Aa
SEVERE rash people. plz read...
I'm wondering ....for those of you that unfortunately developed a real severe rash, to the point of almost having to stop treatment. OR, if anyone out there acutally had to stop treatment for a rash.....how quickly was the onset of the severity? Was it gradual, or did it become severe in a matter of a few days?
I will tell you why I want to know...I am trying to have grace towards my doctor, but I'm disappointed in that she has not returned my call for 2 days now. I was told to call her about the rash I am developing, by you all, and also by the INCIVEK nurse. So i did, yesterday morning. I told her office staff that it was not an emergency but that I was letting her know, as I realize it is a commen sx of this drug.
BUT....here's the thing...( there is always 'the thing" right?) I realize that I am not her top priority, but considering that I am her FIRST naive patient, and more importantly her FIRST incivek patient, you would think she would have a little more interest in me and how this rash is doing. Right? I mean, it IS the most serious side effect of this drug. Or, am i being unreasonable? Obviously if I had gotten worse I would have called again, but I still think she should have called by now, just to assess me over the phone. IMHO I was told it is important to nip it in the bud before it gets out of control.
That is why I want to know how quickly these serious rashes can come about. I want ammunition in case I decide to "talk' to her.
Thanks....Debbie
I will tell you why I want to know...I am trying to have grace towards my doctor, but I'm disappointed in that she has not returned my call for 2 days now. I was told to call her about the rash I am developing, by you all, and also by the INCIVEK nurse. So i did, yesterday morning. I told her office staff that it was not an emergency but that I was letting her know, as I realize it is a commen sx of this drug.
BUT....here's the thing...( there is always 'the thing" right?) I realize that I am not her top priority, but considering that I am her FIRST naive patient, and more importantly her FIRST incivek patient, you would think she would have a little more interest in me and how this rash is doing. Right? I mean, it IS the most serious side effect of this drug. Or, am i being unreasonable? Obviously if I had gotten worse I would have called again, but I still think she should have called by now, just to assess me over the phone. IMHO I was told it is important to nip it in the bud before it gets out of control.
That is why I want to know how quickly these serious rashes can come about. I want ammunition in case I decide to "talk' to her.
Thanks....Debbie
If I knew what I know now I would have left the office on day 1 with a handful of prescriptions. If you break out in a rash redeem this one, if you have blood problems redeem this one, ETC ETC. Of course that is what my fantasy world would be.
PS I just asked today for a new cortisone prescription and my PC Doc gave me something better then I was using, so he says, I'm waiting for it to get to the pharmacy tomorrow. I let you know what ii is and if it does work better then the what I'm using now. Although I don't have the rash to badly, just here and there, but it would probably be worse if I haven't been using the creme.
I get the feeling that some doctors who treat hep c just want to deal with the blood problems and all the other stuff is not really their expertise. They would rather you go to another doctor for what they consider the simple stuff. I sat down with my Primary Care doctor before I started and asked him if he would be there for me to help me do what ever I had to to get through. He seemed thrilled that I asked him and he is always there for me immediately if I need a prescription. Of course my hep doc knows everything I'm taking and using. I just don't get to talk to the hep doc often, he's always tooooo busy. So I keep the simple thing away from him.
"Just to be clear, presently my rash is tolerable. This isn't about needing her to call in order to get a presription for relief.....although if she does call, I will ask for one."
Well I have to say that I now feel I got suckered into answering this post. I did get the impression that you had what you suspected was a 'severe' rash and you were in real trouble. Maybe because of the word 'Severe' in the title. If I chimed in on every post about a rash I would be here 24/7 writing about my experience, so I only do so when I feel there is really trouble and I can make a difference. I'd go easy about crying wolf if I were you. You may really need to some day.
dointime
Well I have to say that I now feel I got suckered into answering this post. I did get the impression that you had what you suspected was a 'severe' rash and you were in real trouble. Maybe because of the word 'Severe' in the title. If I chimed in on every post about a rash I would be here 24/7 writing about my experience, so I only do so when I feel there is really trouble and I can make a difference. I'd go easy about crying wolf if I were you. You may really need to some day.
dointime
UPDATE: OK, my Dr. has been redeemed. She called me and apologized for taking so long to get back to me. Very crazy week so far, her PA is out this week, their new electronic records/ messaging system is causes some delays in when she gets her messages, etc.
Bottom line, we talked, she asked me to send her a pic of my rash through the phone, and she gave me her personal cell number...her idea. She said she wants to get any urgent messages I may need to get to her ASAP.
I knew there was a reason I liked her, despite her lack of triple therapy experience. :)
Peace!
Bottom line, we talked, she asked me to send her a pic of my rash through the phone, and she gave me her personal cell number...her idea. She said she wants to get any urgent messages I may need to get to her ASAP.
I knew there was a reason I liked her, despite her lack of triple therapy experience. :)
Peace!
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