Aa
New Riba Mfg/FLGuy
FLGuy/All - My Riba was left out of my last drug refill. Well, last night get refill - received these capsules from a different mfg. Called Specialty Pharmacy - These were the wrong pills - they were a substitute for the pink ones. They then advised me our little pink pills from TEVA are no longer available. We will now be getting these caplets.They are shipping them to me today.I have to returb these capsules. I already have a call into my Dr. I am concerned if these are made by another mfg. how will this effect us or are all Riba the same regardless who the mfg is.
OMG I knew it would eventually thin out but I didn't know what stayed was going to be so bad. I go through tons of conditioner and nothing helps. Plus, I use so much hair spray trying to make the thin areas stay puffy and the frizz calmed down. By the end of my work day I look pitiful!!!!
Perhaps my hot white cashmere robe and nighty will help ;) It may have a few food stains by time I send it... Aren't those frizzies annoying?
Hello ladies and I too am a memeber of the tx hair loss club.I used to have a lot of thick shiny hair. I am on week twelve and now my hair has thinned on top and the bottom frizzes out. can't do anything with it. My part has become very wide! So, along with my pale, skinny body with ribs sticking out, bloodshot eyes I am one HOT MOMMA!!!!!!! LOL
hmmmm
Seems like there are a lot of us semi bald women clad in "food stained sweat" shopping on EBAy......probably good they can't see us converging on the wig table!
sfbaygirl I'll be burning my tx outfits as well, they will not even be worth keeping for rags by the time it's over. *grin*
Seems like there are a lot of us semi bald women clad in "food stained sweat" shopping on EBAy......probably good they can't see us converging on the wig table!
sfbaygirl I'll be burning my tx outfits as well, they will not even be worth keeping for rags by the time it's over. *grin*
LOL yep, if we cant' laugh about it, we would cry, so why not laugh? The good thing is IF I wash my hair, it seems to get curly and look sort of good, of course I don't look at the back! LOL But since I am told not to wash my hair too often, I get the nappy knots and can't brush through it, therefore it looks like hell most days cuz' I don't comb it. Ya gotta laugh, it will be over soon and we will get our cute thick hair back. Right now I'm kind of enjoying the humor in all this. When I walk to the door to let someone in and my hair is standing on end, I think, "Oh well, another day on tx that I have to become a bit more humble."
The donald comb won't work over my cowlick. I can't even put a band around my pony tail anymore, it falls out! What amazes me is how wirey it is, like a brillo pad, if I don't wash it everyday (I would really be bald if I did). Lately I have kinda been smoothing it back and sticking a clip in it without combing it. Looks lovely, but so does my wardrobe these days! That cashmere robe that has to be dry cleaned that John gave me for christmas, has GOT to go back. I can see the the drool and food on it already. Of course he bought a sexy nightgown to go with it. I think he had other things on his mind other than me being on tx and wearing it constantly!
Did your ins. co ever pay for your extention? I know you are on C2C, but was that resolved? Did they pay for your consult? Hope you are doing okay. I have been thinking about your wigs lately...may be time to get one!
I'm telling you - DONT hesitate if you aren't feeling good about your hair. Try to find one on ebay that looks like what your hair did and then get it. Psychologically it does WONDERS!
I've gotten so bad about it that I match them like shoes and pocket books to my outfits now LOL! :)
The Aetna NEVER paid another dime (except they still have to cover my Epogen and Ambien and junk). The doc told me many people are having this trouble because they are saying its experimenntal treatment. Idiots. When studies PROVE things out you'd think thats it. But they dont WANT to pay.
Imagine that they would pay for a transplant though? nice of them huh? Sorry we won't pay for six extra months to cure you but.........
ARGH!
Go on ebay and look up the wigs. Might as well have some FUN while on treatment! I tell you half of me says why do I ever intend to use my real hair again this is so much easier! :)
I've gotten so bad about it that I match them like shoes and pocket books to my outfits now LOL! :)
The Aetna NEVER paid another dime (except they still have to cover my Epogen and Ambien and junk). The doc told me many people are having this trouble because they are saying its experimenntal treatment. Idiots. When studies PROVE things out you'd think thats it. But they dont WANT to pay.
Imagine that they would pay for a transplant though? nice of them huh? Sorry we won't pay for six extra months to cure you but.........
ARGH!
Go on ebay and look up the wigs. Might as well have some FUN while on treatment! I tell you half of me says why do I ever intend to use my real hair again this is so much easier! :)
Wow, congratulations on almost being done - 70 of 72 weeks - I can't even imagine as I am only on 19 now. WHEW. Home stretch for you.
Also I am interested in wigs on EBAY - whats the price range on the good ones? How do you tell if they are "good" or not? My insurance FOR SURE won't pay for one - but I really need one for the ego boost and scarves just are NOT keeping my head warm enough and my knitted cap looks "dorky".
Also I am interested in wigs on EBAY - whats the price range on the good ones? How do you tell if they are "good" or not? My insurance FOR SURE won't pay for one - but I really need one for the ego boost and scarves just are NOT keeping my head warm enough and my knitted cap looks "dorky".
Hey, that's an idea. When I am feeling crumby and the repair guy shows up, I can throw on a wig instead of wrestling with this mess of hair I have now. I can't see the back, but I do feel the bald spots...doubt I have enough for a comb over!
Are those wigs on ebay real hair? I saw a shop with wigs that looked interesting, but I am sure expensive. Didn't you say that we can get scripts for $500 for a wig?
Those darn ins. co's are awful. They sent me a letter that I can appeal, so my appellate lawyer husband is going to write the letter. I need to call C2C and see if I can get the meds...do you have their number handy?
Thanks!
Are those wigs on ebay real hair? I saw a shop with wigs that looked interesting, but I am sure expensive. Didn't you say that we can get scripts for $500 for a wig?
Those darn ins. co's are awful. They sent me a letter that I can appeal, so my appellate lawyer husband is going to write the letter. I need to call C2C and see if I can get the meds...do you have their number handy?
Thanks!
800-521-7157 Committment to Care number.
I have to call them shortly myself to get my refills (my very last last ones yay!). It's so convenient just call and bam there they are at your front door :) for FREE!
I was going to buy a wig at a salon but they can be HUNDREDS of dollars. I figured I'd try one on ebay before I did that - even IF the insurance would pay (I have no trust for insurance companies anymore at ALL). I was wondering if I could even tolerate wearing one all day long so I thought hey I'll try it.
On ebay you can find them for $29.99 for KaneKalon synthetic hair or for a few hundred for real hair. I've gotten like six now and all of them were under $40 each. It's sort of fun one day I'm dark blond with brown streaks - the next day medium brown with blond streaks..............
:)
I just look at the pictures and see if they are what I want and then look at the persons feedback and decide.
It's fun. It's addictive too! ;)
I have to call them shortly myself to get my refills (my very last last ones yay!). It's so convenient just call and bam there they are at your front door :) for FREE!
I was going to buy a wig at a salon but they can be HUNDREDS of dollars. I figured I'd try one on ebay before I did that - even IF the insurance would pay (I have no trust for insurance companies anymore at ALL). I was wondering if I could even tolerate wearing one all day long so I thought hey I'll try it.
On ebay you can find them for $29.99 for KaneKalon synthetic hair or for a few hundred for real hair. I've gotten like six now and all of them were under $40 each. It's sort of fun one day I'm dark blond with brown streaks - the next day medium brown with blond streaks..............
:)
I just look at the pictures and see if they are what I want and then look at the persons feedback and decide.
It's fun. It's addictive too! ;)
I am thinking about getting one. Gosh mine is really starting to get thin in areas. In fact my husband said last weekend...I think you are getting a bald spot. I started to do a Donald comb over (kidding). Anyway I have cut my hair short (at least for me...chin length). Maybe I will check it out tonight. I only have 8 more and hoping I can make it. Literally at least a hundered or more come out when I wash my hair. Thank goodness I had lots of very thick hair.
Just let me know if you need anything else.
Those were from the lovely Mrs. O who helped me out when my insurance first refused to continue to pay for my treatments any longer (creeps).
Those were from the lovely Mrs. O who helped me out when my insurance first refused to continue to pay for my treatments any longer (creeps).
pdily - I had thick, curly hair - when it started comming out I only washed it once a week. I lost masses of hair every time I washed or combed it. It's really baby fine and straight now...I'd love the texture it if there were more of it...
sfbaygirl - I choked on my smoothie when you said "That cashmere robe that has to be dry cleaned that John gave me for christmas, has GOT to go back. I can see the the drool and food on it already"
BOY can I relate to that - cashmere is sooo comfey isn't it? I ruined my FAVORITE robe - but I still wear it 'cause it's warm, easy, covers everything, and does not irritate my skin. On the other hand I have worn the sit spot thin, and there are food stains I cannot get out!!! Thank goodness I live alone and don't have "drop in" visitors. I'm usually in the raggedy robe, with my wool "watchmans" hat pulled over my ears.
Caught a glimpse in the mirror this morning and for a second I thought a starved and crazed burgler had gotten in the house! I decided it MIGHT be time to do something about my apearance - even if it I AM the only person to see it.
sfbaygirl - I choked on my smoothie when you said "That cashmere robe that has to be dry cleaned that John gave me for christmas, has GOT to go back. I can see the the drool and food on it already"
BOY can I relate to that - cashmere is sooo comfey isn't it? I ruined my FAVORITE robe - but I still wear it 'cause it's warm, easy, covers everything, and does not irritate my skin. On the other hand I have worn the sit spot thin, and there are food stains I cannot get out!!! Thank goodness I live alone and don't have "drop in" visitors. I'm usually in the raggedy robe, with my wool "watchmans" hat pulled over my ears.
Caught a glimpse in the mirror this morning and for a second I thought a starved and crazed burgler had gotten in the house! I decided it MIGHT be time to do something about my apearance - even if it I AM the only person to see it.
I have sort of given up on appearances...yeah the WHITE cashmere robe just won't cut it! With my brillo hair, red rimmed eyes and a white cashmere robe dripping with Ensure, on, I am sure I will really wow those repair guys that seem to come so often. I have a closet to die for, everyone wants my stuff. Nowadays, I grab the nearest sweats or robe and that is my tx wardrobe. I plan on burning it all, along with those Riba's in a big fire when I am done with tx.
You ladies are a riot, I needed a giggle. I too look like ****, hair is starting to thin, daughter pointed out my new grey hairs (first ever), dark circles and when I got out the shower this morning all I could see was this pale white chick with bruises all over my legs, real attractive!
I've read this thread just now and it's wonderfully funny! Had me in stitches. NYgirl said "Go on ebay and look up the wigs. Might as well have some FUN while on treatment! I tell you half of me says why do I ever intend to use my real hair again this is so much easier! :)"
My hair? omg - I'm not even on treatment (and I don't have hypothyroid because they just checked me a few days ago) looks like something out of a horror movie when I wake up in the morning. I finally cut it short right before Christmas getting rid of that nappy rat's nest look, and then everyone noticed my prominent neck, and I thought "well this is just marvelous - got my hair cut nice and short and now everyone can see this prominent neck that might be a goiter" (smiling and rolling eyes).
I'm going to EBAY!
My hair? omg - I'm not even on treatment (and I don't have hypothyroid because they just checked me a few days ago) looks like something out of a horror movie when I wake up in the morning. I finally cut it short right before Christmas getting rid of that nappy rat's nest look, and then everyone noticed my prominent neck, and I thought "well this is just marvelous - got my hair cut nice and short and now everyone can see this prominent neck that might be a goiter" (smiling and rolling eyes).
I'm going to EBAY!
Oh, I can imagine it now...I cut my nappy brilo head to something short to see my chicken neck even more? Nah! Maybe some guys like those wobblers, but I don't! Funny you talk about nappy hair. My best friend (a 76 y/o black man from s.carolina) is here for a few days. I told him about my nappy hair, he said he will let me know when I need a wig...he hasn't seen those bald spots yet though! LOL
This thread was really funny and I needed a good laugh. This is all so me. It's almost scary. I live in flannel pajama paints and huge tee shirts, yeah with food stains on em. Hate to admit it but it's true. I'm glad I'm not the only one. My hair is so thin you can see my scalp right through the 10 hairs left around my hairline. And, I've gained 20 lbs. on treatment. I was so sure I'd lose but nooooo, not me. I'm one of the 1 in a 100 that gains. Oh, and did I mention it's all uneven weight gain in my neck and upper torso from those damn steriods that I had to take for the rash. If anything goes away after treatment, please let it be this line backer neck thing I have going on. Well, I'm off to ebay to look for wigs. lol
Char
Char
Yes I did Deb and thank you so very much. I was thinking I'll just take those till they run out and then start new ones.
Hey chick did you get the ones I sent to you?
It doesn't matter a WHIT what color they are or what form they are (pill, capsule) whatever as long as you are taking RIBAVIRIN. It comes in MANY names Rebetol, Copegus...it's the same stuff just the non-brand name.
You'll be fine. It's the same components just different companies so it looks different.
As long as it's riba of some form and the same dosage just take it. Who cares what it looks like - that is not important.
It doesn't matter a WHIT what color they are or what form they are (pill, capsule) whatever as long as you are taking RIBAVIRIN. It comes in MANY names Rebetol, Copegus...it's the same stuff just the non-brand name.
You'll be fine. It's the same components just different companies so it looks different.
As long as it's riba of some form and the same dosage just take it. Who cares what it looks like - that is not important.
I think we ALL "over react to everything that has to do with tx". Considering whats at stake - I thinks thats "normal".
I also freaked the first time my riba looked dofferent. My very patient and kind pharmacist explained about bio-equivalents and cost effectiveness as well as reassured me that he always presonally double checks the bio-equivalents to make sure.they are correct.
A good pharmacist will talk with you about your meds , as well as how the meds may react with any supplements you might be taking. If you make friends with your pharmacist - it could make a BIG difference in your comfort level.
I also freaked the first time my riba looked dofferent. My very patient and kind pharmacist explained about bio-equivalents and cost effectiveness as well as reassured me that he always presonally double checks the bio-equivalents to make sure.they are correct.
A good pharmacist will talk with you about your meds , as well as how the meds may react with any supplements you might be taking. If you make friends with your pharmacist - it could make a BIG difference in your comfort level.
Thanks - feel better - was a nervous wreck last night - I am sure by now you know how I over react to everything that has to do with tx. My computer at home is still down so I had to wait till this morning to talk to you about this!
I don't think it's a problem. During tx 1 I received only capsules and the manufacturer changed a couple of times. This tx it's been all pills, starting with the pink ones and now they are white aspirin-looking things. In tx 1 the riba came from a local pharmacy, in tx 2 both the peg and riba come from Aetna. It's the pharm getting the best price that they can. A long time ago, I placed some level of faith with Aetna and the local pharm that the meds they supplied were the accurate bio-equivalents that I needed.
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