Got My 4Wk.Post Tx. Test Results

[Texas714]

Dx 1/08 with HCV 2b
Cirrhosis & VL of 45 ML
At 4 weeks, VL was UND as thru tx.
4 wk. post tx test done.
Dr. called...It's back.
I'm discouraged and disappointed.
Guess I need some time to get my head around the news.
Hope seems a waste of time today.

[Trinity4]

Sorry about the relapse.  I hope things work out in the future.  Don't give up -  
Trin

[shappychic]

You don't happen to be a nurse from Delphi??

[Myown]

So sorrry to hear this.I am a geno 2b also and was RVR - told I had 90% chance of SVR. I stayed UND all thru tx and was still UND 4 weeks post and then at 9 weeks post I relapsed, but not with a vengence, VL was only 87,000 and then climbed eventually to 40 million but was 3 million before start of 2nd round.

Hang in there. I know how you feel - many of us know, unfortunately - and even those who went on to SVR and never relapsed, I have a feeling they can imagine how it feels because though they haven't experienced it, we all fear it and imagined the pain and how relapse would feel if it happened.

No one wants to see anyone relapse. We may not all get along, but I sincerly believe that everyones heart breaks when they read a member failed tx even if its someone they have argued with or whatever.

I hope you feel better soon so that you can work on a "plan B" with your doctor. I am about half way thru my second tx.

Again, I am very sorry for your news. I know how you feel and my heart goes out to you.
Take care,
MO

[CoWriter]

So very sorry : (

Your doc should have treated you for 48 weeks since you have cirrhosis.  Make sure you let him know so he doesn't do the same to the next person.  

[meNtoby]

It doesn't help to hear that geno 2's are easy to treat, and then you get this news.  I'm so sorry this happened. Don't they say that by treating you have still slowed or stopped the damage?  You're the second person I've seen with geno 2 (like me) that had a viral load as high, or higher than mine.  I wonder if they don't give enough consideration to that when we treat.  This is a weird thought, but I've also wondered how sure they are of genotype, or if there is ever an error on that test too.  I guess now is the time for just re-grouping. I'm sure that everyone here feels your pain, I certainly do, and it brings tears to my eyes.

I get my hope from those who have SVR'd, but I get my determination from those who don't. The fight goes on, and you will be back to kill the beast too. Love and hugs from Missouri,

cathy (on shot 3)

[can-do-man]

Sorry to see that you relapsed, just never give up hope girl. Im also am a relapser that has cirrhosis. Been that way for quite a while now and still doing fine, still having fun and driving people crazy. One thing i know is that you texas gals are pretty tough cookies.

Lots of good things going on with the new PI's out there so soon we too will be on that SVR bus. Shoot i think they should let us drive it. Try and put a smile on that pretty face of yours and give em He11 girl. Wishing you the very best.

cando.... and so can you!!!

[Texas714]

Thank you for your comments and links and advise.

I've got to get my head in a better place.  I can hope for that, I guess.

jmjm...My vl is pretty high from the test...but my Dr. wants me to re-test.  He said don't get my hopes up too high but it needs to be done.  I don't even feel like doing that to tell the truth.  I need to have some imaging done and I can't even bring myself to schedule that right now.

I feel empty...except for that bug eating me alive.
Thanks again to all.  You have made this journey easier for me.  It's not nearly as lonley as it could be.

[jmjm530]

Sorry, but re-test in a couple of weeks. We've had several members showing low levels of detectible virus shortly after treatment only to test UND on re-test. Could be a false positive. But even if the viral load was high, still re-test. In fact, you should always re-test any postive that follows a negative.

[zazza]

I am so sorry. The hope I can give you is that with cirrhosis you have a better chance of treating 48 weeks even if you are a geno 2. So maybe you just treated too short?

[portann]

It's so hard for me to hear your news without feeling pain. We all know we're gambling going into treatment but it's like falling off a cliff to hear that we gambled and lost. Comeagain knows first hand and my hat goes off to him for here he is, smiling and cheerful, reminding us that there is hope in the darkest moment. I believe him.

[comeagain]

If you click that link i sended you its not the articel that comes up you should read
but at the right theres a topic column you can use, I`ve got the link from Double Dose thread yeasterday and i´m almost sure I read there about someone who was stage 4 but got back to 3 after tx although relapsed.

I´m a bit overactiv sometimes so I was looking alt a lot of articels , but i think it was in one of the articels about biopsy.
ca

[comeagain]

So sorry for you, i screamed and cryed out my dissapointment when i relapsed.

No when getting closer to the end of my current tx I´m starting to get paranoid of  the thoughts thats gonna happen again.
As HCA said  you need time.

And hope not is not out, you managed to do the tx not everyone does. your liver may have improved by tx here is a link with lots of good information. http://www.hivandhepatitis.com/hep_c/news/2005/ad/072205_a.html


Take care

ca

Ps i mean since you managed to go through tx you are a candidate for telaprevir or som other more effectiv tx then regular soc next time

[nygirl7]

I'm so sorry that this happened to you - it seems to happen to the best people, just so you know you've got some great company!

A LOT of the people who relapsed and had to retreat have gone on to be completely cured so please don't give up.  I can't imagine how disheartening it is to have gotten that news but there is hope so please try to hold on to that.

Let us know if there is anything we can do to help you, again I"m so sorry I wish I could make magic and take it away for you.

Debby

[LindaC1207]

I'm so sorry to hear about your relapse, how awful for you but please do not give up hope, this is such a slow moving virus and the drug pipeline is constantly working on better drugs.  Stay in the day and remember, your not alone!

Linda

[HCA]

Genuinely sorry to hear about your relapse.
How many weeks did you do?
You need time to deal with your emotions.
I don't know about alternative strategies for advanced 2b but maybe others do.
Live for today.
70% of Hep C cirrhotics still have normal liver function ten years after development of cirrhosis.