Wrong Dosage???

[befuddledbedarned]

Has anyone here "EVER" been put on the Wrong Dosage? If So, Now How is that going to effect my outcome, & is it to late to correct this? I am about to have my first Real "Riba-Rage" over this as I feel sure it was my "Nurse Hatchet" That screwed up & gave me the wrong "Pre-Printed" Prescription. I am totally pissed. I am a combo strain of 1a, & 1b, & since I gained that 20 lbs while sitting on my pity pot before TX I should have been on the Max dosage of 1200mg of the Copagus, even now that I have lost that 17 lbs, I should still be on at least 1000mg, & I have been on freakin 800 since I started! (which is for people that are on 24 week treatment for genotypes 2 & 3's)!!! I talked to the Nurses @ Pegasys Hot Line... & they are stumped & concerned, as to why, & how this could have happened... I guess it is an easy oversight, as I have even posted my dosage & med cost in here several times, & nobody picked up on it either. So now my question is... What now??? Increase my dosage & extend my TX for 6 more weeks on the tail end of this? I feel vulnerable & sabotaged!!! Furthermore, I am Soooo Pissed! That's the one BIG thing you don't do is mess with peoples meds, Y'all see how upset folks get when they have to reduce you meds, now imagine how it feels to find that you have been on reduced meds all along (Which Reduces My SVR Rate from 48% down to 41%)Gezz... with my genotype (Especially my combo strain) I need every % I can get! Being us combo strains are so "rare", there just isn't that much data on our success rates as it is! Ahhhh!!!
Vicki

[ringading]

oh wow....what a mix-up eh....well if layla has already been through this, she would know...i wonder how many other people have had this experience as well......so sorry this happened to you both.....man i'd be tripping out also....i tried to find more info but seem to be having trouble with brain working with me the morning after shot night....
hugs....

[Fubarcat]

Ring - you crack me up.  That sounds just like something I would say!  Befuddled - NOW you have the right attitude!  Go get 'em!  (P.S. - I took my nickname from a cat I had.  Then you mentioned the word "snafu" and remembered I had another cat named Snafu - not related to Fubar, however.  That memory made me smile!)

[WackyKilkins]

I had a mistake made by the pharmacy on my injection.  They forgot to put "inject .5cc" on my label and while reading the generic information I was given by the Doctor, it read inject .7cc, so that's what I did.  I later found out that my first injection was incorrect while talking to the nurse who calls and checks on me every couple of weeks.  My doctors office tried to smooth it over.  

Sorry to hear about your mistake.  I would deffinitly try to get a copy of the original RX.  (It may not be the nurse.)  Prayers to you.

[missers]

My husband also a 1a & 1b combo on Pegasys/Copegus tx.  He is 6'4" and at onset of tx weighed approx 235.  Doc started him on 1200 mg of Copegus but about 16 weeks into tx he became anemic and doc cut dosage to 800 mg and assured us that dosage was well within parameters for his weight (which had dropped to 212)so we know it is weight based.  Doc also said that cutting dosage would not have been a big deal even if he hadn't lost so much weight. We weren't happy with the cut in dosage as we thought that it might decrease his chance to achieve SVR. After some research on the Roche website and re-reading the medication information, we realized that the difference in the percentage of success was minimal (1%)with the lower dosage for genotype 1.  My husband just finished week 48/48 and was showing as undectable since week 12.  I know everyone responds differently, but try not to get too "freaked".  Just talk to your doc and ask if you should up your dosage.

[ringading]

ohhhhhhh okay.....ALRIGHT....WHERE THE HELLS MY GUN.......NOW I'M TRIPPING FOR YOU!!!!!!!

well, a girls gotta do that for her friends....espeacially since i seem to have lost all MY VERY OWN riba rage.....figure i'll just borrow some of yours darlin....

fubarcat.....LOVE the name and how very appropriate given this beauricratic nightmare we must wade through.....

OKAY.....RIGHT....THE GUN......I'VE GOT YOUR BACK VICKI!!!!

[eyehavegr8life]

Hi there, I'm so sorry to hear about your meds situation! I'm a newbie, not on meds yet, but I "lurk" here daily.You were one of the first to post to me in Dec when I found out I had this dragon! I just want ya to know I'm being supportive. I only wish I had the answers for you? It's good that you are staying your own advocate, and caught this now to question?...It could have been futher down the treatment road! I hope that this dosage problem isn't one, and it IS givin by weight...then things will be OK. This is where I gather my info so I can be informed at my Dr visits. I will be following your story so I can be aware when I finally start treatment. I ended up going back "Three Steps" by getting a second opinion with the Director of Hepatology at Cedars Sinai. My biopsy appt with the first GI was "squashed" when I changed Drs,so now I wait until Mar 16 to see a Hepatologist,then a biopsy. I'm learnin real quick here, this is a "waiting game" and I'm learnin how to wait! Sheesh, I hate this! Keep us updated. Positive thoughts your way, Annette