VBX-950, heart problems???

[copyman]

i called a hepatologist that was the first doc i saw after finding out i had HCV. i now see a differnt doc closer to home. although the doc i see now is involved with several trials he does not have the VX trial. So i called my old doc to ask if he would be having the VX trial and of course was not able to speak to him directly but talked to one of the fellows which told me they will have the VX trial there. He said he will put me on the list. he said there was some concern with the sx and i said about the rash? he said no there was more concern about heart problems! said they would know more after the boston meeting. has anyone heard of heart problems with vx-950? this was the first i had heard of it and was very susprised. thanks for any info on this.

[susan400]

Except, I was in Group C-which did not get Ribavirin and I was still having to get the EKG during the trial(1 time) and the (1 time) post trial...at that point, they already knew that I didn't have the Riba provided to me.    As I said above, I feel that it was just a precautionary measure, not necessary indicative of their being a known problem with the VX-950.

Susan

[Myown]

Waaah- Waaaah, you could have lied and said I'm not a PITA. LOL But thats okay, I know I am, my husband tells me too,,,,boo hoo, sniffle, sniffle.

[jmjm530]

MO: And you also have on record as all can see what a PITA I am.
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Agreement at last :)
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Susan,

My first doc wouldn't let me treat until I had a treadmill stress test as well as EKG's, ect. I asssumed it was mostly because of the ribavirin.

-- Jim

[Myown]

Just felt necessary to clarify my views when they are mischarcterized and taken out of context
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Wait a minute!! LOL ..I REALLY DON'T (caps for emphasis) think I mischaracterized your views nor did I feel I had taken anything out of context, but yes my tone el stinko - you were right about that. But anyhow you have it down on record how you stand and you also have on record as all can see what a PITA I am.

[Proactive]

Good. My mind is a few clubs short of a set these days, so I worry about not communicating with my 2 typing fingers what I'm actually thinking....if that makes sense (lol)

[susan400]

I know that prior to my being approved for the trial (VX-950), I had to pass 2 EKG's and then, after I started taking the VX-950 and then, again, post VX-950 I had to have another one, this was in the Prove 3 trial-at the trial site.  They never told me that the VX-950 could cause a heart problem, but I assumed that it was to make sure that a heart problem was not occuring.  Anytime that you take any type of experimental medication, there's always a risk of the unknowns.

Susan