I'm sorry, but I can't remember where you went for your personalized plan. I need to have this to take to MY hep doctor in a couple of weeks. Actually, never see the DR only his RNP.
Would you please fill me in? Thanks.
I went to see one of the docs at the Univ of Miami. Many of the docs in this area look in that direction as the font of knowledge and one of the notable fronts on the hcv battle line. They are involved in many of the drug trials and the docs (several of them) are names that appears in study reports and articles that get passed around here. The one I saw is the second banana to Dr. Schiff (Snook's doc). But even as a second at UM, he's the head hepatologist at the Miami VA - a big place. Point is, there are a lot of doc with lots of expereince out there and if you live in, or have access to, a large metro area you should be able to find one. I also found that many docs really don't get their noses twisted too much if you ask who they would go to if they had the same medical issue personally. The disease and the treatment is too significant to worry more about a doc's feelings than about your own health.
Hey! Stop worrying so much so you don't make yourself CRAZY like I did ok? (Did you think I was always like this? LOL)
I was always tall and thin but tough (even though I am the whiniest crybaby on the block). I read a lot of stuff and saw that the "hit it hard and fast" approach seemed to make the most sense to me. I am a geno 1A and also 1B so I didn't know if it would matter but I liked what Jim had to say and I asked my doctor to increase me from the recommended 800 to 1,000.
It really DID mess with my hemo levels big time...it wasn't easy. BUT it was hard for me to get to UND and I am CONVINCED that if I hadn't done it for so long I wouldn't have gotten there at all and now it would be a moot point.
Cut a deal with the doc that you WILL take the 3/2 like I did BUT if you have trouble with the anemia and CANNOT tolerate it that AFTER THE FIRST TWELVE WEEKS you will consider dropping one? It is really CRUCIAL to get as much into you and hit it hard and fast that you can and you CANT DECREASE DOSAGE in the first 12 weeks. That is SO important.
I had the anemia really bad but I ONLY missed 2 days work. I don't know how looking back that I did it (cause when I went to stand up I would faint - for real) and it would take me 15 minutes of stopping and starting so I could just walk into the building here --- but through sheer determination I got here. My whole goal was just to get to my desk. I figured as long as I showed up I was A-OK.
I took a nap every lunchtime from 12 - 1. I even had a little blankie and pillow here. As stupid as that sseems - I got a promotion (thank GOD I hated my old boss so so so much) and didn't get fired.
I coudln't stop work either - there is no option. So I just decided I'd whine and cry on line to my friends and then have them push me with support...and they did.
I felt like giving up a bunch of time - but these guys just kept me going.
We can do it for you too if you have it bad. But you MIGHT NOT AT ALL ANYWAY~!
If I can do ANYTHING to help you - you just let me know. I know how overwhelming the whole thing REALLY is.
It ain't fun but you CAN DO IT.
(If I can anybody can! ;)
Debby
Thanks for your response. I know both of you having been where I am right now know how terrified I am. FLGuy told me these next 3 weeks till tx (10/6)would be tough and he was so right. I guess I am asking questions that no one can answer for me till I start. I am going to try and stay away till day of my first shot. Myabe I will calm down some. Thanks again.
It only took 3 weeks for my ANC, WBC to drop 5pts. I was anemic and felt awful. I wasn't expecting it, but there it was. I have heard lots of people here say they were hit with anemia around week 3, so watch those labs and how you feel.
Could really use some advice from you. I am starting tx 10/6. Am so so scared. FLGuy told me you and I are similar as far as weight. My Dr. is starting me (last appt b4 tx 10/3)on 3 Riba's in am and 2 in pm. Thats about 1000mg. Is that what you started on? How hard was it at first? I know you say its doable. I am getting really scared as its getting closer. I NEED to work. I know I am being pretty much a winey winey baby.