Problems with biopsy results

[Healed24]

Hello to all. I have a question that I hope you guys can give me some advice on. Yesterday I got a letter from my docs office telling me that they want me to come in for another biopsy. The hospital where I had my biopsy done may have mixed up people's results during the time I had my orginial biopsy. I am on week 26/48 and I was seriously considering quitting treatment because I am having a terrible time with the sx. I thought I was Stage 0/Grade 0 (from orginal biopsy results), had a low vl prior to tx 208,000 and cleared at week 11 (Oh, by the way I'm geno 1A, had virus for 7 years). With those stats I thought I would have a good chance at SVR even if I quit early, but now I'm unsure because I may be a Stage 0/Grade 0 and I could have significant damage.

I wanted to ask you guys if I should let them do another biopsy, and how reliable will be since I've been on tx so long? Do you think it's just too late and I should just forget and stick with treatment until it's over? Eventhough I think it may be too late I really want to know how much damage (if any) I have.

Thanks to all.
Brooke

GOD BLESS

[scubadiver30]

Hola
So what you're saying is that I shouldn't take that Fibroscan test as at least 90% accurate? hhmm shoot. I really thought this device was the equivalent of a 4D ecograph like the ones they use now for pregnant women. Well, I guess I'm gonna have to take a little trip to florida and ask for a real good ol 'bx

Abrazos
scuba

[painintheside]

I agree with cuteus. I think it is sooooo important to have an actual biopsy done. Go for it.....you probably won't regret it. I sure didn't (even though it came back bad for me).

And for the other.....ask for second opinions from some other doctors and maybe see if dna would work in this case.

Sincerely,
Dana

[scubadiver30]

hello everyone
Sorry to barge in. I got my FIBROSCAN today. No need to do fibrotest (doctor dixit)
Stiffness (KPa) 3.4
IQR 1.0 KPa
CS 3.2 KPa
Success rate 78%. I guess my other doctor had Xray vision after all. I'm F0-F1 according to the Metavir scale. I was told to come in next year (with new blood panels, another eco and another genotype yet). The new doctor he wants to verify the 2 genos thing,said that I shouldn't tx just yet. So I guess I'm gonna wait 1 or 2 years. I asked for bx he said no. The third doctor that says that :-(...Let see what happens.
Thanks for everythin. You are all in my prayers

saludos from Spain

[wMich]

Hello healed24,
I'm thinking you should stick with treatment if at all possible. If there WAS a mix-up in your bx results, the correct results could only be 0/0 or worse and you already chose to treat your HCV thinking you had minimal liver damage (0/0). I'm told that 1a's that "clear" at 12 weeks and follow the med regimen for the duration (in your case 48 wks) have a good chance at SVR. I'm in week 15 and hoping for just that myself. I know that quitting early or deviating from the regimen only decreases one's chances at SVR. Hang in there, you're halfway home!
  - Lee

[cquest]

Don't take anyones advice here w/o asking your doctor or another doctor...What you get here are just opinions of lay persons that happen to have knowledge about this disease because we have it and care about each other...
Cin

[Healed24]

I'm not exactly sure what happened at the hospital or when they want to do another biopsy I only received a letter from my Doc's office yesterday. So if I understand you guys right, there is no way they should be doing another biopsy while I'm on tx? If so do you know how long I should wait and have one after tx? Even if they retest the samples, I'm not even sure I'll believe them now. And, what should I do about quitting tx now? I'm so confused.

Brooke
GOD BLESS