Should I try again?

[hep62pj]

ok my post got buried about 300 pages down -- wow there are alot of heppers here haaa -

i got some good replies, i was on the virimadine trial and was asking if i should tx again..and alot of replies said that virimadine is not too effective, i might respond better on standard riba ...

i have had 4 genotype tests done and everyone said undetermined ... and ever since they dropped me from the trial they would not tell me anything they said the drug co has the info and they cant get it...

[NYgirl]

I would find a reputable hep doc or GI in your area and get the tests done - and make sure I had a copy of everything myself.

My doctors office doesn't just GIVE me copies I have to call every time and ask them to fax them - and then they do so I have a hard copy.  when you go to a doctor you really OWN the results so it's no problem.

I would find out what your geno, grade/stage, viral load and liver enzymes are for real and then work on deciding.

You really can't make an educated opinion without all of those (not so sure really about the viral load but figure why not).

Do you have ANY of those answers?

Still - you need a real doctor and a real treatment pehaps.  I hope you can find a good one!

[hep62pj]

yes i have been thru all this **** 3 years ago, THEY HAVE NO IDEA WHAT MY GENOTYPE IS AND THEY CANT FIND OUT with the current tests, they treated me in the trial like type A...

i have asked the hospital many many times for info on the trial but they refuse to give me anything..

i have had many test done but it has been over a year since i have thought about treating again ...

i guess i will get another biop before i decide, see if its progressing, i did not have too many side effects from the first tx but who knows how much worse it will be with the riba as opposed to the virimadine and it still probably wont work

[hep62pj]

i do not mean to be shouting there but... im tired of telling people i dont have a genotype haaaaa i have posted this info on so many boards and the dr's are puzzled and i have never ever found anyone else who is 'untypeable' ... ever ...

so maybe i have a very rare strain or something i dont know...

[Kalio1]

We have recently been visited by "hepresearcher" who is an expert in the field of testing, maybe if you address him in your post heading he can shed some light on this for you and possibly lead you to some answers. That must be frustrating, maddening even! It seems you would be of interest to researchers of HCV to me.

[sfbaygirl]

That is interesting that you have no type. I would probably try again, depending on my biopsy. If I were a stage 1 or 2, I think I would wait....

[Pdilly]

Hey how have you been lately?  Any more trips?   Have  not seen much of you.  Seems like a few folks are starting to drop off a bit and new ones joining us.  What week are you on now?

[sfbaygirl]

Hi, nice to see you too! I just got back from Lake Tahoe, it was wonderful! We go back after Christmas for a week. It is nice to get away!

How are you doing? Well I hope!

[desrt]

I have heard of this happening with another person, the explanation given "the virus had mutated past the point of typing". Not really sure what this means, if anything, or what would cause it.