I have the same thing and have developed cerohsis of the liver. I have been put on the transplant list and from what I know so far that is the only option because it is not reversible. What hospital are you dealing with?
I’m sorry to hear about your brothers problems; I know nothing about Alpha 1 Antitrypsin Deficiency. Most of the folks in here are dealing with Hepatitis C. I just saw this resource in a quick search; maybe they can help in some way?
http://www.alphaone.org/alphas/
Best of luck to you and your family—
Bill