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186606 tn?1263510190

Dr. Gish says maybe we can shorten treatment

Interesting development and quite surprising.

I was contacting Dr. Gish about studies for co-infected non-tx-naive sufferers yesterday  for a friend of mine on the boards and he had one of his MDs do the research. They are not doing at CPMC, sad to say.

Also, at the same time, Dr. Gish asked me to keep in touch more oten, so I sent him an email with my current status, all details. I believe he and my internist had spoken regarding the delusions issue a couple of weeks ago.  I also asked him if it would be possible to shorten treatment based on my acute illness, VL never greater than 42,000 and so on.

His response was to thank me for my update and also this
"we can definitely shorten treatment if your side effects continue.
Let us discuss q. four weeks"

I hate the treatment, although I'm not sure how to react to this. Is he giving me what i want?  What is the algorithm here? Part of me is overjoyed and part of me is going...is this a side effect "give up"?

I hope ya'll don't mind me posting this today....it is a tough day on the board, but I wouldn't mind opinions, especially JMJM and his cohorts (wise experienced sages).

I'm so weird, i know.

Deb
34 Responses
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186606 tn?1263510190
Eric, I'm serious.

Do we have each other's email?

Deb
Helpful - 0
217229 tn?1192762404
You guys - That's awesome! being on tx - to and for each other.

I'll try really hard to check in on youse everyday!

Meki
Helpful - 0
220090 tn?1379167187
Deb

Is sure would!!  Are you serious?  I will do it.

Eric

Dointime: thanks for that information.  Waiting until November is sounding like a great option.
Helpful - 0
186606 tn?1263510190
thanks, i felt helpless and thus my weak statement on downside.

eric, i'll try and hang in until 36 if you will...

deb
Helpful - 0
Avatar universal
The lack of data is crazy making for all the Prove people still treating who are desperate to stop the meds but equally desperate to get to SVR.  Until that data is forthcoming, a compromise based on the Drusano study might suffice, ie. you go a duration of 36 weeks after becoming UND for a 90% chance of SVR.  The Drusano study was based on SOC tx only but it's all the guide there is till we get more from the November conference.  

Sorry to hear you are feeling so poorly.  That VX is mean stuff.  

dointime.      
Helpful - 0
186606 tn?1263510190
that's the downside of trials and data.

Eric, if we wait until November together, will that help?

deb
Helpful - 0
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