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Supplemental Security Income & Hep C

Does anyone know how to get SSI (Supplemental Security Income) if you've got Hepatitis C?  

Hepatitis C is on the Digestive System list of impairments.

The rules clearly state you have to have a physical or mental condition that prevents you from doing any type of work to qualify.  I know many people who can't work while going thru tx.  Does this apply to anyone?

You have to have certain symptoms that limit your ability to work (such as too fatigued or sick to do anything).  
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Avatar universal
I personally, don't enjoy the prejudice that I get from others for the fact that I made the decision to go on disability.  Excuse me, I worked for MANY years and paid into the system.  I didn't just go up and say, give me a hand out w/o putting in my time.  I started working at 16 yrs old.  I worked all the way up until I was in my 40's.  I struggled w/going on the disability.  It's hard to live on it.  It's even harder when people judge you.  I'm happy for those of you who are and were able to hold down your jobs, keep your jobs.  Try doing that through 10 treatments. Over and over again having to ask for time off from work for doctor's appt.'s, liver sono's, liver biopsies, labwork, clinical trials that want you there every week...., not to mention the side effects from doing 10 treatments.  I've had so many mental side effects, "lingering chemo brain" , etc., etc.  I WANT to be able to make more money than the poverty level wages that I get from our government, which excuse me, is less than $12,000 a yr.  I made hugely more than that when I was working.  I'm tired of trying to rationalize this....    You either understand my plight, or you don't..., that's totally up to you.  I'm the one that is having to live with my decision and believe me, it is not pretty!

Susan400
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179856 tn?1333547362
Once again, The Goal here is to try and figure out how to get approved for benefits. "

May I please enquire as to why you feel you are disabled enough to get benefits?  I haven't seen any reason why you think you should be entitled to government assistance - for those who do need it, obviously it should be approved and generally is. That is why they make it so hard to receive it, they want to make sure it's not used like welfare - as a way of life but is indeed for those who are disabled and eligible.

Most folks who are just diagnosed with hepc didn't even know that they had it - it's a very symptomless disease for most people until very late in the liver damage progression - which I'd assume for someone so young you cannot yet have.
So i'm curious why you are so interested in this subject considering mosto people double your age are not?
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Avatar universal
Whose goal Cory?  Those that need and deserve SSI or those that have hepc?
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29837 tn?1414534648
You tell 'em Cory

Magnum
Helpful - 0
Avatar universal
This is a Hepatitis C forum.  AND it is a fact that Hep C is on the list of impairments.  SS isn't for everyone, some people can work, others cannot.  

Once again, The Goal here is to try and figure out how to get approved for benefits.

Helpful - 0
Avatar universal
Everytime a discussion like this comes up you take offense.  No one was directing criticisms at you.  Your name was not mentioned and no one was alluding to you. Most everyone here knows your situation.

It was Cory's comments like:  "We've all got Hepatitis C.  Basically, Hep C is on the list of Digestive System List of Impairments.  You should automatically qualify.  I don't know why anyone wouldn't want to give this a shot. "

I'm sorry, but if read something like that I must express my opinion and it's not personal or a criticism.  I don't know who you feel you have to defend yourself to but it's certainly not me.

Trinity

Helpful - 0
29837 tn?1414534648
Well said Susan. I'm losing a good chunk of money and have to turn down jobs in order to keep my SSI because any insurance company will not touch me with my existing physical problems. With SSI, I get Medicaid, which without, I would be in a wheelchair and broke with dust in my pockets.

The criticism is from those who don't understand. They don't necessarily mean to berate you or anyone receiving SSI, they're just confused as to the facts of why persons like you and I are eligible. I too worked for at least 40 year and paid into Social Security thousands of dollars and am deserving and glad I got SSI.

Funny thing, when the criticizers will one day need SSI, they will change their tune in a hurry... By the way, best of luck in your next treatment with PI's. The battle is not over, just on hold for a while...

Mag
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