My congratulations to you and best wishes for the future. I just had my 6 months post TX bloodwork done this morning and I am very nervous. It will be a few weeks before I have the results and will know if the treatment was successful.
What I would like to address is the lack of support for us. I would like to find a support group or a discussion panel because I was very very sick during treatment and need to know how others are coping. I need to talk about this and find I'm not getting the answers from the medical community because unless one has been through this, they have no idea what it's like. I think this treatment is fairly new within the last 2 or 3 years (not sure). My specialist told me it would be like having the flu but who has the flu for 48 weeks? It was brutal and after having finished for six months now, my immune system is still compromised and I catch everything.
Before the Interferon treatment I had arthritis pain and during treatment that was gone. Now it's back with a vengence. I felt frustrated this morning because the nurses in the department taking care of people with HIV and HepC haven't got a clue about what I went through and I feel like I'm complaining. I was open and honest with my job about having HepC and had to take a year off work and nobody at the office asked me how I got it. I find that even the nurses are curious about this and it offends me.
I live in Toronto Canada and wonder if anybody on this forum knows of a support group in this city.
I believe this is something that would benefit people like us and am even willing to start a group if I get any interest.
Keep well and thanks for listening.
Mary
Congratulations and best wishes.
It's to hear of another SVR.
Rosebud
Just wanted to say congratulations. It is very inspiring, every time one hears someone made it. Thanks for the fresh wind...and the sunshine... and congrats again!
Marcia