Aa
Signs of relapse
Did anyone have a clue they relapsed post treatment before the 12 week PCR?
Yea I know some who felt worse 3 weeks after tx then during think both andiamo and
Lady Lauri did and some more that now are SVR.
ca
Lady Lauri did and some more that now are SVR.
ca
Thank you all so much.
I started drinking lots of water again and the pains for the most part seem to have gone away for the past 2 days. I never thought about all the readjustment our bodies have to go through to bring all our levels back to normal. Thank you Merrybe for bringing that out. When the tx is over, we expect to just feel better and better and when something happens...we freak out.
Back to thinking positive!!!
I started drinking lots of water again and the pains for the most part seem to have gone away for the past 2 days. I never thought about all the readjustment our bodies have to go through to bring all our levels back to normal. Thank you Merrybe for bringing that out. When the tx is over, we expect to just feel better and better and when something happens...we freak out.
Back to thinking positive!!!
It sounds as though you are well in touch with your body; it is hard sometimes to differentiate from paranoia and intuition (especially when your intuition is usually a good guiding light AND your brain is a little toxic with the meds!!). I wouldn't go with your intuition right now - sometimes it's hard to recognise; perhaps check your LFT's.
I suffered joint pain in 1994 during tx and it remained for a few months afterwards, but was disappearing as my VL and ALT's climbed (not much liver damage then and not enough knowledge on nutrition and supplements)..
This time around I had tennis elbow and wrist tendonitis PRIOR to tx and both have disappeared - either the IFN, the riba, or the drop in inflammation, but at least there is ONE good sx. I get bone pain sometimes but believe it's par for the course while my body's working so hard.
So, from my meagre experience, the tx can cause and can rid your body of various aches.
November is a BIG month for many on the site; may I be the first one to offer a group prayer :-)..
I suffered joint pain in 1994 during tx and it remained for a few months afterwards, but was disappearing as my VL and ALT's climbed (not much liver damage then and not enough knowledge on nutrition and supplements)..
This time around I had tennis elbow and wrist tendonitis PRIOR to tx and both have disappeared - either the IFN, the riba, or the drop in inflammation, but at least there is ONE good sx. I get bone pain sometimes but believe it's par for the course while my body's working so hard.
So, from my meagre experience, the tx can cause and can rid your body of various aches.
November is a BIG month for many on the site; may I be the first one to offer a group prayer :-)..
I know it's tempting to start to be convinced...but remember just coming off the Interferon can cause a backlash resulting in all the symptoms you described. In fact autoimmune stuff and fevers are common while on tx, AND while coming off and readjusting to lower levels of INF. Also, you WBC starts back up, which is good...but all those fighter cells can make you feel ill when they spike back to normal levels.
Anyway, I wouldn't get too worried. I've had "symptoms come back" twice and both times it was a false alarm. My number were better each time and my PCCR still UND.
sometimes I think the worry itself can cause some major probs in the mid tunmmy and right quadrant....at least with me, when I am upset or worried about anything, thats where pain traditionally shows up now.
so be of good cheer, you aren't defeated yet, and won't know for certain until you are tested. Take a deep breath and I'll say a prayer for you.
mb
Anyway, I wouldn't get too worried. I've had "symptoms come back" twice and both times it was a false alarm. My number were better each time and my PCCR still UND.
sometimes I think the worry itself can cause some major probs in the mid tunmmy and right quadrant....at least with me, when I am upset or worried about anything, thats where pain traditionally shows up now.
so be of good cheer, you aren't defeated yet, and won't know for certain until you are tested. Take a deep breath and I'll say a prayer for you.
mb
mmm ok we are talking about relapse right? not pregnancy? I think there are women who know when something in their body changes, Instincts, and feelings have a 50% chance of being right, also 50% of being wrong. I think I am very intuitive.
I think Debs point was to tell people they know when they relapse can be frightening to newbies.
Her being gorgeous has nothing to do with that. (she is) Not quite sure how that fit into the conversation? Surprised me actually.
I can see people sitting around waiting for the feeling, People who are not so intuitive.
Attitude and studies even show faith can have a postive outcome on disease.
Deb
I think Debs point was to tell people they know when they relapse can be frightening to newbies.
Her being gorgeous has nothing to do with that. (she is) Not quite sure how that fit into the conversation? Surprised me actually.
I can see people sitting around waiting for the feeling, People who are not so intuitive.
Attitude and studies even show faith can have a postive outcome on disease.
Deb
I'm such a strange bird I never once tested positive for pregnancy with my first-born. The doctors were quite baffled but had to admit I gave birth to a very healthy boy. I didn't lay a dinosaur egg.
I'm so glad you're feeling better.
I try to tell myself my odds for SVR are better than buying a lottery ticket. I behaved like a practical person at my intake for treatment, very cool, understating my expectations to the doctor. Now that I've invested so much after twenty-one weeks, I don't feel cool at all. I only want one outcome.
In the end, que sera que sera, whether I take the outcome in stride or do a plain and simple freak-out.
http://ca.youtube.com/watch?v=xzGV9Bl6CGg&feature=related
I'm so glad you're feeling better.
I try to tell myself my odds for SVR are better than buying a lottery ticket. I behaved like a practical person at my intake for treatment, very cool, understating my expectations to the doctor. Now that I've invested so much after twenty-one weeks, I don't feel cool at all. I only want one outcome.
In the end, que sera que sera, whether I take the outcome in stride or do a plain and simple freak-out.
http://ca.youtube.com/watch?v=xzGV9Bl6CGg&feature=related
Not to get off the relapse subject, but I knew I was pregnant the day after I conceived and asked the doc for a test. I had wanted to get pregnant for a long time and instantly felt a pulling feeling in my uterus area when it happened. He thought I was NUTS but sure enough I was pregnant. I miscarried but that's another story. Maybe some of us are just more in tune with our bodies or a bit physic.
As far as my relapse fears, I am thinking more positive today thanks to all of you.
As far as my relapse fears, I am thinking more positive today thanks to all of you.
Nygirl: Many of us are uh not so young any more and we have bone pain.
Hmmm ....that used to be something I got more when I was younger, studlier, and generally had a higher face value, if you get by drift....
Hmmm ....that used to be something I got more when I was younger, studlier, and generally had a higher face value, if you get by drift....
Never knew I had the disease until last year - 30+ years infected and never knew it. Went UND somewhere around 15 - 16 wks - never felt the change - what I DO FEEL are the effects of tx drugs everyday. Now that feeling is irrefutable.
"Not only is it some of the most "silly" information I've ever seen given on this forum but it makes me wonder if you believe too that dinosaurs coexisted with people 6,000 years ago."
You know, Deb, I love how more-than-strongly opinionated you are and I'm wowed by your gorgeous good lucks but could you please re-read what you just said and tell me that you're not over the top here? I knew when I was pregnant even though the tests said negative and that little fishie was mighty tiny.
I only believe that gingko trees lived in the dinosaur age.
You know, Deb, I love how more-than-strongly opinionated you are and I'm wowed by your gorgeous good lucks but could you please re-read what you just said and tell me that you're not over the top here? I knew when I was pregnant even though the tests said negative and that little fishie was mighty tiny.
I only believe that gingko trees lived in the dinosaur age.
just a few weeks into my 48 wks TX The brain fog and arm pain and numbness went away also had cryo. A few weeks after finishing TX I felt really great better and clearer thinking than I had in many years. About 10 weeks post TX I felt the old brain fog roll back in and wondered if I had relasped way to busy to worry about it. At my 12 wk test sure enough C was back. It has been 2 yrs now and no arm pain or numbness also tested neg for cryo so Im happy I TX even tho I still have C. Had the bug for 36 yrs now going to hang on to it a little while longer until the newer drugs are approved.
Saying such absolutely "silly" things about relapsing is going to make everyone who ever gets a bad fever with the sweats just sure that they are not winning the fight against hepatitis. It gives an irresponsible impression that people can certainly feel it happening when/if it does. They can't. Maybe perhaps you are the only human being on the planet who can feel virons coming to life - but the other 99999.99% of the population can't, won't, shouldn't and didn't.
Not only is it some of the most "silly" information I've ever seen given on this forum but it makes me wonder if you believe too that dinosaurs coexisted with people 6,000 years ago.
Nothing person to YOU but for newcomers just beginning this course of treatment and all it's many side effects - it gives them a false impression that they should just NOT buy into.
Not only is it some of the most "silly" information I've ever seen given on this forum but it makes me wonder if you believe too that dinosaurs coexisted with people 6,000 years ago.
Nothing person to YOU but for newcomers just beginning this course of treatment and all it's many side effects - it gives them a false impression that they should just NOT buy into.
Oooo, are we all having fun today or what?. For those that may think anyone said they felt the virons 'replicating', well I'll be nice and just say that was 'silly' to say.
But some people, such as myself, felt or "knew" when they 'got sick again,' - but we use the term 'relapse,' with HCV when this happens,,,,so in the middle of the night I "woke up sick" and I knew it wasn't the mumps, measles, chicken pox or flu, but golly gee, I did have hepatitus C and maybe, just maybe, the virus was coming back!! It really wasn't hard to figure out, so please everyone take a seat and please stop the applause, really, I feel so humbled.
And so anyway, I was UND at 4 weeks post as mentioned AND possibly the virus started "replicating" the 5th week or 6th - who knows? I wouldn't ~feel~REPLICATION, just as I can't ~see~ the virus in my blood, yet,, that doesn't mean its not there.
But, what I do know, is that the 9th week (or maybe 8, don't remember),,,,,I did wake up in the middle of the night SICK - sweating and numbness in hands feet and tongue......I knew it came back - just as Texas knew by joint pain.
And btw we do feel the Flu when we get it - we feel when 'the symptoms hit', but the moment the flu germ actually started to go thru our body - I would imagine we wouldn't feel the germs spreading, but eventually - a day or 2?,,, We all of a sudden feel achy and that something was wrong with our body. So what week after 4 weeks post, did it start replicating then?? - dunno, I wouldn't be able to tell that,,,, BUT, the symptoms of 'feeling sick' happened 9th week during one night.
There have been some people that "felt" the acute stage of the virus - they got sick - for others, like myself,I didn't feel my acute stage,, my 'first' clue was just raised enzymes, but that doesn't mean those people who got sick at the acute stage or even those that later on "felt" sick was imagining it (in the chronic stage.)......It is not something that people make up - some do feel sick when they first get the virus, or some feel sick after having it for years and NOW some of us said we felt it come back after tx.....We know its known as the "Silent Killer," but it really isn't all that silent at times. Just as there are divisions in what people believe of post sx - some people think people are obsessive,but I happen to believe that lots of people suffer from fatigue from this virus when they are infected and some during tx and some still suffer fatigue after SVR. I never had fatigue except early on this 2nd treatment, but I don't think that the people are making it up or that its not true because "I" don't "feel it." I don't consider them "obsessing."
I remember someone once said there is no pain like your pain (or something like that )- meaning we all have our own experience and how we deal with it, but I see that many people don't accept things unless they have tasted it themselves. Well to be honest with you all, though some may have tried to insult me, I honestly hope that you never taste what I tasted - I would rather have you insult me and not believe me or whatever - then to have to go through the "gut feeling" of "its back", just to prove myself right and hear you then have to say .. oh wow Myown is not mental, she was right....Nah, I wouldn't even want to see that happen to people that might be trying to annoy me - while I am trying to get through my second tx.
My labs prove what I felt was real and BTW my enzymes were NOT indicative of relapse - they were NORMAL, yet the virus was back. So gotta run my friends, fellow heppers and supportive people.
Huggy wuggies,
MO
But some people, such as myself, felt or "knew" when they 'got sick again,' - but we use the term 'relapse,' with HCV when this happens,,,,so in the middle of the night I "woke up sick" and I knew it wasn't the mumps, measles, chicken pox or flu, but golly gee, I did have hepatitus C and maybe, just maybe, the virus was coming back!! It really wasn't hard to figure out, so please everyone take a seat and please stop the applause, really, I feel so humbled.
And so anyway, I was UND at 4 weeks post as mentioned AND possibly the virus started "replicating" the 5th week or 6th - who knows? I wouldn't ~feel~REPLICATION, just as I can't ~see~ the virus in my blood, yet,, that doesn't mean its not there.
But, what I do know, is that the 9th week (or maybe 8, don't remember),,,,,I did wake up in the middle of the night SICK - sweating and numbness in hands feet and tongue......I knew it came back - just as Texas knew by joint pain.
And btw we do feel the Flu when we get it - we feel when 'the symptoms hit', but the moment the flu germ actually started to go thru our body - I would imagine we wouldn't feel the germs spreading, but eventually - a day or 2?,,, We all of a sudden feel achy and that something was wrong with our body. So what week after 4 weeks post, did it start replicating then?? - dunno, I wouldn't be able to tell that,,,, BUT, the symptoms of 'feeling sick' happened 9th week during one night.
There have been some people that "felt" the acute stage of the virus - they got sick - for others, like myself,I didn't feel my acute stage,, my 'first' clue was just raised enzymes, but that doesn't mean those people who got sick at the acute stage or even those that later on "felt" sick was imagining it (in the chronic stage.)......It is not something that people make up - some do feel sick when they first get the virus, or some feel sick after having it for years and NOW some of us said we felt it come back after tx.....We know its known as the "Silent Killer," but it really isn't all that silent at times. Just as there are divisions in what people believe of post sx - some people think people are obsessive,but I happen to believe that lots of people suffer from fatigue from this virus when they are infected and some during tx and some still suffer fatigue after SVR. I never had fatigue except early on this 2nd treatment, but I don't think that the people are making it up or that its not true because "I" don't "feel it." I don't consider them "obsessing."
I remember someone once said there is no pain like your pain (or something like that )- meaning we all have our own experience and how we deal with it, but I see that many people don't accept things unless they have tasted it themselves. Well to be honest with you all, though some may have tried to insult me, I honestly hope that you never taste what I tasted - I would rather have you insult me and not believe me or whatever - then to have to go through the "gut feeling" of "its back", just to prove myself right and hear you then have to say .. oh wow Myown is not mental, she was right....Nah, I wouldn't even want to see that happen to people that might be trying to annoy me - while I am trying to get through my second tx.
My labs prove what I felt was real and BTW my enzymes were NOT indicative of relapse - they were NORMAL, yet the virus was back. So gotta run my friends, fellow heppers and supportive people.
Huggy wuggies,
MO
Imagine what would happen if we all relied on our paranoia to self-diagnose?
Why oh why didn't I become a psychiatrist, I'd be RICH RICH RICH!!! Oh, thats right, because then I'd have to spend each day with delusional people.
Why oh why didn't I become a psychiatrist, I'd be RICH RICH RICH!!! Oh, thats right, because then I'd have to spend each day with delusional people.
When I cleared on my second TX I didn't have a clue that I cleared - aside from my liver enzymes. Within 2.5 weeks stopping TX my viral load went from < 5 IU/ml to 6.85 million IU/ml and again, I didn't have a clue, an inclination, a foreboding, a night sweat or any sense at all that I had relapsed.
Mike
Mike
Anybody who seriously thinks they could tell when one virus replicated into two and begin a process of relapse needs mental help. That would mean that you would know immediately when you got this disease, the flu or any other ailment.
Like I said, we are getting older (and God knows this treatment surely pushes us a little bit farther down that path QUICKLY) and pains and aches that before didn't exist surely do now. I never had a pain in my hip in my life and I am now convinced I need hip replacement surgery. I'm still obsessive just like on treatment but now I know better.
You are fine, take some ibuprofen and enjoy the beautiful fall weather!
Like I said, we are getting older (and God knows this treatment surely pushes us a little bit farther down that path QUICKLY) and pains and aches that before didn't exist surely do now. I never had a pain in my hip in my life and I am now convinced I need hip replacement surgery. I'm still obsessive just like on treatment but now I know better.
You are fine, take some ibuprofen and enjoy the beautiful fall weather!
What you described is exactly what happened to me. They thought it was RA. I had a high RF factor too. Thanks for your honesty. What is happening here is what you described to a T. Hopefully its just old age, but as bad as felt during tx, it was a relief to have no joint pain. I hope it will be ok and will keep you posted when I get the results.
Thanks again....
Rita .
Thanks again....
Rita .
Hey Gal...this joint pain is most likely more connected to my age than anything else!
I'm sure you will get a good report.
I'm looking forward to your good news!
I'm sure you will get a good report.
I'm looking forward to your good news!
Thanks for the messages and the hugs from Elaine (hug back to you). I will try to chill, stop being paranoid, listen to 8 ball saying I am SVR.... but the joint pains in my ankles and wrist are creeping back. I am going to be positive and take some advil and try and forget.
Rita
Rita
Yes I relapsed after tx. Showed back up at 4 weeks.
I am not trying to predict anything or scare anyone, I was only sharing my experience.
The pain I spoke of was not bone pain. It was in my joints...the joints in my hands and wrists. That is what drove me to the doctor in the first place and how I found out I had HCV. I was tested for RA and my liver panel was out of whack....neg. for RA.
Once I started tx the pain in my joints in my hands and wrists left. I couldn't believe it. I ask my dr. about it and he said he thought the pain in my joints might have been from the viris. Once tx was over the pain started creeping back and it worried me.
My vl before tx was 45ml. I don't know if that could have any bearing on the pain in my joints or not. I was a rvr maybe that's why it left..und at 4 weeks. At 4 weeks post tx my vl was right back up to 1ml. maybe that's why I could feel a difference after tx. I'm stage 4 and maybe that has something to do with the effects.
I am not a doctor, and I'm sorry if I alarmed anyone. That was not the intent.
I apologize. I only meant to share my experience.
I am not trying to predict anything or scare anyone, I was only sharing my experience.
The pain I spoke of was not bone pain. It was in my joints...the joints in my hands and wrists. That is what drove me to the doctor in the first place and how I found out I had HCV. I was tested for RA and my liver panel was out of whack....neg. for RA.
Once I started tx the pain in my joints in my hands and wrists left. I couldn't believe it. I ask my dr. about it and he said he thought the pain in my joints might have been from the viris. Once tx was over the pain started creeping back and it worried me.
My vl before tx was 45ml. I don't know if that could have any bearing on the pain in my joints or not. I was a rvr maybe that's why it left..und at 4 weeks. At 4 weeks post tx my vl was right back up to 1ml. maybe that's why I could feel a difference after tx. I'm stage 4 and maybe that has something to do with the effects.
I am not a doctor, and I'm sorry if I alarmed anyone. That was not the intent.
I apologize. I only meant to share my experience.
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