Ready to Treat again

[jerialice]

I'm going in August 8 to a prominent research doc who is doing a lot of trials. i seem to have had extreme reaction to INF both times, so any recommends on the discussion with him?
we're hanging in there- i am impressed by everyone's fortitude!
ja

[jerialice]

thanks, guess i am kind of nervous- i have heard a lot of good results with the new tx and i am really wanting to be hep c free!! aren't we all?
but just the opportunity for that makes me so excited i get goofy!!! :)

[orphanedhawk]

How you approach the doctor is simple.
Just tell him you're interested in possibly doing an oral trail and does he have any information.
Write down questions before going to see the doc, and bring them with you.

[jerialice]

Also I am a relapser, not a null responder. I cleared both times on SOC, but can't take that again.

[jerialice]

hey y'all i know about the all oral trials... just wondering how to approach the doc? Also I must be in low stage, but even after two round of SOC, I never had a biopsy, just a cat scan where they found hemangiomas. After that I am not keen on poking in my liver, so I am going to ask for a fibro scan at my appointment.

I know I have Geno type 1 but do not know the subtype. After being on this forum for a while, I know there are questions I need to ask, I guess that's the advice I am looking for!
thanks to every one.

[ceanothus]

I agree with OH. Do you have any recent biopsy results? That helps a lot in deciding how immediately you need to treat (which could be an issue if it turns out that you aren't an appropriate candidate for the all-oral trials). If your liver is still at stage 1-2 you could likely afford to wait until the all-orals are approved and on the market, but at stage 3-4 you would face a tougher decision. Good luck, and I hope the trials work out for you.

[orphanedhawk]

Yes.
Ask about the all oral interferon free trails which are having great success.