SX - Mental Confusion?

[singinlady]

My husband started Pegasys/Ribavirin on June 3rd. He's been suffering the exhaustion, insomnia, restlessness, nausea, and now is starting to have mental confusion (yesterday) that is really bothering him. He had to actually leave work yesterday because he could NOT think straight. It's happening again today? He's tried to calm down, but that doesn't seem to help. Is this maybe because of the insomnia or is this something he can expect for the duration of the Treatment?

[Tony-z]

Was That Toast with eggs or without....Scrambled,,,That I can relate to.....Just cant seem to remmember...






                     Blessings


                         TonyZ

[singinlady]

VERY good point... I never thought of it that way. You're right, we should probably search for a new Gastro who has HepC experience. thnx

[Laika]

My PCP would be clueless as could be about monitoring a person for hepC.  My feeling is that this might not be a very good idea.  If your husband has some of the problems that may arise during treatment, the ignorance of the dr could cause him further difficulties.  Here are some examples:  when your hemoglobin gets too low, your dr should know to prescribe you procrit (to boost your hg) and not reduce your ribaviron except as a last resort.  Some drs just reduce the riba right off.  When your wbc's get too low, they can prescribe you neupogen to boost them back up...but some drs just want to reduce your interferon dose.  Dose reduction may jeopardize your killing this virus.  Another thing that happens in a small percentage of cases is loss of one's thyroid.  If this should happen, you do not want your dr to take you off treatment!  You can take thyroid hormone along with the hepC treatment.

The point is not to have anything jeopardize your treatment.  Do it right, do it ONCE.

I would try to find a good gastro with plenty of hepC experience or a hepatologist.  You can always post here to hunt someone good in your area.

Laika

[singinlady]

Yeah... the anxiety... WHEW! I love what you said... "I have to wrk twice as hard to think half as much" Isn't that the truth! The doctor's office is so pompous that when they returned his call about the lab slips they never even asked how he was feeling. Can you believe it? He wants to find out if our Primary Care Doc can do his regular monitoring and then he only has to see Dr. Pompous for his milestone checkups. If that is not an option, then I think we will have to shop around for another Doc.

[singinlady]

Scott... Yeah, my husband is in his fourth week right now. He was pretty much pale as a ghost this morning. I hope the lab slips come soon. The Brain Fog posts are great! Kind of makes him feel like he's not alone in all of this. That in itself helps. You are right... It's never the same couple of bad days and you can never predict how you might feel. Right about when he feels like he is not doing so bad, BAM! We are very glad to be getting all of this wonderful support! It really does make a difference. Thnx

[singinlady]

We actually heard back from the Doctor's office yesterday (miracle) and they are sending him all of the lab slips he will need, so he can just go to the lab down the street and get his blood drawn. I am anxious to see what frequency they will be for. Man, you must have died when you realized you never gave your boss the phone call... Maybe we should start calling it Brain Smog instead of Brain Fog, because it stinks... lol