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Start Combo tomorro (pegasys
Hi,just wated to thank all of you for comments.I've been watching
over the past week...I am 60 and was diagnosed with hep non a-non-b in 1966.Iforgot all about it until 1996 when my doctor told me i had hep-c...in 96 had biopsy mild no fibrosis...viral count 2.5 million...no symptons...in feb 2004 my alt and ast were high for3 consecutive LFT and had another PCR viral load was 10.9 million still no symtoms...other than getting old...I'am a genome 2b...i know my loads high so i decieded to start.hope the side effects are not to bad...Will keep you posted
over the past week...I am 60 and was diagnosed with hep non a-non-b in 1966.Iforgot all about it until 1996 when my doctor told me i had hep-c...in 96 had biopsy mild no fibrosis...viral count 2.5 million...no symptons...in feb 2004 my alt and ast were high for3 consecutive LFT and had another PCR viral load was 10.9 million still no symtoms...other than getting old...I'am a genome 2b...i know my loads high so i decieded to start.hope the side effects are not to bad...Will keep you posted
Hi,
Couldnt figure out how to change nickname but originally signed as lost and confussed.
anyway thanks for putting this into a little better perspective for me. I sometimes feel like I need to tranform my entire self to get better, But you are right we are people and this is a virus.
KILL THE DAM_ _ _ VIRUS !!!!!!
I am trying to eat better and take vitamins and exercise now but I have to be me too.
as my daughter says
YOU ROCK
Couldnt figure out how to change nickname but originally signed as lost and confussed.
anyway thanks for putting this into a little better perspective for me. I sometimes feel like I need to tranform my entire self to get better, But you are right we are people and this is a virus.
KILL THE DAM_ _ _ VIRUS !!!!!!
I am trying to eat better and take vitamins and exercise now but I have to be me too.
as my daughter says
YOU ROCK
The peg pen and riba pills killed the virus. the lifestyle modifications and herbal/holistic/meditative measures healed me. There's a big difference.
Many of my lesser problems disappeared as soon as I cleared the virus in 18 dys, altho i fin 24 more wks. things like-joint mobility. high ammonia levels which cause hepatic encephalopathy. brusing and bleeding problems, skin problems. sound and light sensitivity. depression and confusion and forgetfulness. I was drowning in my own toxins my liver couldn't process. i was not a happy camper, at all. I give all props to my loved ones who actually had to live thru my toxic stage.
B/cl'ing the virus was only part of it for me. Repairing the damage and preventing any more damage is the real trick. I do beleive that once you clear, you are cured. B/the damage remains. And now its becoming appearant that some damage(fibrous) can be reversed.
And this whole bs about worrying about how one may respond to tx mentally and using that to deny tx borders on the criminal! This is a virus--not a lifestyle issue. Who's to say the very things that some a--hole thinks might 'hinder' tx are actually symptoms of the disease the person is trying to cure? Its just a cure--a medical cure for a virus. you don't have to be born again or 12 step your way into tx. It is everyone's right to cure a virus. Not just the straight, sober and rightous. It's just a virus-not a sin or test-its a virus and should be treated and feared for what it is a virus.
Many of my lesser problems disappeared as soon as I cleared the virus in 18 dys, altho i fin 24 more wks. things like-joint mobility. high ammonia levels which cause hepatic encephalopathy. brusing and bleeding problems, skin problems. sound and light sensitivity. depression and confusion and forgetfulness. I was drowning in my own toxins my liver couldn't process. i was not a happy camper, at all. I give all props to my loved ones who actually had to live thru my toxic stage.
B/cl'ing the virus was only part of it for me. Repairing the damage and preventing any more damage is the real trick. I do beleive that once you clear, you are cured. B/the damage remains. And now its becoming appearant that some damage(fibrous) can be reversed.
And this whole bs about worrying about how one may respond to tx mentally and using that to deny tx borders on the criminal! This is a virus--not a lifestyle issue. Who's to say the very things that some a--hole thinks might 'hinder' tx are actually symptoms of the disease the person is trying to cure? Its just a cure--a medical cure for a virus. you don't have to be born again or 12 step your way into tx. It is everyone's right to cure a virus. Not just the straight, sober and rightous. It's just a virus-not a sin or test-its a virus and should be treated and feared for what it is a virus.
Hi,just wated to thank all of you for comments.I've been watching
over the past week...I am 60 and was diagnosed with hep non a-non-b in 1966.Iforgot all about it until 1996 when my doctor told me i had hep-c...in 96 had biopsy mild no fibrosis...viral count 2.5 million...no symptons...in feb 2004 my alt and ast were high for3 consecutive LFT and had another PCR viral load was 10.9 million still no symtoms...other than getting old...I'am a genome 2b...i know my loads high so i decieded to start.hope the side effects are not to bad...Will keep you posted
Welcome on Board Sailor,
I'm a male 58 yrs of age with ex-HCV geno 2B & a profile similar to yours. A month ago, I finished Tx of 26 weeks with a combo PIG-Intron....hahah...haha...lol...plus Riba. Felt OK most of the time. In my case, the HCV was undetected after 4 weeks & continued to be so at 12 weeks HCV-PCR test. Just done the blood works & ALT plus ATP are normal for the first time in 25 yrs. although, the final verdict will come in another 6 months, when I do the HCV-PCR test again. I plan to stay NEG & I hope you do too.
WELCOME on board the USS FREEDOM.....should the WAVES hit the boat pls hold on tight! Come to this forum & you'll always find help.
GOOD LUCK & BEST WISHES
over the past week...I am 60 and was diagnosed with hep non a-non-b in 1966.Iforgot all about it until 1996 when my doctor told me i had hep-c...in 96 had biopsy mild no fibrosis...viral count 2.5 million...no symptons...in feb 2004 my alt and ast were high for3 consecutive LFT and had another PCR viral load was 10.9 million still no symtoms...other than getting old...I'am a genome 2b...i know my loads high so i decieded to start.hope the side effects are not to bad...Will keep you posted
Welcome on Board Sailor,
I'm a male 58 yrs of age with ex-HCV geno 2B & a profile similar to yours. A month ago, I finished Tx of 26 weeks with a combo PIG-Intron....hahah...haha...lol...plus Riba. Felt OK most of the time. In my case, the HCV was undetected after 4 weeks & continued to be so at 12 weeks HCV-PCR test. Just done the blood works & ALT plus ATP are normal for the first time in 25 yrs. although, the final verdict will come in another 6 months, when I do the HCV-PCR test again. I plan to stay NEG & I hope you do too.
WELCOME on board the USS FREEDOM.....should the WAVES hit the boat pls hold on tight! Come to this forum & you'll always find help.
GOOD LUCK & BEST WISHES
I'm the 26 yr old man referred to above.. Quick question, does the geneotype have an effect on the amount of damage?? Also I say a study that stated men show more deterioration than females with hepc.. To the woman starting tx, are you a drinker, and have you always led a healthy life..
I am 26, stage 3 fibrosis, geno 1a.. Did not get any symptons till high school. Docs now say that that is very common, as that is when drugs and alcohol come into the picture.. I smoked weed heavily, did cocaine, tripped LSD,
ate numero
us pills, and was the keg party king!!! I guess that ten years of this pay a toll??
As of biospsy, I do not drink.. Recreational drugs were stopped back in 98.. I take lots of antioxidants.. Grape seed extract, vitamin e, c, alpha lipoic acid, milk thistle, and N- acetyl Cysteine..
Nac is very important as it has been documented to promote the bodies natural production of gsh, which decreases cell damage.. Particularly in the liver.. I am going to do everthing possible to stop this disease.. I owe it to my wife, of only a year, and the large family she wants..
My doctor says that vitamin E is the most important antioxidant to take, and recommends 800iu daily..
I believe, and research states that I can stop progression, and possibly reverse damage..
By the way, my mother has had this dragon longer than me, as she gave it to me.. She refuses biopsy, and ultrasound showed a lession or mass in one area.. Tumer marker came back good.. She has tried three or four docs, only to be refused treatment.. Her viral load was 4.5 million, a year ago, and test last month cam back 2.3 million..The docs that she has been referred to, want to do everything else, but treat her.. Bt this I mean colonoscopies, and other tests.. She believes doc to have anal fixation and not going to satistfy it on her..Are these test necessary for treatment of woman 52 years old???
To: thepoet
Relaxe. Face life with a smile, and be greatful for what you have, not what you feel you are owed.. I am a 26 yr old white male.. I grew up in Jamacia for most of childhood.. I no what is like to be outcast and looked down upon.. It just made me prove to them I could do everthing they could.. I would climb taller coconut palms than they would dare, I would chase the bulls to get them in the pen, could chase down a chicken for the cook, would spear fish and sell to local restuarants.. I proved to all, that I was not different.. I am brother to many!! Race is but a state of mind, not a color of skin..
I am 26, stage 3 fibrosis, geno 1a.. Did not get any symptons till high school. Docs now say that that is very common, as that is when drugs and alcohol come into the picture.. I smoked weed heavily, did cocaine, tripped LSD,
ate numero
us pills, and was the keg party king!!! I guess that ten years of this pay a toll??
As of biospsy, I do not drink.. Recreational drugs were stopped back in 98.. I take lots of antioxidants.. Grape seed extract, vitamin e, c, alpha lipoic acid, milk thistle, and N- acetyl Cysteine..
Nac is very important as it has been documented to promote the bodies natural production of gsh, which decreases cell damage.. Particularly in the liver.. I am going to do everthing possible to stop this disease.. I owe it to my wife, of only a year, and the large family she wants..
My doctor says that vitamin E is the most important antioxidant to take, and recommends 800iu daily..
I believe, and research states that I can stop progression, and possibly reverse damage..
By the way, my mother has had this dragon longer than me, as she gave it to me.. She refuses biopsy, and ultrasound showed a lession or mass in one area.. Tumer marker came back good.. She has tried three or four docs, only to be refused treatment.. Her viral load was 4.5 million, a year ago, and test last month cam back 2.3 million..The docs that she has been referred to, want to do everything else, but treat her.. Bt this I mean colonoscopies, and other tests.. She believes doc to have anal fixation and not going to satistfy it on her..Are these test necessary for treatment of woman 52 years old???
To: thepoet
Relaxe. Face life with a smile, and be greatful for what you have, not what you feel you are owed.. I am a 26 yr old white male.. I grew up in Jamacia for most of childhood.. I no what is like to be outcast and looked down upon.. It just made me prove to them I could do everthing they could.. I would climb taller coconut palms than they would dare, I would chase the bulls to get them in the pen, could chase down a chicken for the cook, would spear fish and sell to local restuarants.. I proved to all, that I was not different.. I am brother to many!! Race is but a state of mind, not a color of skin..
Question,
My doc told me that using herbal remedies such as those mentioned could be more harmful that helpful with the exception of milk thistle.
Do you think that this is just that doctors are programmed to prescribe medication?
I am 38 just diagnosed but have had for 26 years best guess
also wondering what is considered a low viral load going in and what is high?
I read on a link below that geno1's with lower viral loads respond quicker. however it did not give a low and high range.
Best of luck to you
My doc told me that using herbal remedies such as those mentioned could be more harmful that helpful with the exception of milk thistle.
Do you think that this is just that doctors are programmed to prescribe medication?
I am 38 just diagnosed but have had for 26 years best guess
also wondering what is considered a low viral load going in and what is high?
I read on a link below that geno1's with lower viral loads respond quicker. however it did not give a low and high range.
Best of luck to you
I have been told that I hace had hep c since birth based on damage..
My viral load is only 5462, or 3.74.. Doctor tells me that I am a poster child for peg intron.. Exactly what the drug is made for..I was told that if I make it through 48 weeks on meds, I have about 80% shot of clearing.. This is by leading hep doc, and head of transplant team.
As for vitamins, I believe doctors only prescribe meds!! Most of them are stock holders in the meds, and that is why some prescribe pegysus, over the redipen.. Alpha 2b has shown better clearing responses in all genotypes, but slightly more sides..Why suffer through a med that has a lower success rate??
Herbs where put here for a reason, and if studies show that they are helpful, than I am all for them.. The trials that I mentioned in my other post abou NAC, shows direct like that increases effectivness of interferon in hep c patients.. Run a google search for Hepatitis c research. It was documented by several different Universities..
My viral load is only 5462, or 3.74.. Doctor tells me that I am a poster child for peg intron.. Exactly what the drug is made for..I was told that if I make it through 48 weeks on meds, I have about 80% shot of clearing.. This is by leading hep doc, and head of transplant team.
As for vitamins, I believe doctors only prescribe meds!! Most of them are stock holders in the meds, and that is why some prescribe pegysus, over the redipen.. Alpha 2b has shown better clearing responses in all genotypes, but slightly more sides..Why suffer through a med that has a lower success rate??
Herbs where put here for a reason, and if studies show that they are helpful, than I am all for them.. The trials that I mentioned in my other post abou NAC, shows direct like that increases effectivness of interferon in hep c patients.. Run a google search for Hepatitis c research. It was documented by several different Universities..
Lol this internet is so funny, you can say one thing and everyone gets a whole different view. Im not racist, nor do I care about colors, I said before, my wife is caucasion and my other sons mother is spanish, so why do people keep bringing up color? my coments where because someone talked about the jewish holocaust and I reminded them of the great holocaust of afro americans that people try and act like never happened. Which lasted for over 400 years and not 20 years. I love all people so dont get it twisted. Where I pray there are all one no matter what country your from or color of your skin.
A salaam walikam
My peace and love find you all
Now the question I have is, does anyone know the different tests that can be done to test for this virus? I heard that one cant detect below 10,000 viral load and that there is other tests that can detect much much lower, incase its hiding in your liver.
A salaam walikam
My peace and love find you all
Now the question I have is, does anyone know the different tests that can be done to test for this virus? I heard that one cant detect below 10,000 viral load and that there is other tests that can detect much much lower, incase its hiding in your liver.
Welcome aboard the board!
The good news is the odds going into treatment for geno 2's are in the 80%-90% range. Included in those figures are geno 3's. I have heard that when just geno 2's are separated out, the SVR rates are in the 93%-97% range (assuming full treatment compliance).
You do have a couple of negative predictors going in that may lower those odds somewhat in your particular case - your high viral load and your age. Those factors might make me consider asking for the highest dose of ribavirin possible and safely tolerable. Also, you may want to ask for a 4 week PCR rather than wait until week 12, since many geno 2's are rapid viral responders. It would be good information to know in case you are a slower responder - in which case the possibility of extending your treatment beyond 24 weeks would become an option.
But, no need to dwell on the negative aspects of the numbers - the higher SVR rates for geno 2's are the positive ones that apply in your case!
Best to you as you begin your treatment.
TnHepGuy
The good news is the odds going into treatment for geno 2's are in the 80%-90% range. Included in those figures are geno 3's. I have heard that when just geno 2's are separated out, the SVR rates are in the 93%-97% range (assuming full treatment compliance).
You do have a couple of negative predictors going in that may lower those odds somewhat in your particular case - your high viral load and your age. Those factors might make me consider asking for the highest dose of ribavirin possible and safely tolerable. Also, you may want to ask for a 4 week PCR rather than wait until week 12, since many geno 2's are rapid viral responders. It would be good information to know in case you are a slower responder - in which case the possibility of extending your treatment beyond 24 weeks would become an option.
But, no need to dwell on the negative aspects of the numbers - the higher SVR rates for geno 2's are the positive ones that apply in your case!
Best to you as you begin your treatment.
TnHepGuy
I'm 57yr-infected by transfusions in '67, '79 & '85--after the 1st c-sec, all c-sec's. My liver completely failed and I almost bled to death-esoph varicies combined w/low plattlets. wks later I was tested for hep c-2b. I entered a study for ESLD (end stage liver disease), cleared the virus by day 18, completed tx-24wks-and am fine.
I can't understand why they won't tx your mom. I twiked my lifestyle, gave up all drugs and alcohol, except the herb. My partner is a known rasta/jazz percussionist now in tourning a heavy metal band. go figure.
Tell your mom to get another doctor. We handled all sx's and healing w/herbs, supplements, food--the usual mix of meditation and holistic methods. The drugs were free and I did bloodwork every 6wks or so. No bx or other tests. Didn't need them. It was all about the virus.
I've been cl 2yrs now. I was supposed to be dead 2 1/2 yrs ago. And all it took was the anti-viral meds and getting back to basics-plus gallons of green tes w/ginsing and organic honey, and SAM-e.
I can't understand why they won't tx your mom. I twiked my lifestyle, gave up all drugs and alcohol, except the herb. My partner is a known rasta/jazz percussionist now in tourning a heavy metal band. go figure.
Tell your mom to get another doctor. We handled all sx's and healing w/herbs, supplements, food--the usual mix of meditation and holistic methods. The drugs were free and I did bloodwork every 6wks or so. No bx or other tests. Didn't need them. It was all about the virus.
I've been cl 2yrs now. I was supposed to be dead 2 1/2 yrs ago. And all it took was the anti-viral meds and getting back to basics-plus gallons of green tes w/ginsing and organic honey, and SAM-e.
as suggested by snook, do a search on beneficial nutrients/substances for the liver. some herbs are harmful and others like milk thistle and licorice are not. then there are protein derivatives that decrease cell damage as do antioxidants, you must do your own web search to get a fuller picture as this forum can answer some but not all of our questions.
Run everything by your dr, since some don't want you taking any herbs while on tx, I guess it can add too many variables if they decide to use your stats in a retrospective study. who knows?
snook: anal fixation? lol. yes, GIs like colonoscopies, but to rule out other hidden conditions. Why is she refusing a bio? I am also 52, with mild damage at present and trying to keep it that way. Why are they refusing tx, is it that they feel she might be a difficult patient? ;-}
I would love to learn to climb for coconuts.
be well
Run everything by your dr, since some don't want you taking any herbs while on tx, I guess it can add too many variables if they decide to use your stats in a retrospective study. who knows?
snook: anal fixation? lol. yes, GIs like colonoscopies, but to rule out other hidden conditions. Why is she refusing a bio? I am also 52, with mild damage at present and trying to keep it that way. Why are they refusing tx, is it that they feel she might be a difficult patient? ;-}
I would love to learn to climb for coconuts.
be well
Bx's are not necessary, and if one doesn't have insurance, it's a luxury that I decided to forego. The majority of tests are just other ways to tell you your sick. Having no insurance makes one think, is this doc visit and resulting Rx really nec if I can use alternative, non-invasive techniques. We decided on a simplier, healthier lifestyle that is not nec cheaper and tx @ home w/herbal, holistic measures. It worked for me and the disease left b/the lifestyle stayed.
that is fascinating.
You mean that with the lifestyle change that you made you were able to clear the hcv?
I would be more interested in what all this lifestyle change involved if you care to share
You mean that with the lifestyle change that you made you were able to clear the hcv?
I would be more interested in what all this lifestyle change involved if you care to share
About my mother, dificult patient, O yeah!! she lived in Jamacia for 28 years, she is very difficult!! All she wants are the meds..She is willing to go on treatment today if they would give it to her.. She signed up for the university of miami clinical study a few years back, when peg first came around.. They gave her two injections, everyone in the study got sick but her, they asked her not to come back..No explanation, just leave..The last GI that she went to was so obsessed with running other tests, she had to call United Healthcare just to get blood lab results, that doc refused her..She is now waiting to see another doc from UM that was recommended by insurance, and is strictly business.But she will not see him till July.. As far as the biopsy, she has read all the complications, and risks, and would rather avoid it.. She saw me go through it, and like I said, it was just like the seen from Pulp Fiction when they stick the needle in Uma Thurmans chest.. Ouch!!!
I am very curious about woman that posted above about green tea.. I have seen many studies and post all over internet about Green tea.I am very interested in what herbs you are taking as my mother is also vegan and natural herb remedies.. She fasts monthly, drinks green tea, eats parsley salad, and pretty much only organic foods..She also heavily believes in natural bee pollen.. There is a new drug that works with interferon, I think it is called Visuid.. It doubles the effectivness of peg.. She got a whole pamphlet from doc on it.. It is derived from bee pollen.Bee pollen is a natural antibiotic, and will not support mold or viral growth.. It is also a excellent source of protein and b vitamins..Gives you energy.. Gotta harvest whats nature provides, as med prices are rediculous!!!!
I am very curious about woman that posted above about green tea.. I have seen many studies and post all over internet about Green tea.I am very interested in what herbs you are taking as my mother is also vegan and natural herb remedies.. She fasts monthly, drinks green tea, eats parsley salad, and pretty much only organic foods..She also heavily believes in natural bee pollen.. There is a new drug that works with interferon, I think it is called Visuid.. It doubles the effectivness of peg.. She got a whole pamphlet from doc on it.. It is derived from bee pollen.Bee pollen is a natural antibiotic, and will not support mold or viral growth.. It is also a excellent source of protein and b vitamins..Gives you energy.. Gotta harvest whats nature provides, as med prices are rediculous!!!!
if you read new sojourn's comment (c12) you will get an overview of what she did to clear the virus. her last post was not clear enough.
she is very much into healthy foods, herbs and the like, like I used to be when I lived in Vermont's EPP. I even drank golden seal tea....ugh.
she is very much into healthy foods, herbs and the like, like I used to be when I lived in Vermont's EPP. I even drank golden seal tea....ugh.
Glad to have you join us and yes...please keep us posted! Sounds like you will do really well especially starting out with no aches and pains to begin with. Yes...I agree with Cuteus..this disease is so puzzling at times in the fact someone can have it for 40 years or more and no problems and then others 20 years or less...and symptoms are cropping up. We can only learn from each others experiences by posting and letting everyone know our story! Good Luck to you!
welcome and good luck in your tx, most of all seem to carry on with our daily lives, at a reduced level, but functional most of the time.
It doesn't seem to amaze me how some can carry this virus for so long and have no/minimal damage or symptoms, then we have this 26yr old man who is almost cirrhotic. You must have a strong system, and You should do well with the tx. keep us posted and share your experience, especially if you have no sides, to keep a balanced pic of how tx works.
It doesn't seem to amaze me how some can carry this virus for so long and have no/minimal damage or symptoms, then we have this 26yr old man who is almost cirrhotic. You must have a strong system, and You should do well with the tx. keep us posted and share your experience, especially if you have no sides, to keep a balanced pic of how tx works.
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