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Pegasys/Ribavarin Post Tx Side Effects
Okay, it has been 1 year since ending 48 week tx. Switching yet again anti-depressants. Memory problems are so great I have difficulty driving (can't remember if I checked for traffic, keep checking and fear while driving that I forgot to check and will cause an accident). Still not working, although have made several attempts.
I am just wondering, is anyone following up on us post tx people? I read about the suicides (one local, 6 months post tx) and they say most if not all had relapses of the virus, or relapses into drug/alcohol abuse prior to suicide. Maybe the side effects are driving us all to relapses! Maybe this is a consipiricy to rid the world of those of us who have contracted the disease by "treating" us, thereby "killing" us???
I am not sure how much longer I can fake this functioning before I lose my house, my kid, etc.
zoomom
I am just wondering, is anyone following up on us post tx people? I read about the suicides (one local, 6 months post tx) and they say most if not all had relapses of the virus, or relapses into drug/alcohol abuse prior to suicide. Maybe the side effects are driving us all to relapses! Maybe this is a consipiricy to rid the world of those of us who have contracted the disease by "treating" us, thereby "killing" us???
I am not sure how much longer I can fake this functioning before I lose my house, my kid, etc.
zoomom
IceFire -- Nice to meet you - And I wanted to let you know that this post is more than a year old.
If you're still feeling horrid after TX --- Get YE to a doctor that can work with you.
Start off with your regular doctor - ask for testing on AutoImmune Disorders.
Get your Rheumatoid Factor checked.
Then go see a Rheumatologist (a doctor that deals with arthritis).
Now --- about the "SNAPPING" part --- Yeah?
Get over it.
You have one mind - you've been through a lot - now deal with it.
Go see a psychologist. If you're having emotional issues --- You might just need to speak it out --- or you might need medication.
You might just need TIME for yourself.
Now --- about asking things again and again --- and feeling blank.
USE YOUR TOOLS AVAILABLE...
Get yourself a Daytimer --- or a notebook - write down your questions and answers....
Or the things you want to know.
ABOUT your hair --- See a beautician that deals with Chemo patients... You may have to call around - but some of them have some decent ideas, vitamins - or shampoos that can help.
Now - about the eyes..... It may be just age - it may just be that you're tired now... It may be your platelets - it may be that you need some extra vitamins -- you may need a lotion --- ASK THE DOC...
About it taking you time to write things - yep - sounds like you might have Rheumatoid Arthritis or Fibro....
Check into it.
Much luck to you.
BUT BE PROACTIVE ON YOUR OWN HEALTH CARE.
You can do it --- I'm sitting here with pom poms --- Cheering you on.
Start running NOW!
Meki
If you're still feeling horrid after TX --- Get YE to a doctor that can work with you.
Start off with your regular doctor - ask for testing on AutoImmune Disorders.
Get your Rheumatoid Factor checked.
Then go see a Rheumatologist (a doctor that deals with arthritis).
Now --- about the "SNAPPING" part --- Yeah?
Get over it.
You have one mind - you've been through a lot - now deal with it.
Go see a psychologist. If you're having emotional issues --- You might just need to speak it out --- or you might need medication.
You might just need TIME for yourself.
Now --- about asking things again and again --- and feeling blank.
USE YOUR TOOLS AVAILABLE...
Get yourself a Daytimer --- or a notebook - write down your questions and answers....
Or the things you want to know.
ABOUT your hair --- See a beautician that deals with Chemo patients... You may have to call around - but some of them have some decent ideas, vitamins - or shampoos that can help.
Now - about the eyes..... It may be just age - it may just be that you're tired now... It may be your platelets - it may be that you need some extra vitamins -- you may need a lotion --- ASK THE DOC...
About it taking you time to write things - yep - sounds like you might have Rheumatoid Arthritis or Fibro....
Check into it.
Much luck to you.
BUT BE PROACTIVE ON YOUR OWN HEALTH CARE.
You can do it --- I'm sitting here with pom poms --- Cheering you on.
Start running NOW!
Meki
Wow...this is the best forum I've come across to date..I'm now post tx 17 days and Keep asking myself ...WHY do they offer all these classes & different doctor check-ups, make sure you can handle the tx but they DO NOT offer U a darn thing for AFTER treatment ?
I'm NOT handling this well at all....It almost seems as though my symptoms are worse now that the tx is over......The w/drawals were really weird to go through & still am......The thought of going through a year of ...(**** I can't think of the right word) and I've always thought of myself to be intelligent...Oh yea ..
"recovery" makes me wonder why I didn't try other avenues first.....I have sooooooo many questions....
Some sound vain but I don't feel that way....
How long into POST tx before I can stop asking the same questions over & over 'till I get snapped at 'cause I ask it over & over, sometimes just minutes later...?
& how long really before I can "wash this gray right out of my hair.." ? & the constant pain that I feel more of (post tx) & the "faking" too funny, I'm so tired of that too...Or looking in the mirror & 'seeing' the thinning hair, sunk in eyes w/dark saggy circles I never had & on & on & on.....the 'Episode" (I call them) when you feel like you're going to SNAP at the sound of a voice & IF you had a pistol you'd probably use it (at that moment) Well it's taken me 28 minutes to write something that normally would have taken me 3-4 min.
I feel for everyone going through this horrible tx...Higher power to ya all
I'm NOT handling this well at all....It almost seems as though my symptoms are worse now that the tx is over......The w/drawals were really weird to go through & still am......The thought of going through a year of ...(**** I can't think of the right word) and I've always thought of myself to be intelligent...Oh yea ..
"recovery" makes me wonder why I didn't try other avenues first.....I have sooooooo many questions....
Some sound vain but I don't feel that way....
How long into POST tx before I can stop asking the same questions over & over 'till I get snapped at 'cause I ask it over & over, sometimes just minutes later...?
& how long really before I can "wash this gray right out of my hair.." ? & the constant pain that I feel more of (post tx) & the "faking" too funny, I'm so tired of that too...Or looking in the mirror & 'seeing' the thinning hair, sunk in eyes w/dark saggy circles I never had & on & on & on.....the 'Episode" (I call them) when you feel like you're going to SNAP at the sound of a voice & IF you had a pistol you'd probably use it (at that moment) Well it's taken me 28 minutes to write something that normally would have taken me 3-4 min.
I feel for everyone going through this horrible tx...Higher power to ya all
I need help i am on my 9week of treatment feel like i am going to die with my side effects cant eat am very week cant walk up the stair my husband thinks it just me my friends tell me just suck it up and keep going my body tells me you are not going to make it someone help. I cant sleep cant walk harding have no energy am taking now not only those med for treatment put iron pills for low hemoglobin, and stomach pills for the sickness in my stomach
I got terribly tired of "faking it", but I found that too much venting, for me, maybe not others, just makes the state of mind worse. I find that this forum is the best mind distracter. I still wake up at night with negative thinking. The first place I go is here, with people I respect. (I am so sorry Rev is gone. He told the truth as he sees it.) In half an hour, I turn positive about life, people and quickly become sleepable. Sometimes, I make a comment if it seems of value, which always makes me feel good: I have gained so much from this site I like to give back. I doubt I will ever leave.
See? Still bad focus and my usual post-tx rambling.
Regarding depression drugs: I have found, without exception, they all have side effects, which to me is proof that they will contribute to further sickness with only temporary benefit. Soon, the hooked, IMO, will need a drug for those side effects. The best "lift" I have found, post-tx is limited coffee and 10 ounces of raw vegetable juice. Stay away from too much sugar, it is a depressant. However, the depression drugs are of very much value to pull you through this phase. If you keep thinking about "wanting to give them up" pretty soon they will no longer be needed, I think.
Post-tx exercise is very beneficial if you are negative for 6 months, but there are no rules on this. I just was afraid of the dangers of lowering the immune system until this point (I am now 7 mo post-tx, neg). Of course, mild exercise is very beneficial during tx, I think. Both my hcv docs agree fully on this issue.
I found renting movies like Borat helped my attitude. Al
See? Still bad focus and my usual post-tx rambling.
Regarding depression drugs: I have found, without exception, they all have side effects, which to me is proof that they will contribute to further sickness with only temporary benefit. Soon, the hooked, IMO, will need a drug for those side effects. The best "lift" I have found, post-tx is limited coffee and 10 ounces of raw vegetable juice. Stay away from too much sugar, it is a depressant. However, the depression drugs are of very much value to pull you through this phase. If you keep thinking about "wanting to give them up" pretty soon they will no longer be needed, I think.
Post-tx exercise is very beneficial if you are negative for 6 months, but there are no rules on this. I just was afraid of the dangers of lowering the immune system until this point (I am now 7 mo post-tx, neg). Of course, mild exercise is very beneficial during tx, I think. Both my hcv docs agree fully on this issue.
I found renting movies like Borat helped my attitude. Al
Wait a minute - I was just reading along here and came to WillPower's comments about exercise. I've never heard that exercise lowers your immune system! Is that really true? I feel subhuman until I sweat every day! Part of my plan for successfully making it through Tx is regular exercise of some sort. And my memory is already pretty crummy. I'm not pleased about the idea of it getting dramatically worse! :-(
By the way, after nearly a year of delays, I will be having my first injection tomorrow. I am 1a, stage 3, 50 years old.
By the way, after nearly a year of delays, I will be having my first injection tomorrow. I am 1a, stage 3, 50 years old.
Oddly enough, when needing a name for this forum, I used WillPower since "during tx" I needed mind-over-matter, so to speak to survive! It was tough and post-tx it is still tough, but I get some energy from being post-tx negative at 6 months. I still have memory problems, the same amount of rash issues and increased depression. The negativity is going away, but depression still requires WillPower or, aka, "faking it" which is not easy.
Now that I am negative I am not as aftraid to work out to my exercise heart rate and lift weights. I am finding that "seems to be" helping. I have been very cautious with exercise because my hep-c doctor said that exercise lowers the immune system.
I suggest you be careful about taking the typical drugs for remedial reasons. They are horrible for the body. Also be careful about putting "too much of-record" about depression because that can turn against you from a documentation stand point.
For me, will power was the best therapy, aka, "faking it" which is very lonely because nobody understands what you are going through. This disease has been the most torturous and fearful experience of my life. The fact is "we/you are in it" and we need to share our innermost thoughts, IMO with an intimate friend for release reasons, but be careful who you share "instability" issues with, is my "honest" advice. Going for depression drugs is a crutch and will end up taking you down more than the torture of "faking it".
I truly think that this forum needs a "post hcv tx" group that documents all clinical side effects we all experience after tx as well as research we find on the net. This would be very heuristic.
The best in y/our struggles. WillPower
Now that I am negative I am not as aftraid to work out to my exercise heart rate and lift weights. I am finding that "seems to be" helping. I have been very cautious with exercise because my hep-c doctor said that exercise lowers the immune system.
I suggest you be careful about taking the typical drugs for remedial reasons. They are horrible for the body. Also be careful about putting "too much of-record" about depression because that can turn against you from a documentation stand point.
For me, will power was the best therapy, aka, "faking it" which is very lonely because nobody understands what you are going through. This disease has been the most torturous and fearful experience of my life. The fact is "we/you are in it" and we need to share our innermost thoughts, IMO with an intimate friend for release reasons, but be careful who you share "instability" issues with, is my "honest" advice. Going for depression drugs is a crutch and will end up taking you down more than the torture of "faking it".
I truly think that this forum needs a "post hcv tx" group that documents all clinical side effects we all experience after tx as well as research we find on the net. This would be very heuristic.
The best in y/our struggles. WillPower
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