section of folks in general does not reflect what your tx may be like.
Also the folks in here are communicators....they are writers, and give great detail, something you don't see in all forums, and so aain, you are reading the worst case scenarios.
The good thing about that is, whatever happens, you'll be prepared, and know when to involve your docs, and where to get more advice and info. The down side is you have to just brace yourself against too much worry. Even the worst of my symptoms, and they were many, passed with time, and/or proper helper meds.
Best thing is to just take one day at a time. Worrying about what might go wrong tomorrow never helped anyone stay well.
Good luck with tx.
mb
I had a leaking Gall bladder causing infection at the start of tx, so my start was rocky, but I have had many "mild months" (by comparison) since resolving that issue.
Most folks treating are older right now, being it's only recent that docs are doing more screening, or that symptoms ignored for 30 years become unmanagable and patients go searching for a real answer.
So the cross section of folks in general does not reflect what your tx may be like.
Also the folks in here are communicators....they are writers, and give great detail, something you don't see in all forums, and so aain, you are reading the worst case scenarios.
The good thing about that is, whatever happens, you'll be prepared, and know when to involve your docs, and where to get more advice and info. The down side is you have to just brace yourself against too much worry. Even the worst of my symptoms, and they were many, passed with time, and/or proper helper meds.
Best thing is to just take one day at a time. Worrying about what might go wrong tomorrow never helped anyone stay well.
Good luck with tx.
mb
Welcome to the forum and good luck with your treatment. I just took shot #12 tonight and from what I can tell is everyone is different. I expected treatment to be a total nightmare but honestly it hasn't been too bad. Of course I have the "normal" flu like symptoms, fever, sore throat, ect. but Advil help that. I am getting ready to go down to part time at work because I am constantly exhausted and just not getting enough rest. Like everyone that's treating, I've had good weeks and not so good weeks but I really think alot of it is in your attitude too. Try to keep a positive attitude and surround yourself with positive people and things as much as possible. Listen to your body!!
Good luck and keep us posted on how you are doing.
Michelle
Good luck and keep us posted on how you are doing.
Michelle
This is my second tx first was very ruff 24weeks not one more day I was thinking in the end and never again, but relapsed and after 10months started again have done 37 of 48 weeks now.
This time much easier, though more medication.
What i have learned from first tx is to rest as much as possible and awoid stressing because its like you have no spare energi left and its when you have exhousted your self its gets terrible.
We are all different but for me its much easier if I can be by my self alone as much as possible could be very pleasent in fact.
Slow down when out walking take the time to stop and stand or sitt still often, listen to your body if you do i think you can have lot of good moments even on treatment I have.
After 3-4 months post first tx problems I`ve had for years such as lowerbackpaine, headache, nausea, sever fatigue.joint bone and muscel pain, insomnia coughing and other stuff i have had for decades went almust totally away.
Had now idea those problems was HCV related until I´d come to this forum and read about people how was going to the doc for simular problems and then discovered they had HCV and have had it for a long time.
Those problem got about 10times worse during first tx (treatment) but it was all worth it because as i said after 3-4months hasn´t felt better both physically and mentally in 25 years ( been infected 35 years).
And most importent of all i didn´t have this forum at the first tx .
Good luck with your tx
ca
This time much easier, though more medication.
What i have learned from first tx is to rest as much as possible and awoid stressing because its like you have no spare energi left and its when you have exhousted your self its gets terrible.
We are all different but for me its much easier if I can be by my self alone as much as possible could be very pleasent in fact.
Slow down when out walking take the time to stop and stand or sitt still often, listen to your body if you do i think you can have lot of good moments even on treatment I have.
After 3-4 months post first tx problems I`ve had for years such as lowerbackpaine, headache, nausea, sever fatigue.joint bone and muscel pain, insomnia coughing and other stuff i have had for decades went almust totally away.
Had now idea those problems was HCV related until I´d come to this forum and read about people how was going to the doc for simular problems and then discovered they had HCV and have had it for a long time.
Those problem got about 10times worse during first tx (treatment) but it was all worth it because as i said after 3-4months hasn´t felt better both physically and mentally in 25 years ( been infected 35 years).
And most importent of all i didn´t have this forum at the first tx .
Good luck with your tx
ca
just think positive, drink ur wtr and its not the end of the world or u... what is ur grade and stage... iam 1a and 2 and 2 and iam a relapser of course, but alot of great or great support here on the for people forumn.
David,
Everyone here has had different side effects, some treating will probally post that they aren't having such a bad time and that is true for some. Others have had their share of side effects. My best advise would be to take each shot and see what happens, You may get by with mild sides. you should have some things on hand. i dont believe in buying the entire drug store, but advil and goldbond is something you may want to have at home.
Good luck to you.
keep posting...
peace
rita
Everyone here has had different side effects, some treating will probally post that they aren't having such a bad time and that is true for some. Others have had their share of side effects. My best advise would be to take each shot and see what happens, You may get by with mild sides. you should have some things on hand. i dont believe in buying the entire drug store, but advil and goldbond is something you may want to have at home.
Good luck to you.
keep posting...
peace
rita
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