Thyroid is out of whack

[frustrateddee]

Hi. I was told to stop incivek by Dr. today because I felt so bad, but then found out my TSH is 9.025 and the normal is .3-3.0 so my question is should I try and continue incivek and work on my TSH level because I know that my TSH is part of the reason that I am so depressed and miserable. I called my Dr. and they said we can talk to Dr. tomorrow? Should I take them tonight when I haven't been told to? I have two weeks left. ???  

[crossroadsec]

I'm w you on not telling dr stuff. I've occasionally reached a point w side effects where I keep my mouth shut n let my labs do the talking.
It's such a freaking gamble. Sigh. I'm w you on fighting for the right to stay on. You've got too much time invested. Go girl!! Karen :)

[frustrateddee]

Man we have been plucking away Karen! OMG

[frustrateddee]

Hell Yeah Will! I am being proactive! They blew my calls back off and said they will talk to me tomorrow w/o taking incivek...that makes me feel helpless! Also I am continuing INF for 24 weeks and I sure the hell don't want to screw that up by stating all this because what if he stops that? Why can't I just get levoxyl adjusted? OMG Don't want to miss doses if I can do this...ya know

[hrsepwrguy]

I am just pointing out that thyroid problems can be caused by inf not trying to scare you and think you will have to stop. Speak with your doc as will said and see what needs to be done to get this under control.

[crossroadsec]

The helpless thing is part of the root of everything we're facing. I try the philosphical approach and see what meaning I can get out of all of this.
Then I give up and eat oatmeal and say swear words silently.
Oh. And not to make light of ur situation - but I got gloves for Christmas and tore off the middle finger if that cardboard form... I wave it around from time to time and laugh my head off.
Seriously hope you get it sorted out. I've been checked for thyroid a lot and was told by a dr years ago that every woman's endocrine system is so sensitive.  It's like a spider web. Pluck one strand and the whole thing vibrates. That includes the thyroid. Karen :)

[willbb]

There is no reason to freak out and you are certainly not helpless..

You are in the 10th week of a gruelling treatment regime and are having some side effects that with the proper care can be mamged.

Also your treatmeants going well clinically as you are UND. at this point

Sounds like you are having some depression issues that you need to speak to your doctor about  and yes you are hypothyroid that is  most likely been made worse from the INF

When the doctor saw the reading of 9 did he not suggest an increased dose of synthroid?

And has he not suggested possibly an AD?

My suggestion is when you see him tommorow .dicuss these things and ask him to help you remedy them.

That is being proactive...not helpless...

Hang in there you can do this...... ...
Will