Joint Aches (post your complaints here ;0)

[Alady1620]

For those with joint pain, where does it hurt the most?

Lately, my bum and legs have hurt the worst.  Maybe I'm laying around to much. lol

(I thought this would be a good way for us to get our complaints out.)

[can-do-man]

Doing tx. and having 17 month old twins? Have you talked to your doctor to see why you enjoy punishing yourself? Take care and the best of luck to you.

[beamishboy]

me three!!!!!.....

[timedog]

What I find hardest, so far for myself, is balance and judgement in regards to when to take it easy. I went to bed early last night and could have easly stayed in bed this morning and taken a day off from work. My fear is what would that lead to. My side effects haven't been super bad compared to some of what I have read here. A little of this a little of that the worse being brain fog which is on it's own scheudle. For the moment I have decided to power through side effects whilte I can because my driving fear is a time will come when I wouldn't be able to.

To date the one thing I have found that has helped clear brain fog is to put myself in situations where I have to think and speak. Anyone else have any tricks they would like to share.

Pint of icecream would be assume but I am a diabetic to boot.

[NYgirl]

Said: Won't prescibe rescue meds till 10 or below.

This is the most unfair horrible practice in the world. Once you finally GET on the epogen or procrit make sure you don't go off and stay on it - to some measure - so if it drops again it will still all be approved etc.

Make sure RIGHT NOW that it will go through the insurance with no problems - some of us have had problems getting it through and that is the WORST because it takes a few weeks to work anyways!

I'm at in between 10.5 - 11 now and not dying. But...in the beginning it would have hurt for some reason you build up a tolerance. It's how FAST it goes down as well as the NUMBER it goes to.  Going from 15 - 9 in a week that was the real kicker my body could NOT handle.

[amirtracy]

My hips kill me sometimes...i'm on week 7 tonight and the nurse just called to say my neut's are up to 1700 which is great news because they were concerned 2 weeks ago...i'm wondering- the pain in my joints has subsided alot in the last week to 10 days. Could it be the increase in neutrophils? Does the dropping count equal bone/joint pain possibly? Neutrophils are produced in bone marrow...i dunno. just thinking...i should stop that i know.  tracy

[Dale_Ray]

My bums hurt the worst of all. I don't know if its the joint or the muscle. My Cathy thinks that most is in my head. Seems to be with me from the waist down. I have completely stopped taking Tylenol or anything like it and my headaches are just as bad but no any worse. I keep trying to safely reduce my intake of meds if possible. The itching takes my mind off of the joint pains at times. I hope everyones gets to to feeling better. Dale