post side effects of hep-c tx

[toothfairy1215]

It has been a long time since I have posted anything. I am not telling anyone not to treat so please dont judge me. I was unable to finish my treatment due to low blood counts. My Doctor I think did not care about the side effects, I ended up in the ER, and my counts were so low I had to go to oncology to get my counts up. I felt like death. I am in remission, and just did my blood work to make sure I am still in remission. This has me worried sick. I hate the stigma, that comes along with Hep-c. I have alot of side effects and I am wondering if I will ever be the same. I have severe bone pain, memory loss, dry skin, fatigue, problems sleeping, and was told I have fibromyalgia. I used to be really smart I cant consentrate, or spell words that I know. I am so insecure of my marriage of 25 years. I have reported my side effects to the FDA. I want to know if there is a difference between interferion, and pegasys. When I was on the pegasys thats when I went down hill 5 shots almost took me out.  Please if anyone can help me figure out what went wrong I want to know, again please dont judge me.

[SteveOC]

I am 3 months post Tx from a Vertex quad therapy trial. I have all your symptoms lingering on since Tx ended but not quite as severe, plus this eye thing going on as well making it a hard road I've traveled also.
       Prior to Tx I was relatively fine and had NONE of these symptoms at all I don't know exsactly how to digest it all but all in all I probably wouldn't have entered a trial had i really looked into it better.
       I am managing along ok on a daily basis and things are improving albeit very slowly. Is it solely the interferon/Pegasys responsible? The trial drugs? I don't know... **** nobody knows the answers or are at least not very forthcoming about giving a hoot about doing something about it.
      Personally I will wait for an interferon free Tx unless my circumstances become dire. I am Geno type 1a early stage 2 fibrosis...

[willbb]

Like Tashka ...would just like to offer my support and say sorry about the way you are feeling. Certainly nobody here is going to judge you,for having post treatment problems. One might say the answer to that is to put your post on another thread,.I doubt that will make you feel much better and also like Taska I don"t have any solutions other than the simple and obvious...has your doc checked all your blood levels to see if they are normal,as interferon can send things way out of whack sometimes I Realise that is a simplified solution ,however sometimes the docs miss many things.
Also ...it may be as others have  just posted that think   some of ytheir symptoms may be HCV related as well as the effects of the meds...so I hope in the end you will be able to treat again and rid yourself of the virus.

Good luck
Will

[DoubleDose]

You might want to take a look at the thread titled: Long Term Side Effects Thread, for all...
Its been pretty active, and might be a better thread for you to document the differences in your body and function from before your tx, and after.  

DoubleDose

[tashka]

Nobody is going to judge you. There is nothing to judge. We are all in the same boat here. We are all touched with this disease one way or another. People on this forum understand that treatment for hepatitis C is often difficult on the patient, and not everybody can tolerate and successfully complete it. And of course there is no stigma here. Thank you for sharing your experience the way it is.

I am sorry that you are having so many problems post treatment. I can not offer any solutions, but just want to say that you are definitely not the only one experiencing these symptoms. I am sure other people will respond and share their experiences. I wish you SVR and hope that you feel better soon.