Good bye my dear forum specially kristina, scruples, force, maracia, nygirl, marrybee

[alijee]

im to complete 8th week. i have a computer operator job.For last 5 days i m feeling that i cant continue job more. i m thinking to get long leave of 3-4 months. i have no internet facility at home and going to net cafe is not possible for me. weakness is culprits for all this. Tx is very hard  and rough for me. Some days are so bad that i hardly manage myself to go to bathroom. i cant stand for 3 minuts. Though my job is not difficult but................weakness weakness weakness.

i dont know whether i will manage to complete the tx. i afraid i will stop it. but believe me i really wish i can complete the tx. i want to live virus free but when tx disturb me, i think the tx will kill me before the virus kills me.

i  m very thankful to you all for supporting me and giving me useful advices. You all are great people. i dont want to leave you all. i m realy attached with you all very much. when i come to job and on the computer the very first work i do is to open the forum site. i m very sad that during my leaves i will lost all your company, friendship and encouragement.
i specially thankful to my best friends kristina, maracia, scruples, force. nygirl, marrybee. They remained very close to me every time and were supporting me. They came to help me whenever i was in trouble. i really dont want to leave this forum but i m disturbed by weakness. i know that i will be isolated during stay at home but what can i do???.

Sometimes i feel that i will never returned to my job and this tx will kill me. Any how time will decide my destiny.

approval of leave will take 5-15 days. So i have got i little time to meet with you great people. i request you all to keep in touch during this little time. Here is my address and contacts if some wants to keep in touch during vacations.


Mailling address

Sajjad Hussain
Mohallah Baghwala Mujahid Chowk,
Close street Jhang Sadar, Punjab , Pakistan.
Cell No. 0092-03346301046
Email: ***@****

[jmjm530]

Everyone has well meaning advice but only you know how you feel.

The majority here are able to continue working during treatment in one capacity or another and no doubt draw from their experience.

Others, and I include myself, were unable to work and pretty much ended up on a couch or bed for the majority of treatment. Yes, I would have loved more human contact during treatment -- workplace or social -- but I was unable to function anywhere close to a level where I could be somewhere at a certain time and remain there for a certain time.

Don't know much about your stats but if you don't have significant liver damage the option always exists to stop treatment. Sometimes that is never mentioned here but it's not only a legitimate option in some cases but a smart option, in my opinion.

I'm not saying you should stop treatment, but if it comes to that don't think you've failed, just look at it as another option -- as the whole point of treatment not to finish at any cost but to do more good than harm.

-- Jim

[charm27]

I know what you are going through...tx can be worse for some. I am going on my last shot 52 on Friday . Its a long road but worth it to help your liver.

I wish you well. Try to hang in there. Your not alone.

I know about the fatigue and weakness I had that BAD.
It was so bad I couldnt get into the shower.

It will get better..its a rollercoaster........
Be well.

[copyman]

hang in their my friend. things will start to get better soon. just my opinion but i also think you should stay at work. at least if you are working you will have access to this forum for help. best of luck

[Marcia2202]

Please hang in there, whatever you decide with your work. I think you will feel better once your Riba gets reduced. You are on a mega dose! I won't be very long, I feel like big krap myself... Lots of hugs, Marcia

[Kristina538]

OMG - that makes you ... ummmm - Where's Zazza and her calculator?   - glad you're feeling a bit better today.

Ali - didn't mean to 'commandeer' your thread;  don't every give up on feeling 'great' again,  it WILL happen!!!

[comeagain]

"I´ve been infected 25 years got it when I was 19 have had stiffnes"
should be 35 years

[Kristina538]

If approval takes 5-15 days, you just may have improved a little by then.  AND if you do the rest of tx at home (and I am now on week 19 and am wondering why I'm not working -although during the week 3-9 I would not have been able to),  I'm sure you'll get the opportunity along the way to log in an update us.

Also, many of us have assumed your weakness is due to anemia, and, off the top of my head, you may also be lacking in some other area (per Marcia's comment), like potassium, B12.   Are you taking any vitamin supplements, as I know you're having trouble eating some things and have bowel problems similar to me in the early couple of months.    

You have endured so much already and hopefully you will be seeing some relief soon.   Only another week before your next blood work.   I'm praying you do well,  but hope, more than anything, that something triggers some physical and mental relief for you, whether it be a food that you CAN stomach,  a better day,  some increased energy.....    Hopefully, just applying for leave will take some pressure off and co-incide with your symptoms easing.....   certainly worry or physical discomfort can contribute to weakness.      

So, keep in touch over the next 5-15 days... we all know that the roller-coaster of tx changes day by day and we will continue to pray for your well-being and improvement.   You ARE actually doing really well, considering how hard you've been hit, and many people find they can't work,  some people can;   with my IBS and my need for nutrition, I felt I was able to give tx a better shot by not working full-time.  You may have the option to go back when you improve a little.      I wish you the very best and hope to hear from you soon.

[comeagain]

I can relate to all health issues due to having HCV.
Also been a sportsman until I´ve got 17teen then the drugs took all my attension.
Been out of drugs for more then 20 years now even ciggarets 17 years.

I´ve been infected 25 years got it when I was 19 have had stiffnes, bone ,joint and muscle , loverback and knee pain for more then 20 years and severe fatigue, insomnia ,bad temper among other disturbing issues.
The cracking sound in knee is all to familiar.

But as others has stated the first 8- 12 weeks are the worst, long leave sounds good in my opinion you may need all the rest you can get and if not working you probably will get enough energi to take a walk now and then ( and you need them walks) to the internet cafe´.

I´m a geno three I relapsed first tx 24 weeks because I was to fat and got to little riba I think and hope.

But the positiv thing is that although relapsed my liver improved so much that all the trouble I´ve earlier have mentioned ,three months post tx was almost totally gone and I felt better stronger then in 25 years.

That it was motivated me to do another treatment 10 months after the first.
First tx was real hell this time not even 1/4 of it most of the time,  still have my very bad moments now and then  though, hasn´t been out of bed for three days the last days yesterday felt much better though went out for a couple of ours, think I might have been exposured to flue or something.

Take care there is hope of regaining the good all days.

ca

[scruples]

I agree with epiphiny. you have done the hard work ( 8 weeks) , maximum ppl says that first 8-10 weeks are really hard and then life getting easy. you have gone throgh it , if you affoard get your pcr tested now or wait till next 4 weeks. i have discussed your prob with my doc a bit and he says your weekness may be due to dirreha coz according to him also your weight decrease and hgb level is not considered bad. he suggested immodium capsule for dirrehea problem. He says just go for next 4 weeks and then get tested , once pcr negative, riba dose can be reduced. Dont loose heart dear you have gone through the hard times and bright green future is ahead

As far as past is concerned, i used to be a cricketer and used to go to gym daily, i was diagnosed for HCV in 2002 and before one year of this diagnosis my health started getting down. my body started becoming loose and bulky, i was totally d-shaped instead of exercise, my frustration and irritation was very high, i used to dejected and tired all  the times, i had to left the gym and had to stay on jogging which also ended due to tiredness etc. I used to have pinching pain in ankle and also started having knee joints pain and cracking sounds came from my knees when i sit or stand and during prayers. in summary all health eas getting down n down. Now too, my hair are thinning, my weight loosing and several other problems like depression ( it reduces due to meeting with people and getting engage in daily life) body aches , cold etc but I AM LOOKING FOR FUTURE WHEN I'LL B SVR ( I am UND) and life will as bright as before.

just see the future, look for this pain what you are going to achive. Just go for leaves of 2-3 days , take rest and analyse which is better, on leave or on work, definitely you will get the answer. Improve your food and take juices etc.      

[epiphiny]

I agree with scruples - please try to get reduced hours rather than stopping going to work all together.  It would be very difficult to do this tx alone, and if you have no internet at home you will be isolated.

Also, I know you mentioned that you have tried ADs before but they made you dizzy and nauseous but perhaps you could try a different kind?  I find Prozac very gentle and easy, but it was the second one I tried.

It is hard to believe there are good things around the corner when we feel so miserable, and it is hard to believe that the good days will come back but THEY WILL.  Spring always follows Winter, ALWAYS, without fail.

You have nearly finished week 8!  What an achievement!!  The first 8 weeks are the hardest without a doubt, then things start to stabilize, your body is more adjusted to the meds and you will become more accustomed to your lower levels of energy.  At week 12 you will have your viral load test to see if you are UND.  That is only 4 more weeks away!!  Yes, it is really hard going but you are doing it, and you are doing great!!

Hang in there Alijee, no sudden moves, eh?!

God Bless

Epi :)

[alijee]

sometimes i also think that i have not lost too much weight and hgb is also not so bad but i dont know what is the cause of this extreme fatigue and weakness. May be it is due to my IBS problem.  i talked to doc and said that weakness is common. i know that weakness is common during tx but i think if someone has to remain on bed then something is wrong.
i can understand the importance of meeting different people. it is very helpful to reduce the tension. i will try to find out another way. But if i dont, then i will go on long leave. i m also thinking to start antidepressent becuase i m feeling too much depression due to this weakness. Nothing can make me depressed but it is only health which makes me much anxious. i m too much anxious about health. it is since i have first attack of hcv in jan 2003. i remained on bed for 1.5 months and was recovered by homeopathic mdcn. Leg fatigue remained as problem during 2003 to uptill now.  i was very young, energetic and full blooded boy before hcv.   i used to run 6 kilometer daily on morning walk. i used to go to gem. i was most energetic of all my friends. My friends wished to be healthy like me. but all that things are dream. Now i hardly walk even 20 meter. when i rememer it i cry a lot. i wish those days will come back.i remember, in 1998 i donated  blood to a patient, i felt a little weakness for 1-2 days and then was ok.

i have only hope nothing more.

[scruples]

welll....... to be honest... i will suggest you to continue job/work. i have read your posts in which you have mentioned that you are getting depression/frustation etc during tx and in one post you also mentioned that some meds create sucuidal thinkings in you.... so leaving alone in house or lying on bed all the day will definitely going to increase your depression/ rustration. Instead of getting leave , try to get work load off or reduced.

getting to work, meeting with different people, sharing your feelings with others all will help you to reduce tx. I have read somewhere that during tx mental and psychological support is more required. Anyhow thats your decision , you the one who can judge it better. But if you are getting so week then consult other doc.

Loosing weight of one kg in 8 weeks and hgb of above 12 is not bad at all, many people here will wish this decrease as compared to their own. I lost 3 kgs in 6weeks of tx, my muscel size was reduced , most of fats on my body reduced , my hgb stays around 11 after that but these first weeks are difficult as our body get use to it and then we feel better , now with hgb of 11, i walk around 1-2km easily , however moving upstairs kills me. my sx really reducing , although some new sx like rashes appearing but weekness and fatigue reducing. However, i feel very weekness and dizzy after urination... But things getting better now, plz reconsider your decision.