Not a good day........ relaped

[Mister beagle bailey]

Hi guys,  Just got the news and it wasn't good.  Before tx --
VL  318,000
geno 2B
stage 0
grade1
UND  12weeks  AST 24  ALT 13
Now, relaped VL - 4 million  HGB 10.8  AST and ALT still low.  Doesn't make sense to me and Doc said can't go to 48 weeks because my HGB couldn't handle it.  He said there is a new drug due out in 2 years or less, that doesn't bring down the HGB and it has been used on HIV.  I was so up set, I didn't ask the name of the new drug or anything else about it.  I guess it wasn't in the cards for me.

Beagle

[avidreader]

I'm so sorry. I know you went through major life changes to accommodate treatment--it just doesn't seem fair because it isn't. I've been following our posts forwever and I've always enjoyed them. Please enjoy your time off treatment, re-group and don't let it get to you too much. I'll be thinking about you a lot today.

[Algernon]

If love from this community could have cleared your virus, you would be home free.

I am so so sorry.  

I know you'll have to grieve this one for a bit.  But keep your eye on the prize--the people you love and the life you live each day.

Electronic hug to you.  Algie.

[Gonna beat it]

I'm so sorry to hear about your relapse, I think with no liver damage you have plenty of time to wait, your in my prayers take care now!



Diana

[miked]

sorry

[NYgirl]

I can't even begin to know what you are going through and I wish more than ever before that there was SOMETHING I could do. I just knew if I willed it hard enough YOU would make it. I just didn't see this one coming, at all. And I have to feel like if I didn't - wow how much this must have hurt you to find out.

You've been such an incredible support in here.  Such a great friend. Such a spectacular human being you are. You know I had very little faith in "men" when I first joinned this board (having had the ex I did) and in here is where I really learned that there were a lot of loving, caring, decent, wonderful men in the world. You have helped me so very much. And now I sit here thinking "there is nothing I can do for him".

I've never felt so impotent in my life. I am just SO sorry.

Take this time to be bummed out. Thank God at least your liver isn't in very bad condition. Any chance you can see Dr. J?  Maybe do less Riba and add a Vertex for their short course or something for your hemo problem.  If anyone he would have the right discussions.  

HE is the one who told ME about the tremendous geno 2 / 3 relapse rates after all.

Maybe you could help each other out and he if anyone I think he would have the right way to go.

And then maybe I could come down and meet you and Mrs. Beagle over lunch or something.  Since I'll seemingly be on treatment forever and ever....I could make an appt to go see him no sweat ;)

I love you Bob you are a great friend and a wonderful person and I just am rambling but I don't have the magic words.  I sure wish I did.  

Debby

[mikesimon]

I am so damn sorry about this. I relapsed once and my viral load soared to the highest it's ever been and then decreased by half in a matter of one month so I'm thinking that yours will settle down too. It's very encouraging that your liver is in good shape. You'll fight and win another day. Good luck. Mike