Aa
Enlarged spleen?
Hi all! I haven't posted recently so to catch you up....I was in the IDEAL study. Completed 48 weeks, but reduced interferon dose in week 24 due to low platelets. Relasped between week 24 and 48 (continued to week 48 of treatment because they did not tell me that I relapsed). I'm waiting for new PI study for nonresonders but in the meantime my GI noticed enlarged spleen (duh! low platelets probably due to this and not interferon). Since then I've had a CT scan, endoscopy, and biopsy with no conclusive results. I am F2 and evidently (per GI nurse) this level of fibrosis and portal hypertentsion contributes to enlarged spleen but not to this extent. Have any of you had a similar situation? What is next with regard to testing? Any thoughts? Thanks to all for keeping this board alive and informative!
MY MOTHER AGE 48 IS FACING SAME PROBLEM FROM TEN YEARS AND WE DID BONE MARROW AND IT WAS OKAY.
NOW WE ARE GOING FOR OTHER TESTS.
WHATS THE EXACT MEDICINE OR IS THERE ANY OTHER TREATMENT TO CURE IT COMPLETELY.
NOW WE ARE GOING FOR OTHER TESTS.
WHATS THE EXACT MEDICINE OR IS THERE ANY OTHER TREATMENT TO CURE IT COMPLETELY.
LoL... this has been an interresting thread...
Chev... I found it again... it's in the very bottom one.. under "hepa b indicator" it's up to a little over 800 now, & no it's not entire "site" views... it's views on that thread only!
I'm gonna look up that thread we had 300+ post on that time & see how many views it got... had to be a couple of thousand!
:)
Chev... I found it again... it's in the very bottom one.. under "hepa b indicator" it's up to a little over 800 now, & no it's not entire "site" views... it's views on that thread only!
I'm gonna look up that thread we had 300+ post on that time & see how many views it got... had to be a couple of thousand!
:)
fishdoc: you're not suggesting self-abuse? i rammed mower into clothesline post-how's my driving?? now steering has become problematic,what with my diminished skills & the mowers mind of it's own-give me an acre and i'll turn this rig around"..
coast is a twisted ,bitter ***** who likes v prickly banter & stoops to whatever level to get in your craw...we blindsided w/ concern last time he/she appeared and made some small progress,but it is tiring,stressful & ultimately fruitless engagemnt...The only good that comes from his posts:rallying support & a circling of the wagons!
coast is a twisted ,bitter ***** who likes v prickly banter & stoops to whatever level to get in your craw...we blindsided w/ concern last time he/she appeared and made some small progress,but it is tiring,stressful & ultimately fruitless engagemnt...The only good that comes from his posts:rallying support & a circling of the wagons!
tells me.......how about a coin purse?? Perhaps a childs bolero??
WOW a coin purse? with little beads and all! wouldn't i look cute carring that around. And just because my IQ is that of a childs, i think a childs bolero would be a tad bit small.
WOW a coin purse? with little beads and all! wouldn't i look cute carring that around. And just because my IQ is that of a childs, i think a childs bolero would be a tad bit small.
Mike, I agree 100%, thats why I have never engaged. personnaly, i think its a teen with a lot of angst that just goes to sites to vent........not even a hepper in my opinion
can man.... jee after fisheress and frioles problems, I hate to say this, but how about a coin purse?? Perhaps a childs bolero?? Those are real in these days....
can man.... jee after fisheress and frioles problems, I hate to say this, but how about a coin purse?? Perhaps a childs bolero?? Those are real in these days....
If everyone could manage to ignore his/her posts it would be better. Jerks like that thrive off controversy and friction but without it they wither away in time. I wouldn't think of dignifying that creep with a response. Furthermore he/she is so boringly unintellegent and unimaginative that it's just trite. That's my take. Mike
great!!! i'm lost at the top & bottom-tit twisting surgeons,leather jackets,jim's talking to himself......forgettabout it-has deano been here w his bong?...speakin of which,what a summer for all things green-garden is blooming,trees are booming and my lawnmower is taking a beating
Hey mike and chev lets just not gloss over this leather jacket i was hoping to get from fishdoc.
OK, the surgeon is really a good guy, we just have a wierd sense of humor out here..... I thought it was funny, even at the time, but the sawing and pulling... I was gettin a little light headed...
I admire your restraint fishdoc. Were I in your place when the doc said that about your boobs I would have likely grabbed the scalpel and cut that F'ers throat. I admire you for being able to handle that so gracefully but I would not have been that cool. I'm not saying that I definitely would have cut his throat but I assure that I would have at least said something vulgar and disparaging to him - without a doubt. I hate the guy and I don't even know the c'sucker. Mike
tx is so rough, its really sad the only thing you can think of to beat is your lawnmower...........;)
man, its getting nasty up top, spaceghost needs to take a dirt nap and put us out of his misery...
man, its getting nasty up top, spaceghost needs to take a dirt nap and put us out of his misery...
the second babe was only 11 hrs labor and she was exactly 8lbs and 22 in, started breastfeeding during recovery! No drugs, it was too late by the time I chicken out!
what counter? I vaguely remember it, where is it now?
what counter? I vaguely remember it, where is it now?
Haa, Haaa... I see you've got out your camcorder again...LoL
Hey I found the counter... (looks like threads got moved around or maybe it temporarily lost connection) but wow that's a bunch of views..
BTW....I was crackin up at the thread ya'll posted in today...
& to think I only went thru a mere 22 hours labor... as per leather... thinks I'll stick to the four legged brands!
;)
Hey I found the counter... (looks like threads got moved around or maybe it temporarily lost connection) but wow that's a bunch of views..
BTW....I was crackin up at the thread ya'll posted in today...
& to think I only went thru a mere 22 hours labor... as per leather... thinks I'll stick to the four legged brands!
;)
Sorry about the outbreak but hey, sounds promising with the
roofer :) Do let me know what the derm says tomorrow.
As suspected, redness and additional pimples emerged coming off the topical steroids so f*ck u to dr. f*cku :) Trying to add a little hydrocortisone 1% to wean off them but frankly I have no idea what I'm doing at this point. From what I'm reading, the best way to knock the rosacea erruptions down and/or wean from sterioids is a course of oral antibiotics, usually tetracycine. I know tetracycline isn't great for the liver but have you taken it? I'll discuss with my gastro later this week but if he gives the green light, I'll probably do it unless the rosacea erruption goes down.
We're only halfway down the tread (50 posts per thread) so let's leave it here for now.
-- Jim
roofer :) Do let me know what the derm says tomorrow.
As suspected, redness and additional pimples emerged coming off the topical steroids so f*ck u to dr. f*cku :) Trying to add a little hydrocortisone 1% to wean off them but frankly I have no idea what I'm doing at this point. From what I'm reading, the best way to knock the rosacea erruptions down and/or wean from sterioids is a course of oral antibiotics, usually tetracycine. I know tetracycline isn't great for the liver but have you taken it? I'll discuss with my gastro later this week but if he gives the green light, I'll probably do it unless the rosacea erruption goes down.
We're only halfway down the tread (50 posts per thread) so let's leave it here for now.
-- Jim
In no particular order ...
Sounds like you're making progress and from what I've read you've got to kiss a lot of medications to find the princely one, which may be not be the same for everyone.
Cetaphil -- I feel the same way since I've been using water on my face very day since I was born. However, washing with Cetaphil without water seems very calming on skin and leaving a thin film on acts as a protectorant/moisturizer. I did that for practically a week and finally sort of got used to it. Now, I use water once a day -- at night -- to get the blue lizard sun block off easier but might use cetaphi w/o water during day. You should try it that way a couple of times.
Baby Blankets -- What are they made of and where exactly do you get them?
Shampoos == Your hairdresser seems on same page with dr. fucku (he wants me to use neutrogena regular) and I did find the antifungal or tar shampoos irritating on face -- however, probably will use on scalp now and then since scalp is thicker and they never irritated there.
Welts under eyes -- Can you describe yours ? Which me it's like bags under eyes that make me look like ten years older when they are there. Thought it was part of the aging process but now they're gone completely, not sure if the cortisone or what. I thought allergies, fluid retetention or some sort of inflammation from seb derm or rosacea. Not sure. BTW they can be reduced by putting a moist tea bag under the eye or refrigerating a spoon and press the back end against the areas puffed up. Boxers use the latter, starlets the former.
Atopic/allergic derm -- Looked at some pictures and possibly I have atopic as well but almost certain I have seb derm, sebopsoriasis as well as rosacea. One derm said the skin doesn't know these different names and he has a very good point -- we often have a mixture and hard to know where one ends and the other begins, except with rosacea where the lines may be more fixed. My roaacea appears mostly on nose and upper cheeks although sometimes my whole face gets red -- not sure if this is: (a) more diffuse form of rosacea; (2) sun sensitivity from rosace and/or riba; (d) inflammation from seb dermatitis. Unfortunatly, I haven't found anything exactly corresponding in the pics i look at on the internet. Most rosacea pictures are of very fair skinned celtic folks and the red is therefore very defined and prominent with pimples. My skin is more mediterranean (darker) and other than a piple or so on nose, no pimples on rosacea places. Do you have normally pale skin?
My condition when at worst: Dry and quite noticeable flaking on top of head and forehead and a little on face. Face redenened and "raw" quite diffuse but more prominent on nose and top cheeks, the rosacea areas. Chest redened/raw in sabaceous areas and itches like crazy as well as face. I also had the redened seb derm under armpits and in groin but earlier in treatment. Also a small raised plaque under each eye which is probably psoriasis which is why my diagnosis is sebopsorisis (psoriasis combined with seb derm) and rosacea. In case you forgot during treatment (fortunately resloved) my entire body was covered with guttate psorisis and feet and hands with plantar pustular psoriasis (in addition to the seb derm) At one point feet so bad I could hardly walk. Because of the guttate and plantar pustular, I paid little attention to the seb derm, thinking it was a riba reaction and would disappear when the drugs stopped. (maybe you can see why I'm so "pro" treatment LOL -- it really was hell for me -- go take a look at some pictures of plantar pustular and guttate psoriasis if you want to get sick)
Currently after 8 days steroids: face and chest 90% better with some rosacea redness but if it stayed this way I could live with it no problem. Itching 99% gone, no problem. The problem, of course is that I can't remain on topical steroids.
Current regimen: Sulfacet for rosaceaa -- apply nose and upper cheeks. This is a sulfur based "old time" antiboitic cream that does same as Metrogel. Interestingly, research shows it also works well for seb derm but screwu specifically told me only to use it on rosacea areas so I'll do that for now. Using nothing for seb derm except some hydrocortisone for "weaning" purposes. This makes me very nervous that it will come back. If after weaning it starts appearing, I'll go back to a stronger corticoid and immed see another derm to try someting else for mainteance -- or I'll just let it come back and go natural and perhaps check into a monestary.
Things I might try in future: oral antibiotics for rosacea. pulsed light treatment (phooderm) for rosacea. oral fungals for seb derm. See an allergist --for food and substance sensitivities. Work on relaxation -- meditation, yoga, alexander, etc. Check into a monestary in iceland -- no sun, light, or people.
Itching in morning -- I noticed irritation in morning as well and it makes sense since it's hard to figure a way to sleep without your face being on something. Hopefully your baby pillow is a solution. You might also consider silk which is considered hypoallergenic and soft. Maybe silk pillowcases. I did that for a while for the guttate psoriais when my entire body was raw -- bought silk long sleeved and long legged underwear and wore them under everything.
Anyway, last few days my skin is almost like normal so I can see why folks use topical steroids. In fact derm before last said some of his patients stay on low-med stregth topicals for life although many say this is a major NO if you have rosacea. Maybe I take the lazy route and let hydrocortisone or something a little stronger get me throught the summer. LOL. Then maybe by next summer the riba and interferon will be completely out of system and everything will go back to the way it was before treatment. That's another plan. Still think time will be the healer on this but meanwhile the other stuff hopefully will help.
Are you still light senstivity and not going outdoors much? I pretty much stayed indoors last week but yesterday was out a lot. Skin definitelly reddens/darkens quickly but only on face.
-- Jim
Sounds like you're making progress and from what I've read you've got to kiss a lot of medications to find the princely one, which may be not be the same for everyone.
Cetaphil -- I feel the same way since I've been using water on my face very day since I was born. However, washing with Cetaphil without water seems very calming on skin and leaving a thin film on acts as a protectorant/moisturizer. I did that for practically a week and finally sort of got used to it. Now, I use water once a day -- at night -- to get the blue lizard sun block off easier but might use cetaphi w/o water during day. You should try it that way a couple of times.
Baby Blankets -- What are they made of and where exactly do you get them?
Shampoos == Your hairdresser seems on same page with dr. fucku (he wants me to use neutrogena regular) and I did find the antifungal or tar shampoos irritating on face -- however, probably will use on scalp now and then since scalp is thicker and they never irritated there.
Welts under eyes -- Can you describe yours ? Which me it's like bags under eyes that make me look like ten years older when they are there. Thought it was part of the aging process but now they're gone completely, not sure if the cortisone or what. I thought allergies, fluid retetention or some sort of inflammation from seb derm or rosacea. Not sure. BTW they can be reduced by putting a moist tea bag under the eye or refrigerating a spoon and press the back end against the areas puffed up. Boxers use the latter, starlets the former.
Atopic/allergic derm -- Looked at some pictures and possibly I have atopic as well but almost certain I have seb derm, sebopsoriasis as well as rosacea. One derm said the skin doesn't know these different names and he has a very good point -- we often have a mixture and hard to know where one ends and the other begins, except with rosacea where the lines may be more fixed. My roaacea appears mostly on nose and upper cheeks although sometimes my whole face gets red -- not sure if this is: (a) more diffuse form of rosacea; (2) sun sensitivity from rosace and/or riba; (d) inflammation from seb dermatitis. Unfortunatly, I haven't found anything exactly corresponding in the pics i look at on the internet. Most rosacea pictures are of very fair skinned celtic folks and the red is therefore very defined and prominent with pimples. My skin is more mediterranean (darker) and other than a piple or so on nose, no pimples on rosacea places. Do you have normally pale skin?
My condition when at worst: Dry and quite noticeable flaking on top of head and forehead and a little on face. Face redenened and "raw" quite diffuse but more prominent on nose and top cheeks, the rosacea areas. Chest redened/raw in sabaceous areas and itches like crazy as well as face. I also had the redened seb derm under armpits and in groin but earlier in treatment. Also a small raised plaque under each eye which is probably psoriasis which is why my diagnosis is sebopsorisis (psoriasis combined with seb derm) and rosacea. In case you forgot during treatment (fortunately resloved) my entire body was covered with guttate psorisis and feet and hands with plantar pustular psoriasis (in addition to the seb derm) At one point feet so bad I could hardly walk. Because of the guttate and plantar pustular, I paid little attention to the seb derm, thinking it was a riba reaction and would disappear when the drugs stopped. (maybe you can see why I'm so "pro" treatment LOL -- it really was hell for me -- go take a look at some pictures of plantar pustular and guttate psoriasis if you want to get sick)
Currently after 8 days steroids: face and chest 90% better with some rosacea redness but if it stayed this way I could live with it no problem. Itching 99% gone, no problem. The problem, of course is that I can't remain on topical steroids.
Current regimen: Sulfacet for rosaceaa -- apply nose and upper cheeks. This is a sulfur based "old time" antiboitic cream that does same as Metrogel. Interestingly, research shows it also works well for seb derm but screwu specifically told me only to use it on rosacea areas so I'll do that for now. Using nothing for seb derm except some hydrocortisone for "weaning" purposes. This makes me very nervous that it will come back. If after weaning it starts appearing, I'll go back to a stronger corticoid and immed see another derm to try someting else for mainteance -- or I'll just let it come back and go natural and perhaps check into a monestary.
Things I might try in future: oral antibiotics for rosacea. pulsed light treatment (phooderm) for rosacea. oral fungals for seb derm. See an allergist --for food and substance sensitivities. Work on relaxation -- meditation, yoga, alexander, etc. Check into a monestary in iceland -- no sun, light, or people.
Itching in morning -- I noticed irritation in morning as well and it makes sense since it's hard to figure a way to sleep without your face being on something. Hopefully your baby pillow is a solution. You might also consider silk which is considered hypoallergenic and soft. Maybe silk pillowcases. I did that for a while for the guttate psoriais when my entire body was raw -- bought silk long sleeved and long legged underwear and wore them under everything.
Anyway, last few days my skin is almost like normal so I can see why folks use topical steroids. In fact derm before last said some of his patients stay on low-med stregth topicals for life although many say this is a major NO if you have rosacea. Maybe I take the lazy route and let hydrocortisone or something a little stronger get me throught the summer. LOL. Then maybe by next summer the riba and interferon will be completely out of system and everything will go back to the way it was before treatment. That's another plan. Still think time will be the healer on this but meanwhile the other stuff hopefully will help.
Are you still light senstivity and not going outdoors much? I pretty much stayed indoors last week but yesterday was out a lot. Skin definitelly reddens/darkens quickly but only on face.
-- Jim
When you eventually find your way down here and have time, please describe your rosacea in detail and tell us everything your derm (or do you just see a gp) told you to do.
Regarding Metrogel, one of my docs told me to use it, my current derm said not to and recc a sulfur solution. Ina was also prescribed Metrogel. Curious, did they tell you to use the Metrogel all over your face or just on your nose, or on nose and cheeks? I've heard different things. Also, do you just have rosacea or anything else. I have rosacea plus sebopsoriais which is sort of like a thickened sebborhetic dermatitis with itching, inflammation and dry white flaking. Did your doctor mention oral antiboitics like Tetracycline. This is often used as a first line for rosacea, especially if it gets very bad but can tax your liver somewhat.
-- Jim
Regarding Metrogel, one of my docs told me to use it, my current derm said not to and recc a sulfur solution. Ina was also prescribed Metrogel. Curious, did they tell you to use the Metrogel all over your face or just on your nose, or on nose and cheeks? I've heard different things. Also, do you just have rosacea or anything else. I have rosacea plus sebopsoriais which is sort of like a thickened sebborhetic dermatitis with itching, inflammation and dry white flaking. Did your doctor mention oral antiboitics like Tetracycline. This is often used as a first line for rosacea, especially if it gets very bad but can tax your liver somewhat.
-- Jim
OK. Back from my derm, Doctor Screwu.
Tried my best to be friendly so extended my hand in handshake which he finally took after skipping a beat -- maybe he thought my sebsporiasis is contagious or maybe it's the hep c, which he obviously knows little about because he was surprised that I didn't have to take interferon for life when I told him I cleared.
Anyway....
Screwu looked at my face after I did 8 days of Cutivate (Class V topical) and said it looks much better. (DUH, it always looks better after a week of steroids.) So he says I can stop the Cutivate. DUH.
Screwu prescribed two things. For the seb derm -- and only if itching and irritation returns -- he prescribed Cloderm, on a use-only-as-needed basis and not more than for a few days. He characterized Cloderm as a milder topical than Cutivate but preliminary research reveals Cloderm is actually a Class IV topical which means it's a STRONGER topical. Well, sometimes the derms disagree with the ratings so I'll give him a little slack here.
For the rosacea -- after first asking if I wanted to treat for it (as in why bother it will just come back) -- he prescribed Sulfacet. Haven't cashed the script yet, but I believe I should use this daily but only on nose and upper cheeks. Not on nasal fold and not on rest of face. Sounds like an alternative to Metrogel.
Then Screwu said, "no one can cure rosacea" and "See me in 6 weeks". Then he disappears. Before he left I did ask him about laser tx for the rosacea and he said he didn't have any experience but did give me the name of someone who does.
Regarding shampoos, etc, -- said only to use Neutrogena shampoo, don't use any tar shampoos, etc.
I believe ScrewU is under the impression that all the stuff I used before -- Loprox, Metogel, medicated shampoos, etc -- caused the irritation and itching. I did try and explain that the irritation and itching PRECEDED those meds but Screwu isn't interested in listening or logic. Still, I hope he's right.
---------
So what's the plan -- Nothing for the seb derm/sebopsoriasis unless it flares and then use another topical steriod for a few days until it calms down. Sulfacet for the rosacea and hopefully that will work.
I should add that oral antibiotics -- tetracycline for example -- are often used initially for rosacea with something like Sulfacet or Metrogel to follow.
Screwu said he didn't want to put me on oral antibiotics at this point because of my liver. I could have told him that my hepatologist couldn't give a sh*t if I took tetracycline or not -- but since I wasn't in the mood for antibiotics at this point, I didn't say anything. I'm not ruling out oral antibiotics for the future, which may be with my next derm (already made a premptive appointment last week for July) unless this goes away.
Wish I had something more enlightening to say. Hopefully, my 8 day steroid vacation will put the seb derm into remission as opposed to rebounding it. Guess I'll know pretty soon :)
Anyway, if this doesn't work, there's always the immunosuppresives like Elidel and Protopic, the new derm, and time. Yeah, time. That's what I'm really counting on. Not Screwu.
-- Jim
Tried my best to be friendly so extended my hand in handshake which he finally took after skipping a beat -- maybe he thought my sebsporiasis is contagious or maybe it's the hep c, which he obviously knows little about because he was surprised that I didn't have to take interferon for life when I told him I cleared.
Anyway....
Screwu looked at my face after I did 8 days of Cutivate (Class V topical) and said it looks much better. (DUH, it always looks better after a week of steroids.) So he says I can stop the Cutivate. DUH.
Screwu prescribed two things. For the seb derm -- and only if itching and irritation returns -- he prescribed Cloderm, on a use-only-as-needed basis and not more than for a few days. He characterized Cloderm as a milder topical than Cutivate but preliminary research reveals Cloderm is actually a Class IV topical which means it's a STRONGER topical. Well, sometimes the derms disagree with the ratings so I'll give him a little slack here.
For the rosacea -- after first asking if I wanted to treat for it (as in why bother it will just come back) -- he prescribed Sulfacet. Haven't cashed the script yet, but I believe I should use this daily but only on nose and upper cheeks. Not on nasal fold and not on rest of face. Sounds like an alternative to Metrogel.
Then Screwu said, "no one can cure rosacea" and "See me in 6 weeks". Then he disappears. Before he left I did ask him about laser tx for the rosacea and he said he didn't have any experience but did give me the name of someone who does.
Regarding shampoos, etc, -- said only to use Neutrogena shampoo, don't use any tar shampoos, etc.
I believe ScrewU is under the impression that all the stuff I used before -- Loprox, Metogel, medicated shampoos, etc -- caused the irritation and itching. I did try and explain that the irritation and itching PRECEDED those meds but Screwu isn't interested in listening or logic. Still, I hope he's right.
---------
So what's the plan -- Nothing for the seb derm/sebopsoriasis unless it flares and then use another topical steriod for a few days until it calms down. Sulfacet for the rosacea and hopefully that will work.
I should add that oral antibiotics -- tetracycline for example -- are often used initially for rosacea with something like Sulfacet or Metrogel to follow.
Screwu said he didn't want to put me on oral antibiotics at this point because of my liver. I could have told him that my hepatologist couldn't give a sh*t if I took tetracycline or not -- but since I wasn't in the mood for antibiotics at this point, I didn't say anything. I'm not ruling out oral antibiotics for the future, which may be with my next derm (already made a premptive appointment last week for July) unless this goes away.
Wish I had something more enlightening to say. Hopefully, my 8 day steroid vacation will put the seb derm into remission as opposed to rebounding it. Guess I'll know pretty soon :)
Anyway, if this doesn't work, there's always the immunosuppresives like Elidel and Protopic, the new derm, and time. Yeah, time. That's what I'm really counting on. Not Screwu.
-- Jim
I wasn't expecting all that much from Dr. Screwu anyway. I'll probably follow his advice and see what happens with the following modifications. His theory seems to be less is more and that a lot of the stuff was irritating more than helping, maybe he's got something there and time will tell.
1. Instead of stopping the mid-strength topical right away, I'm thinking of weaning off the mid-strength topical by going from 2x a day to 1X a day over the weekend and then to maybe once every other day for a few days and then to hydrocortisone, for a total of 14 days counting the 7 I already did.
2. I'm going to use some of the shampoos he doesn't want me to use on head, scalp and chest but keep it off my face.
3. My main concern is that he's prescribing nothing for the seb derm once except for intermittent topical steroids when needed. I may just wait and hope I'm in a long remission. If that happens, I don't mind using topicals if only maybe a few days a month. Any more then that and I'm looking for alternative treatments. Actually tempted to start using Elidel or Protopic since I have some in the house, but I think I'll wait. Anyway, have an app with another derm sometime in July.
1. Instead of stopping the mid-strength topical right away, I'm thinking of weaning off the mid-strength topical by going from 2x a day to 1X a day over the weekend and then to maybe once every other day for a few days and then to hydrocortisone, for a total of 14 days counting the 7 I already did.
2. I'm going to use some of the shampoos he doesn't want me to use on head, scalp and chest but keep it off my face.
3. My main concern is that he's prescribing nothing for the seb derm once except for intermittent topical steroids when needed. I may just wait and hope I'm in a long remission. If that happens, I don't mind using topicals if only maybe a few days a month. Any more then that and I'm looking for alternative treatments. Actually tempted to start using Elidel or Protopic since I have some in the house, but I think I'll wait. Anyway, have an app with another derm sometime in July.
Ina,
Looks like we have another member to this thread -- Dodger. Check out her post today, above.
Dodger,
Welcome to the rosacea, seb derm, post tx thread :) To get up to speed, scroll down to the "hypothyrodism" thread on 5/30. Lots of info back and forth you might want to print out. Same in this thread. Sorry you ended up here but congratulations again on being non-detectible. And in case you haven't gotten that far-- watch the sun when you go outside. Besides protective clothing -- Blue Lizard BABY sunblock is pretty good.
Looks like we have another member to this thread -- Dodger. Check out her post today, above.
Dodger,
Welcome to the rosacea, seb derm, post tx thread :) To get up to speed, scroll down to the "hypothyrodism" thread on 5/30. Lots of info back and forth you might want to print out. Same in this thread. Sorry you ended up here but congratulations again on being non-detectible. And in case you haven't gotten that far-- watch the sun when you go outside. Besides protective clothing -- Blue Lizard BABY sunblock is pretty good.
You can use the Cetaphil with or without water and instead of soap. My derm has me use it without water. Just rub it on gently with hands, and then wipe it off with cottom balls leaving a thin film of it on. Tomorrow is my derm appointment and I'll report back but this fellow doesn't leave much room for "discussion" so we'll see. Good with the pillows but the mites I was talking about were skin mites, not dust mites. Apparently everyone has them but some develop an allergic reaction, possibly because of overpopulation and possibly because of immune suppression. Yeah, lots of pimple/rash penis problems on the derm forum. LOL. As to depression/lethargy, started drinking a few cups of coffee a day as my reflux gets better, and it does work as a pick me up, plus supposedly good for the liver. Sometimes I have to wash it down with a Pepcid complete however, we'll see. Did I mention the Blue Lizard BABY sunblock helps with the itching.
-- Jim
-- Jim
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STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
