Hepatitis C Community
Burning Tongue
About This Community:

This forum is for questions about medical issues and research aspects of Hepatitis C such as, questions about being newly diagnosed, questions about current treatments, information and participation in discussions about research studies and clinical trials related to Hepatitis. If you would like to communicate with other people who have been touched by Hepatitis, please visit our new Hepatitis Social/Living with Hepatitis forum

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Burning Tongue

Okay...this is not even mildly humourous anymore.  When my tongue first started burning, I thought it was freezer burn from eating ice cream.  Obviously, now that weeks more have passed, that's not the case.  I kid not..my tongue stings all the time and it is so painful.  I hate the litocain.  It seems worse to not feel your mouth at all!  I have 5 more weeks to go.  Is there any chance this tongue thing will go away?  
Related Discussions
14 Comments Post a Comment
Blank
Avatar_f_tn
There's only 2 things I know that cause this frequently while on hep c treatment...An oral fungal infection (like thrush) or a folic acid/ B-12 deficiency...Is your tongue bright red or have a whitish coating? Are you anemic? If it's fungal in origin, a simple mouth swish of a mixture of a children's thrush syrup, lidocaine, and Maalox (or just get a prescription of "Magic Mouthwash") and supplying a source of acidophilous (yogurt, capsules, etc) daily to your body...If it's a vitamin B deficiency, a high potency B complex vitamin will work, but it will take 1-2 weeks... Hope this helps!                             ~Melinda
Blank
Avatar_f_tn
My tongue is bright red and does have a whitish coating.  My mouth is always really dry!  Literally I need fluids on hand at all times.  My throat constricts and I have lumpy nodules at the very back of the tongue.  I do have lidocaine...in fact I'll swish some now but I don't like the totally numb feeling.  You know you take something for a side effect and you get another one.  I am anemic and I also have hypothyroidism.  Maybe this has something to do with it.  Right after it started my TSH shot to 46.  They've given me synthroid for that.  You know the bottom line is...I just have to deal with all of this.  I never thought I could feel this bad.  This interferon/ribavarin is obviously some really toxic stuff.  I hope everybody gets rid of their Hep C and that none of us have to ever go through something like this again.  This treatment is only for the Brave at Heart!! :) Thanks, my name is Monica.  
Blank
Avatar_m_tn
Stevia herb used as a mouthwash works.
Blank
Avatar_m_tn
not exactly sure what it is but i have read that pharmasist can make something they call "magic mouthwash" that works wonders. maybe someone else can elaborate more on this.
Blank
Avatar_f_tn
Thany you!  So many people have mentioned Magic Mouthwash.  I'm going to look for it this morning.  
Blank
Avatar_f_tn
have your drs. considered maybe it is thrush
Blank
Avatar_f_tn
HI.MY DR.TELLS ME TO KEEP LEMON DROPS IN MY MOUTH THET HELP,ALSO ANYTIME I AM ON A ANTIBIOTIC I GET ORAL THRUSH,I USE A MED,IT IS A SWISH AN SWIRL,ALSO DIFULCAN,CLEARED IT UP IN ONE DOSE.HAVE LOZENGERS CALLED CLOTRIMAZOLE YOU LET THEM MELT IN YOR MOUTH.HOPE THIS IS HELPFUL
Blank
469210_tn?1219191728
Hi guys:

Magic Mouthwash was developed originally for cancer patients who develop sores and blisters inside their mouth. It is a mixture of Comfort Gel, Lidocaine, and Q-Dryl. (don't ask me what q-dryl is).  For me, WITH insurance, this medicine is $49.00. Yikes.  I have now asked my doctor to prescribe Lidocaine, and I will make my own. Supposedly, you use Maalox, Childrens liquid Benadryl and the Lidocane, but I don't know how much of each. I'll look it up when (if) I need to.  Now that I'm going back to work in Sept., I hope and pray so hard that these sores don't come back because it hurts and I look like a monster.

Also, if a person is a Herpes Simplex carrier, it can manifest itself while on tx. Even if you don't have outbreaks. This tx greatly comprimises our immune system.
Blank
Avatar_f_tn
I had the same thing start a while back.  I finished tx Friday night.  I've been using regular mouthwash several/many times a day/evening and that seems to help me.  I'm thinking maybe in a month I'll notice a difference.  It has bugged me but I got used to it, I guess.
You are close to the finish line.  Hang in there!
Blank
179856_tn?1333550962
Nothing really worked for me and I had the tongue bumps pretty bad.

The great piece of news is not even two weeks after my last interferon shot it just magically up and went away!  So have hope.........you will make it even though it's a major pain in the neck (haha right)

My thyroid went about week 24 or so.......first went extremely hyper then extremely hypo (this is a very common thing to happen).  I already had the bumps though so I really don't think it has anything to do with that at all.

The doctors told me it's a reaction to the interferon so as you know that doesn't last in our bodies longer than a week...hang in there.......it will be over soon and they do NOT come back (thank God thank God thank God I can actually eat spicy food again!)

Good luck.

Blank
Avatar_m_tn
Great news you are almost finished.
      But I had that burning tongue thing and was lucky enough to find something that worked. What I used was CARAFATE SUSP its very cheap and has been around forever. It is used for stomach ulcers and you need a prescription. So get your md to write Carafate Susp 8oz Sig: Use two tablespoonfuls in mouth swich for 1-2 minutes and then swallow as needed. After a day my tongue was improving. I never thought it would work.
     Red
Blank
189269_tn?1189759425
My understanding  from what I was told is the TX medicine allows the natural bacteria and yeast grow out of control, and one of the ingredients in the mix is an anti fungal.
Blank
Avatar_f_tn
Will  the burning go away when I'm done with my treatment?
Blank
4950316_tn?1394188185
Hello. wrelcome to the forum.
This post is 6 years old. I doubt anyone is still around.
If you have a querie, it's best to post it as a new question using the little brownish ovl box at the top of the page that says 'Post aq Question'.
Good luck.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Hepatitis C Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Hepatitis Answerers
1815939_tn?1377995399
Blank
pooh55811
Avatar_f_tn
Blank
nan535
Brooklyn, NY
446474_tn?1404424777
Blank
HectorSF
CA
Avatar_f_tn
Blank
Livelife777
683231_tn?1408489117
Blank
flyinlynn
Auburn, WA
Avatar_f_tn
Blank
dontworry_behappy1