Daughter newly diagnosed

[nerak124]

My 21 year old daughter was just diagnosed with Hepatitis C this past Monday. We have an appointment with a gastroentrologist/hepotologist in 2 weeks (the earliest we could get). As parents we are very worried. So far only a blood test was done and the doctor said he could feel that her liver was enlarged. She was in detox when diagnosed. (October 2009 she also spent a few days in a detox program and did not have this then) Can someone tell me what questions should we ask? What can we expect from this visit? Reading things online I see there is acute and chronic Hepatitis C. What is the difference? Are there any parent support forums?

[willbb]

Sorry to hear about the anal irritation thing you have going on...that doesn"t sound like fun,,it was when I read   ' SEVERE  anal pain".... well severe anything in medical terms can be a little scary sounding, hence asking for some clarification.

WILL!

[GSDgirl]

Maybe the horns that grow out of your a$$ cause the pain.  copied from a post on social side.

[nygirl7]

Never ever heard of it before but I guess even here it's not the kind of thing people like talking about that much. Odd for so many poop threads and the oddities we have here ;)

[lapis]

I looked back at my papers from the tela study, and here is what is written as part of the consent:

The types of side effects seen during the earlier studies with telaprevir are very similar to the types of side effects seen in people who are taking PEG and RBV, without telaprevir.  Skin side effects (rashes and itching) were more common and more severe in people who took telaprevir with PEG and RBV.  Gastrointestinal side effects (nausea, vomiting, diarrhea, anal irritation) and anemia were more common in the people who took telaprevir with PEG and RBV.  

Since I personally experienced the anal irritation (lucky me!), I figured that's what he was talking about.  Hope this is helpful.  

Lapis

[GSDgirl]

Well???  The study?

[nygirl7]

Yeah but honestly nobody on here has ever heard of this side effect EVER before and I would think a lot of the people in here were amongst the first to be involved in the trials.  It doesn't sit right and I too would like to see this information in print to see how many study subjects this particular side that we never have heard of has happened to?