Aa
'Fall out' from Hep C
Hey, everybody. I just hit another wall that this monster disease caused in my life. Just when I thought things were going well, I got blind-sided by a remark my husband made. He said he couldn't do this anymore. The stress of all of the last few years has done us in maybe. I just figured after 27 yrs. together and this damn Hep C we beat together, that there was a bit of a stronger bond than that! He said later that I shouldn't pay any attention to what he said! He's never said that before so how can I not...He didn't want to discuss it further. So, I have decided for now, just to sit tight and try to keep our life as pleasant as possible until we can broach the subject again without the element of surprise and more time to make sense of it. So, if you are in this situation, you are not alone. Hang in there......**Hopiangel** p.s. sorry to be so depressing today
Well welcome...I just happened to check down the threads and saw your post...you might want to repost this up a little higher. This forum is great for info and support. I hope you keep comming back and let us know how you are doing??? By the way, what geno were you? Which tx did you take? When was your tx finished and how are you doing now? As I said...you should probably reost this higher up...so the rest of the group can welcome you. Take care, kim
I was just watching a program about liver transplants and was promped to find out if hep c can be beat as I have just completed a full year of treatment with the rebetron combination therapy for hep c. I have been searching for information on hep c ever since I found out that I had it. In sept 2003 I was told that I have tested negative since about July 2003. I started the combination therapy 1 year ago this week. I have also been told that I have cirrosis of the liver. A few months before I found out about the Hep c I was separated from my wife after 21 years of marridge. I have custody of my 15 year old son which I am very thankful for as I feel just his being here as given me the determination to fight this decease. About a week after I found out about the separation my best friend passed away from liver cancer. He had hep c also along with cirrosis of the liver. The differance between him and me was that he was a recovering alcoholic while I only drank very occasionally. I am very concerned about my health and have done the treatment that I was told to do,(thank God for health care coverage in Canada otherwise I would have not been able to afford it, as I was told it would be in the range of 18000.00 dollars)and have also tried to change my eating habits. I've have learned that the liver will repair itself if the damage can be stopped. I hope this is the case with me but I just do not know.
I have done some research on the net and have come accross a lot of differant opinions on how to treat this. Doctors say don't take herbs and natural treatments and naturalists say don't take the clinical medicines. I wish that they would just get it together and co-operate and put aside their differances to find a common goal for the good of the patient. One does not like the other and they seem to put a side the patients concerns behind their own of which one is better than the other. I feel that if they were to put their heads together we could find a solution to this horrible decease.
I will be coming back to this forum as I think it will help me to deal with all that has happened to me. And just by saying what I just said above is like a stress release and I look forward to others opinions and ideas as only we know what it is like because we are forced to deal with it day after day.
dddon
I have done some research on the net and have come accross a lot of differant opinions on how to treat this. Doctors say don't take herbs and natural treatments and naturalists say don't take the clinical medicines. I wish that they would just get it together and co-operate and put aside their differances to find a common goal for the good of the patient. One does not like the other and they seem to put a side the patients concerns behind their own of which one is better than the other. I feel that if they were to put their heads together we could find a solution to this horrible decease.
I will be coming back to this forum as I think it will help me to deal with all that has happened to me. And just by saying what I just said above is like a stress release and I look forward to others opinions and ideas as only we know what it is like because we are forced to deal with it day after day.
dddon
I was just watching a program about liver transplants and was promped to find out if hep c can be beat as I have just completed a full year of treatment with the rebetron combination therapy for hep c. I have been searching for information on hep c ever since I found out that I had it. In sept 2003 I was told that I have tested negative since about July 2003. I started the combination therapy 1 year ago this week. I have also been told that I have cirrosis of the liver. A few months before I found out about the Hep c I was separated from my wife after 21 years of marridge. I have custody of my 15 year old son which I am very thankful for as I feel just his being here as given me the determination to fight this decease. About a week after I found out about the separation my best friend passed away from liver cancer. He had hep c also along with cirrosis of the liver. The differance between him and me was that he was a recovering alcoholic while I only drank very occasionally. I am very concerned about my health and have done the treatment that I was told to do,(thank God for health care coverage in Canada otherwise I would have not been able to afford it, as I was told it would be in the range of 18000.00 dollars)and have also tried to change my eating habits. I've have learned that the liver will repair itself if the damage can be stopped. I hope this is the case with me but I just do not know.
I have done some research on the net and have come accross a lot of differant opinions on how to treat this. Doctors say don't take herbs and natural treatments and naturalists say don't take the clinical medicines. I wish that they would just get it together and co-operate and put aside their differances to find a common goal for the good of the patient. One does not like the other and they seem to put a side the patients concerns behind their own of which one is better than the other. I feel that if they were to put their heads together we could find a solution to this horrible decease.
I will be coming back to this forum as I think it will help me to deal with all that has happened to me. And just by saying what I just said above is like a stress release and I look forward to others opinions and ideas as only we know what it is like because we are forced to deal with it day after day.
dddon
I have done some research on the net and have come accross a lot of differant opinions on how to treat this. Doctors say don't take herbs and natural treatments and naturalists say don't take the clinical medicines. I wish that they would just get it together and co-operate and put aside their differances to find a common goal for the good of the patient. One does not like the other and they seem to put a side the patients concerns behind their own of which one is better than the other. I feel that if they were to put their heads together we could find a solution to this horrible decease.
I will be coming back to this forum as I think it will help me to deal with all that has happened to me. And just by saying what I just said above is like a stress release and I look forward to others opinions and ideas as only we know what it is like because we are forced to deal with it day after day.
dddon
Hey Good Luck on tx Gallium we will be here for you. Don't belive 100% what the dr's say miricales do happen here.
Bob
Bob
ABOUT 2 WEEKS AGO WHILE I WAS SLEEPING MY WIFE GOT UP TO GO TO THE BATHROOM, WHEN SHE DID THE BLANKEST GOT WRAPPED AROUND MY NECK AND CHOKED ME. I HAVE BEEN SHOT, BLOWN UP(TWICE),BAYONETED,
BEATEN-UP, FACED DEATH MORE TIMES THAN I LIKE TO THINK ABOUT.
THE ONLY THING I FEAR IS SUFFOCATION( GO FIGURE THAT ONE OUT I HAVENT).
I DID NOT REACT WELL TO HAVEING THE BLANKET CHOKE ME I DIDNT HIT HER(MANAGED TO GET CONTROLE IN TIME, I DO REACT VERY BADLY WHEN MY AIR IS CUT OFF) BUT I DID YELL AT HER.
WELL SHE WAS HALF ASLEEP AND IT STARTLED HER AND SHE SAID SOME VERY HURTFUL THINGS TO ME. NO ONE CAN HURT YOU MORE THAN A LOVED ONE, YOU LET GUARDS DOWN WITH THEM, LET THEM SEE THINGS THAT YOU WOULD NOT LET ANYONE ELSE KNOW ABOUT. IT HAS TAKE ME A COUPLE OF WEEK TO GET OVER WHAT SHE SAID. I THINK THAT SHE SAID WHAT SHE SAID BECAUSE DEEP DOWN INSIDE SHE HAS SOME ANGER ABOUT
LOSEING ME( WITH THE MULTIPLE SYSTEM DAMAGE I HAVE FROM AGENT ORANGE THE DR'S GIVE ME AT BEST A 10% SURVIVAL CHANCE).
SHE IS SCARED, SHE HAD A BAD MARRIGE ABOUT 30 YEARS AGO AND AFTER DIVORVE DIDNT EVEN DATE TILL SHE MET ME, WWE HAVE BEEN TOGETHER FOR 10 YEARS NOW, AND I AM THE FIRST PERSON SHE HAS EVER OPENED UP TO. SO SHE IS VERY SCARED OF LOSING ME.
SHE IS ANGRY THAT MY HEALTH IS FAILING, NOT AT ME, JUST THAT AFTER FINDING SOMEONE SHE CAN REALY LOVE AND BE HAPPY WITH
SHE IS NOW LOOKING AT LOSING THEM.
WE FOCUS SO MUCH ON SURVIVING THE DISEASE AND TREATMENT THAT
SOMETIMES WE LOSE FOCUS ON WHAT OUR FAMILY'S ARE GOING THROUGH,
THE FEARS THEY HAVE, THE LOSS OF COMPANISHIP, PUTTING UP WITH OUR SIDES, IT CAN BE AS ROUGH FOR THEM AS FOR US.
I FINALY PUT THAT NIGHT BEHIND ME, AND IF SHE GET UPSET AGAIN I HOPE THAT I CAN REALISE SHE IS VERY SCARED OF LOSSING ME, AND ITS THE FEAR SPEAKING NOT HER.
SHE SOMETIME COMES TO THIS SITE AND READS WHAT IS HERE, IT SEEM TO HELP HER, TO SEE WHAT OTHERS ARE GOING THROUGH AND TO SEE MSG'S FROM THOSE THAT HAVE MADE IT AND ARE CLEAR. IT GIVES HER HOPE, AND HOPE IS WHAT SHE NEEDS AT THIS TIME.
PLEASE TRY TO REMBER THROUGH THE RIBA RAGE THAT ITS NOT JUST YOU THAT IS GOING THROUGH TREATMENT BUT YOUR ENTIRE FAMILY,
FRIENDS AND COWORKERS.
I FOR ONE WILL TRY AND KEEP THAT IN MIND AS I START TREATMENT,
AM THINKING OF POST-IT NOTES ALL OVER THE HOUSE SAYING YOU ARE NOT ALONE IN THIS.
BEATEN-UP, FACED DEATH MORE TIMES THAN I LIKE TO THINK ABOUT.
THE ONLY THING I FEAR IS SUFFOCATION( GO FIGURE THAT ONE OUT I HAVENT).
I DID NOT REACT WELL TO HAVEING THE BLANKET CHOKE ME I DIDNT HIT HER(MANAGED TO GET CONTROLE IN TIME, I DO REACT VERY BADLY WHEN MY AIR IS CUT OFF) BUT I DID YELL AT HER.
WELL SHE WAS HALF ASLEEP AND IT STARTLED HER AND SHE SAID SOME VERY HURTFUL THINGS TO ME. NO ONE CAN HURT YOU MORE THAN A LOVED ONE, YOU LET GUARDS DOWN WITH THEM, LET THEM SEE THINGS THAT YOU WOULD NOT LET ANYONE ELSE KNOW ABOUT. IT HAS TAKE ME A COUPLE OF WEEK TO GET OVER WHAT SHE SAID. I THINK THAT SHE SAID WHAT SHE SAID BECAUSE DEEP DOWN INSIDE SHE HAS SOME ANGER ABOUT
LOSEING ME( WITH THE MULTIPLE SYSTEM DAMAGE I HAVE FROM AGENT ORANGE THE DR'S GIVE ME AT BEST A 10% SURVIVAL CHANCE).
SHE IS SCARED, SHE HAD A BAD MARRIGE ABOUT 30 YEARS AGO AND AFTER DIVORVE DIDNT EVEN DATE TILL SHE MET ME, WWE HAVE BEEN TOGETHER FOR 10 YEARS NOW, AND I AM THE FIRST PERSON SHE HAS EVER OPENED UP TO. SO SHE IS VERY SCARED OF LOSING ME.
SHE IS ANGRY THAT MY HEALTH IS FAILING, NOT AT ME, JUST THAT AFTER FINDING SOMEONE SHE CAN REALY LOVE AND BE HAPPY WITH
SHE IS NOW LOOKING AT LOSING THEM.
WE FOCUS SO MUCH ON SURVIVING THE DISEASE AND TREATMENT THAT
SOMETIMES WE LOSE FOCUS ON WHAT OUR FAMILY'S ARE GOING THROUGH,
THE FEARS THEY HAVE, THE LOSS OF COMPANISHIP, PUTTING UP WITH OUR SIDES, IT CAN BE AS ROUGH FOR THEM AS FOR US.
I FINALY PUT THAT NIGHT BEHIND ME, AND IF SHE GET UPSET AGAIN I HOPE THAT I CAN REALISE SHE IS VERY SCARED OF LOSSING ME, AND ITS THE FEAR SPEAKING NOT HER.
SHE SOMETIME COMES TO THIS SITE AND READS WHAT IS HERE, IT SEEM TO HELP HER, TO SEE WHAT OTHERS ARE GOING THROUGH AND TO SEE MSG'S FROM THOSE THAT HAVE MADE IT AND ARE CLEAR. IT GIVES HER HOPE, AND HOPE IS WHAT SHE NEEDS AT THIS TIME.
PLEASE TRY TO REMBER THROUGH THE RIBA RAGE THAT ITS NOT JUST YOU THAT IS GOING THROUGH TREATMENT BUT YOUR ENTIRE FAMILY,
FRIENDS AND COWORKERS.
I FOR ONE WILL TRY AND KEEP THAT IN MIND AS I START TREATMENT,
AM THINKING OF POST-IT NOTES ALL OVER THE HOUSE SAYING YOU ARE NOT ALONE IN THIS.
Thanks, it's very helpful to have your input. Yesterday, I was on the verge of an abyss that I didn't want to jump into. Thanks to all of the wonderful souls here, I'm back today with a whole new perspective. Take care and know I'm here for you also. **Hopiangel**
This is really common - not only with hepC, but with any catastrophic illness, including cancer, and chronic pain. I lost my mind with hepC, and nearly lost my family.
HepC tricks your immune system into thinking that you have a completely different disease than you do. In other words, it tricks Nature. Now, you and me and everybody else knows about modern medicine, but Nature doesn't know, and Nature is concerned with the survival of the species.
Humans are a lot more instinctual than most of us would care to imagine. We may not realize we're doing it, but it is instinctual for us to avoid sick people, and disease often causes the patient to isolate himself through fatigue, depression, or other psych problems. In other words, Nature is trying to stop you from infecting the rest of the human race. In our situation, this may be because of the way in which hepC disorganizes the immune system.
My wife and I found that medical information and marriage counseling worked well for us. Also, never underestimate the power of a good antidepressant.
When my wife read enough articles about HCV-associated fatigue, memory loss, cognition problems, agitation - the stuff that was driving her away from me, the more she was able to accept my illness and deal with it rationally.
HepC tricks your immune system into thinking that you have a completely different disease than you do. In other words, it tricks Nature. Now, you and me and everybody else knows about modern medicine, but Nature doesn't know, and Nature is concerned with the survival of the species.
Humans are a lot more instinctual than most of us would care to imagine. We may not realize we're doing it, but it is instinctual for us to avoid sick people, and disease often causes the patient to isolate himself through fatigue, depression, or other psych problems. In other words, Nature is trying to stop you from infecting the rest of the human race. In our situation, this may be because of the way in which hepC disorganizes the immune system.
My wife and I found that medical information and marriage counseling worked well for us. Also, never underestimate the power of a good antidepressant.
When my wife read enough articles about HCV-associated fatigue, memory loss, cognition problems, agitation - the stuff that was driving her away from me, the more she was able to accept my illness and deal with it rationally.
I can't imagine 2 family members going through this ordeal with hepC and treatment of hepC. Husband and wife? whew !!!
Power to both of you in these distressed times. To even get through treatment together, is a miracle!!
You are both so strong.
Power to both of you in these distressed times. To even get through treatment together, is a miracle!!
You are both so strong.
That idea is great! Now I just have to find a time to bring it up. Right now, we are really tense with each other. And he's already nervous that I have to go back to the doctor Monday about the macrocytosis. I guess they want to get to the bottom of it now that I'm off TX so long and it's still there. Anyway, thanks for the suggestion, and I'll spring it after the doctor visit. God Bless You, **Hopiangel**
Thanks for the compliment about being strong. All of us are stronger than we know. I wish you all the good things in life and hope you keep me posted on your progress. **Hopiangel**
Maybe you should each sit down and write all the reasomns you love each other and the reasons you fell in love to begin with. Then exchange them, and save them for when things are tense again.((((hugs)))))JOni
((((HUGS))))) Both of you have really accomplished so much together and come such a long ways and on top of it beat it!! It does lead to a stressful life day in and day out and the outside world sometimes just doesn't understand. I have read all your postings and you are such a strong person. We all have our bad days and do say things and then later don't know why we said something so hurtful. It sounds like to me that your husband is just needing some reassurance. I think I would just take it as a comment that hurt but wasn't meant to.
Thank you all for the responses. I can always feel like I'm amongst "my own" here. Come to think about it, we both held back for so long, (he was on TX 3 yrs ago for 6 mos. and then I was on TX from Oct.2002 to Apr.2003) that maybe now it's all coming out and really has no long term bearing on our relationship. I hope not, I love him so much and covered so many miles in life with him. But, if it does come to that, I will survive! I've come this far; it would be such a waste to have fought so much in one lifetime and give up now. Take care all of you and thanks again for caring. **Hopiangel**
Maybe you should let it go and see if he says it again.I said things that I didn't mean and so did my wife. I'll willplay amateur psychiatrist and guess since I felt bad from tx and she felt bad because I couldn't keep my mouth shut we wanted the other to feel as bad as we did. Damage has been done but I'm not sure if it will be permanent. The problem is once you say something you can't unsay it even if you didn't mean it. I have no answers but you aren't the only one. Good luck.
Hi Hopiangel
I went thru a similar thing with my wife at about 4-6 months into tx. She just up an left for a few wks. I think she just was scared and it is hard for her type of person to talk about their feelings. I just resolved myself to if you want to leave that is your decision and I am going on with my life. She came back we started talking about real feelings and fears and we got to the bottom of it. I am not the easiest person to live with anyway and especially on tx. She has some serious physical problems herself. But we do have a common belief in GOD and that has helped us with our problems and commitment. Just stay calm do the right thing and I am sure it will work out for you guys. We are together 30 yrs.
GOD BLESS
Bob
I went thru a similar thing with my wife at about 4-6 months into tx. She just up an left for a few wks. I think she just was scared and it is hard for her type of person to talk about their feelings. I just resolved myself to if you want to leave that is your decision and I am going on with my life. She came back we started talking about real feelings and fears and we got to the bottom of it. I am not the easiest person to live with anyway and especially on tx. She has some serious physical problems herself. But we do have a common belief in GOD and that has helped us with our problems and commitment. Just stay calm do the right thing and I am sure it will work out for you guys. We are together 30 yrs.
GOD BLESS
Bob
During the 50+ weeks of tx I acted like a lunatic at times. My wife and family didn't know what was going on, they were scared and worried. My wife called my nurse twice. She said this is "too much" for her and she would have to leave during tx but later changed her mind.
It is hard on our families, real hard. Not only do they see us sick but also get the full brunt of the riba-rage episodes.
Perhaps a support group for your husband would help?
Take care,
Scott
It is hard on our families, real hard. Not only do they see us sick but also get the full brunt of the riba-rage episodes.
Perhaps a support group for your husband would help?
Take care,
Scott
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