Exercise and Being Cold

[hph5477]

Just wanted to hear how much exercise and the intensity level everyone is getting.  I usually walk 3X wk and now am starting to ride my bike some, but seem to only be able to ride very short distances and very slowly as compared to pre-tx.  But it's great to be able to get outdoors and enjoy the sunshine.

Also, this Texas girl is tired of being cold.  Is anyone else cold all the time?  We can be among a group of friends and everyone else can be warm or hot and I'll be cold. Of course, my drinking ice water as opposed to their wine contributes a little to this.

I just did 22/48 last Friday and my Heme at wk 18 was 10.4.

Let me hear from you.  And good luck to everyone on tx or contemplating tx and congrats to all of you who have finished tx.

[cuteus]

check the March 15 thread on alcohol and TX

that question comes up often and that was the latest post.

[CYSCO]

WHERE DOES ONE ASK QUESTIONS ABOUT THE EFFECTS HEP C AND ALCOHOL HAVE ON THE PERSON IN TREATMENT,DRINKING WHILE IN TREATMENT AND WHEN NOT IN TREATMENT

[cindee]

Hey girl, When I was on tx I looked the same way. It was like I was looking at someone else...NOT ME!!!!! I hated being around a camera. I would make sure I was outta sight when the cameras or camcorder was around. Now that I'm off tx and even tho I have replased...I look much better. The fatique is still awful. But I will survive. I'm still not sure what I will go thru when I go to Duke for the case study. But I'm ready to fight! I refuse to let this get me down! I want to you know I pray for you every day, as I also do for all my hep c family. I hope this post finds you feeling good. Love ya girl, Cindee

[cuteus]

hair loss will slow down after peaking and freaking you out.  
Wear sunscreen all over and you will be fine, not too  much if you want to get a different shade of gray on your complexion..lol.

[LvdByGod]

i look in the mirror and i am seeing a sick person. the deadish skin color(a mix of white,greenish,yellowish purple). and i totally know what you mean by feeling no energy. i thought it was my weight but i realize this medicine is just exhausting me.  this anemia is making me feel 80, along with the receeding hair line and gobs of hair everywhere. are you guys losing handfuls daily? it is so freaky. hope it grows back...

i'm going to fla. over Easter to visit my dad. i'm afraid my looks will worry him. i'm kinda afraid to go in the sun should i be?

[susan400]

All through my treatments, every morning immediately after my shower, I feel the need to lay down on the sofa because I get so wiped out.  I've kept up with the exercise, but it does not energize me, it makes me feel like taking a nap.  As far as being cold goes, I've done that, too.  Anytime I get in my sister's car I'm turned off the A/C vents because I'm freezing or I aim them at her, she's menopausal so.....    Also, every day at lunch time, I have zero appetite for anything else but soup, so EVERY day, I have soup for lunch.  I can eat supper easier. Total weight loss during this treatment (last shot tonight) has been 25 lbs.  Susan400

[cindee]

LOL  Another one I like is.....why don't you get out more? HAHAHAHAHAHAHAHAHA I want to say, well "if" I expend the energy to get a bath...the energy is "GONE"...then have the energy to do make-up , hair (if any is left) LOL...and get "dressed"???? Heck I'm ready to go back to bed by then!!!!!! "get back with me in a couple of daze...LOL". And then I want to say...but don't YOU dare come see me!!!!!! And if ya do, bring dinner and clean my house!!!!! "wake me when you're done" !!!!! I love ya girl, Cindee  ps "this is NOT intended to scare the newbies."

[cuteus]

Not fair talking about sun and warmth, it is snowing in NY! middle of darn March, st. pat's day.  NOW I'm even more cold!  Comforter, here I come.

[hph5477]

The physical fatigue!  After 22 wks I still haven't figured out how to explain it.  My friends think I just need to get MORE exercise and work myself back up to where I was before.  Had the dr explain to my husband on the last visit so he now understands which helps.  But......

If you find a good way to explain the fatigue where others not on tx will understand, please let me know.

[cuteus]

fubarcat and honey; are u anemic?
  It sounds like my first two months.  Even a few steps or a tiny sexual arousal would send me gasping for air.  
Discouraging when you are excercising to improve cardiac health!  Procrit has allowed me to get back to the Y.  I hope you can too.
Yes I do feel the effect of the workout  the next day, but the inactivity will make me worse so I have to push myself. Going to a fun class keeps me from talking myself out of getting out.  

Debbie; does it almost feel like some pressure is been exerted all over, squeezing all the energy out?  It is hard to describe sometimes.  And hard to predict when it will hit in my case.    ONE minute at a time, I deal with these sx.    I don't think they are as bad as others here, though.

[Fubarcat]

Thanks for asking.  No, I'm not anemic.  In fact, my bloodwork has held up pretty doggone good for being on meds (I'm only #11/48, so of course, anything could happen).  Of course my RBC/WBC is a little lower than the normal range, but not too bad.  My doc is not concerned at all and in fact has commented on how well I'm doing with my RBC and platelets.

[hph5477]

Yes, my hands are always cold.  I've been sitting out by the pool alot today and the sun provides so much healing power for me.  I feel good most days anyway but feel really good today.

I may extend to 60 wks (an additional 12 wks) if I'm clear at wk 24.

Good to hear from you. Hope you are enjoying this weather as much as I am.

[DebbieDo]

My wbc last month had dropped....i think he said 10.6, GI says this ususally happens in the beginning of tx.....i had blood drawn Monday, so we will see if it has dropped more.....he then said that i could go on Procrit or cut back the Riba........no way i want to cut back my drugs......Im overweight and i feel that i need all 1200 mil i get daily to kill this dragon......so i will find out more on Monday.....My fatigue thing is daily, i start doing something and i get tired right away, like i have to sit down.
I find the sun to be very healthful.  It seem to revive me...lol
My hands are always cold.......when im up moving around i seem to warm up, it's when i sit down.......im freezin.......LIKE NOW
I want to go to Idaho to visit a friend, but, below 70 is too cold for me to go anywhere........im enjoying the Calif sun these last couple of weeks.......Taking things day by day...
More power to those who dont have serious sides......i consider myself lucky......if i can get something to take care of some of this fatigue, it will be great.......THE only way for me to discribe the feeling of fatigue is>>> like you have this ambition to go to something and when you go to do it your body can't or doesn't seem to acomplish things like it use to b4 tx
.........Deb  :)

[honey1616]

Thats a perfect description of the fatigue! And yes...the weather is pretty here and SUN feels soooo good! I want to do so many things this week and april is going to be busy month for us so I pray I can get going here!

[DebbieDo]

I just did #12/48........I have been cold throughout tx.  I use to walk a couple of miles several times a week when time permitted. But, now, im not walking at all.  Just a short walk is very tiring.  I save all my energy now for work and keeping up this apt.  I have thyroid problems before tx, and im on meds for that (synthroid) My back has been hurting this week due to the night time cough i have been having this past week...When i started tx i thought the fatigue everyone was talking about was LIKE being tired alot(sleepy).....Im not tied at all, i have physical fatigue, I feel i have aged 20 yrs........Deb

[hepcbilly]

Come on over! Hey email me tell me what the problem is!

Hi chevy!

[cindee]

I know the fatique is awful!!!!! I slept 17 hours straight the other day. It really gets me too, when ppl say, you need to get more exercise!!!!! I just want to say..."HELLOOOOOOOO"....you just don't get it"!!!!!!!
I liked the one where...I can't remember who said it, but said that the way they get their exercise in...is to pop in an exercise tape and hit the sofa and "watch it" !!!!!
Exercise to me is.....batting my eyelids!!!!! LOL Cindee

[honey1616]

LOLOLOLOL Wow...you have summed up perfect what its like to be on tx.. You need to do some tv commercials..no better yet..You need to come to my house to keep me laughing all day!!

[Luke307]

I'm in my 4th Month of tx and I know what everyone is talking about with being cold. The only thing that seems to warm me up quickly though is a hot shower... but then I start with the intense itching, what a circle.

Debbie, I hope you start feeling better soon. I went through 15 weeks or so of rough rough sides. Lately,the past 2 weeks I've been feeling lots better. I've even been working out with weights again (lightly) almost daily. Don't ever give up on feeling better. I was almost at the point of resigning myself, so keep your chin up.

luke

[MichaelT]

Tylenol, bizarrely so, helped me with the queasies and chills. Finally a use for the durn stuff.  If it works fer ya' let me know!

[audreywald]

excercise for me now is a walk around the block.

[Fubarcat]

Careful with the sun exposure.  I made that mistake this past weekend (in Florida, no less).  I'm still paying for it with the sun burn.  I was stupid and forgot to put on sun screen, so it's my own fault, but I never used to sun burn before treatment and I have olive toned skin so usually don't burn.  These meds changed that for me, that's for sure!

[hph5477]

Thanks for your responses.  It's 81 degrees today in Ft Worth, sunshine, and wind (of course).  But beautiful.  Sun therapy in the backyard is almost as good as Salt Water therapy on the beach.

Hope everyone is doing well.  Happy St. Patty's Day.

[honey1616]

I have chills alot at night but as far as just downright cold...no I haven't had that.  Mine is pretty much like when you are sick and evening you run a low grade fevor and then get chills.  I congratulate all of you for being able to keep up the exercising.  I'm kinda like Fubar right now and haven't done much.  I started out really good in beginning walking etc but lately I have not felt great so hoping a few good days will crop up here and I'm going to get back out!